11 Mos Post, & My Son is Going Home

nide44 · 08-16-2007, 10:40 AM

Just an update.
My son (C-5, incomplete) did go out from his first hospitalization into a home environment last Dec (3 1/2 mos post). His sister took him in, but he became too much for her to handle.
In and out of 3 (or is it 4?) hospitals (all UTI related) from Dec. to Feb. His last hospitalization (in Feb.) had him discharged to a 'managed care facility' for 2 weeks of intensive IV antibiotic (UTI) and he just stayed on, after that.
Finally, a soc worker at the nursing home, gave him the start-up help he needed - and applications for all the (Medicaid) waivers, (that he couldn't qualify for, at his sisters' house) and home health care, to be able to go home once more.
His Mom (an R.N.), with a new apartment in a handicap accessible building (its not a 'real' handicap accessible apt, tho- but he's able to navigate in it very well) will be taking him in, this time.
He's much more independent, rides the "Mobility" vans to, and from, therapy- and anyplace else he wishes to go (malls, visits, doc appts) all alone, without the need for anyone to assist him.
He's had an sp put in, and is stronger - and can shift his body positions himself. He no longer needs turning at nite... he does it.
We shall see how he fares this time. I'm very hopeful.

I'd like to note that finding this site, very early in his recovery- has been a Godsend.
CareCure and all of the people who contribute and post on these forums has helped me (and, in turn-my son) so very much that I do not have words thankful and grateful enough.
I have learned much here. I have had fears dispelled. I have heeded warnings. I have had sound advice. CareCure has been a fountain of help and assistance.
All the SCI Nurses' help has been wonderful, and very helpful.
To those of you, very new SCI's and relatives, that are reading this.....use it (all the forums, and links) wisely...
and to your advantage.
(Oh, BTW - I still come here, to the "Care"forum, daily.
CareCure continues to be a source of valuable information to me)

Lizbv · 08-16-2007, 10:57 AM

I find it encouraging your taking a active roll in your sons life. The SP will help a lot, I know having one has for me as far as increased independence. Getting on Waiver and in to his own place is another great step. good luck. isnt carecure great!?

BillMiller823 · 09-17-2007, 04:57 AM

Ok, I should probably know this, but what's an SP?

Bob, it's great to hear that he seems to be doing real well, thanks for sharing!

If you think he might like bowling, see below or let me know.

- Bill :-)

betheny · 09-17-2007, 08:01 AM

I'm so glad to hear he got over the hump. I felt so bad for you all when he was dismissed and you were unprepared. That first year of SCI is kind of unbelievably brutal, isn't it? So much of the healing can only come with time...

momo3 · 09-17-2007, 10:22 AM

I agree with your opinion on CC. I also have found very valuable for me ( and my family). I too am 11 months post. I am happy for your son. Way to go!!

dan_nc · 09-17-2007, 02:32 PM

Quote:

Originally Posted by BillMiller823

Ok, I should probably know this, but what's an SP?

Suprapubic catheter?

08-16-2007, 10:40 AM	#1
nide44 Senior Member Join Date: Sep 2006 Location: Baltimore MD Posts: 167	11 Mos Post, & My Son is Going Home Just an update. My son (C-5, incomplete) did go out from his first hospitalization into a home environment last Dec (3 1/2 mos post). His sister took him in, but he became too much for her to handle. In and out of 3 (or is it 4?) hospitals (all UTI related) from Dec. to Feb. His last hospitalization (in Feb.) had him discharged to a 'managed care facility' for 2 weeks of intensive IV antibiotic (UTI) and he just stayed on, after that. Finally, a soc worker at the nursing home, gave him the start-up help he needed - and applications for all the (Medicaid) waivers, (that he couldn't qualify for, at his sisters' house) and home health care, to be able to go home once more. His Mom *(an R.N.), with a new apartment in a handicap accessible building (its not a 'real' handicap accessible apt, tho- but he's able to navigate in it very well)* will be taking him in, this time. He's much more independent, rides the "Mobility" vans to, and from, therapy- and anyplace else he wishes to go (malls, visits, doc appts) all alone, without the need for anyone to assist him. He's had an sp put in, and is stronger - and can shift his body positions himself. He no longer needs turning at nite... he does it. We shall see how he fares this time. I'm very hopeful. I'd like to note that finding this site, very early in his recovery- has been a Godsend. CareCure and all of the people who contribute and post on these forums has helped me (and, in turn-my son) so very much that I do not have words thankful and grateful enough. I have learned *much* here. I have had fears dispelled. I have heeded warnings. I have had sound advice. CareCure has been a fountain of help and assistance. All the SCI Nurses' help has been wonderful, and very helpful. To those of you, very new SCI's and relatives, that are reading this.....use it (all the forums, and links) wisely... and to your advantage. (Oh, BTW - I still come here, to the "Care"forum, daily. CareCure continues to be a source of valuable information to me) __________________ Bob B SCI - Parent Last edited by nide44; 08-16-2007 at 10:53 AM.

09-17-2007, 04:57 AM	#3
BillMiller823 Senior Member Join Date: Jan 2004 Location: Leesburg, FL Posts: 367	Ok, I should probably know this, but what's an SP? Bob, it's great to hear that he seems to be doing real well, thanks for sharing! If you think he might like bowling, see below or let me know. - Bill :-) __________________ Wheelchair users -- even high-level quads... WANNA BOWL? I'm a C1-2 with a legit 255 high bowling game. Checkout the below CareCure thread about a new way to bowl! http://sci.rutgers.edu/forum/showthread.php?t=87066

09-17-2007, 08:01 AM	#4
betheny Senior Member Join Date: Sep 2001 Location: Oklahoma,USA Posts: 18,333	I'm so glad to hear he got over the hump. I felt so bad for you all when he was dismissed and you were unprepared. That first year of SCI is kind of unbelievably brutal, isn't it? So much of the healing can only come with time... __________________ Blog: Does This Wheelchair Make My Ass Look Fat?

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08-16-2007, 10:57 AM	#2
Lizbv Senior Member Join Date: Jul 2001 Posts: 2,844	I find it encouraging your taking a active roll in your sons life. The SP will help a lot, I know having one has for me as far as increased independence. Getting on Waiver and in to his own place is another great step. good luck. isnt carecure great!?

09-17-2007, 10:22 AM	#5
momo3 Senior Member Join Date: Mar 2007 Location: minnesota Posts: 2,082	I agree with your opinion on CC. I also have found very valuable for me ( and my family). I too am 11 months post. I am happy for your son. Way to go!!