HELP; Sphincter pain is becoming unbearable hell from bowel program.

[Tim C.]

Never to avoid another source of good ol' pain, I'm beginning to think my SCI makes the model for any pain an SCI inflicted person can experience.
I was never fond of my daily bowel program, but as of late the pain experienced by bowel movements and stims is such that it takes me at least an hour plus a fentanyl pain killer to recover EACH DAY.

I can't friggin take it anymore.

Got checked for rhoids, none in, or out of my butthole. No blood, plus colonoscopy done in Feb.

I use a m.bullit and Lidocaine.

My total program consists of 1hr of shit movements, and 1hr recovery. By the time I start my program eacfh day, my stomach becomes spasming, rock hard, and burning pain. I can't wait to get the shit out.
Averaging 3-4 stims to encourage the shit to get out. Stool is always like oatmeal and goodly amounts.
Last stim usually results in mucous.
Even still, I get accidents at times on standing frame.

The Good: To make my shit each day, I take Miralax, Ducolax pill (2x/day), Amitiza gel pill (2x/day), aprrox 1 gal water, and plenty of ruffage.

The Bad; To combat neuro pain I take 2 Actiqs, 1 Xanax, and 48hr Duragesic (50ug).

The Ugly: A butthole that feels like a hot poker shoved in it every morning.
G.I. docs go the eqivalent of ?, as does colo/rectal MD, and physiatrists.

Help!
Try Botox?
then ostomy?'
please anyone?

[justadildo]

one word,one cure.......colostomy

[SCI-Nurse]

You didn't say what the level of your injury is. Also, are you doing dig stim? Where is your neurogenic pain?
CKF

[Tim C.]

three to four stims per program.

Forgot to mention that my sphincter has too much tone. Dig stims must be done very gently in order to just get the sphincter to cooperate.
(first time I was ever considered a tight-ass)

In 12 hrs it starts all over again.

[crppled007]

Originally Posted by justadildo

one word,one cure.......colostomy

I concur with that, one of the best things that I could've done

[Tim C.]

of their bowel program or as incident to facillitate another procedure?
IE; stomach surgery, hemmerhoid condition?
thx

[Saorsa]

Have you tried applying lidocaine/xylocaine jelly to the rectum befor DS/BP? That did wonders for me in reducing my AD. Also, make sure they place the suppository on the rectal wall, and not in the the center or in stool. Otherwise it won't dissolve quickly or work properly.

[Tim C.]

It's 1pm and I'm only just beginning to recover from today's bowel program of lingering pain from Hell. Not unlike any other day before.
Only, the level of pain and spasms triggered from the bowel program are (not just seem to be) increasing each day.
Again, symptom-wise my butthole, and adominal spasm pains linger on since the first digital stim starting at approx 10am each day.
It really hampers any quality of daily life.
Help.

Saorsa, Cripp, JustaD, Nurse thanks for responding.
I definitely use Lidocaine already.
I wanted to take the colostomy route as last resort...........but maybe the best?

[SCI-Nurse]

Another possible option, but one which you should only explore with an experienced colorectal surgeon working with your physiatrist would possibly be Botox injection of the external anal sphincter. A complete block would not be desirable as this could make you incontinent, but the proper injection might weaken the spasm a bit. Of course it would have to be repeated every 6 months or so.

(KLD)

[metronycguy]

you try miralax yet? it is so much easier and less painful then all those irritant laxatives.