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| New SCI For people, families, and friends with recent spinal cord injuries |
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04-12-2007, 06:06 PM
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#1 |
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Junior Member
Join Date: Apr 2007
Posts: 4
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Help Me Find Best Place for Son's SCI Rehab
Can anybody give me an indication of their experience of a good rehab facility. My son is still in ICU with C6/C7 SCI. Is presently at PA, Queensland, Australia. I would like to find out whether this is the best place for him to be for rehab or should I look at moving him to somewhere better - private or state?
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04-12-2007, 08:59 PM
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#2 |
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Moderator
Join Date: Aug 2001
Location: USA
Posts: 7,522
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Moving to New Injury
Hi~ I am moving this to the new injury forum in the hopes that others will see it and respond.
I know that Dogger did his rehab at PA in Brisbane. He is currently on a plane headed for the states. Give him a day or so and I am sure he will pipe in. Ananbanana and any other Ozzies can you please post.
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Every day I wake up is a good one |
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04-13-2007, 01:32 PM
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#3 |
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Junior Member
Join Date: Apr 2007
Posts: 1
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My husband went to the Shepherd Center in Atlanta, GA. Fanrastic facility with, in our opinion, the best physical and occupational therapists. It's a facility strictly for neurological problems, but it seems to be mainly SCI patients. I would highly recommend it for him.
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04-13-2007, 04:07 PM
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#4 |
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Junior Member
Join Date: Apr 2007
Posts: 4
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Rehab aimed at return of motor neuron function
Thanks for responding Guys- it is nice to know someone else is out there. Ben (22) is due to go down to acute on Monday. I have spoken to doctors who say that the rehab that they offer includes maintaining range of movement incase of a return of function but nothing aimed at encouraging motor neuron function. Is this the norm. Your website talks about using FES within first six weeks of injury. They only use the FES for certain patients and that is later down the track. Are there any rehab centres that focus on the return of motor neuron function as well as the use of remaining functions?
It would be good to know what Dogger went over to the States for and where he went to. |
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04-13-2007, 05:35 PM
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#5 | |
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Moderator
Join Date: Aug 2001
Location: USA
Posts: 7,522
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Quote:
Look up his name in Search and send him a private message. It will go to his email account. Try this link: http://sci.rutgers.edu/forum/private...o=newpm&u=1401
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Every day I wake up is a good one |
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04-15-2007, 12:03 AM
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#6 |
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Junior Member
Join Date: Mar 2006
Posts: 14
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I did my 11 months rehab at the PA starting June 05. No complaints. You don't really have much choice of places in Australia... PA is the only SIU for QLD, NT, and northern NSW. It's really good though- their TRP program is brilliant, especially if you're not from Brisbane [i was from Rocky]. Anything you want to know, email me dazonic@gmail.com
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04-15-2007, 01:20 AM
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#7 |
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Junior Member
Join Date: Apr 2006
Location: Southern Indiana
Posts: 23
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My son did his first intensive rehab at Kennedy Krieger in Baltimore. It is a fantastic place and he received 6 hours of therapy a day.He was inpatient. The building is older and not much to look at, but the therapy is outstanding. The doctor that runs the facility is Dr. John McDonald, who is the same doctor that treated Christopher Reeves and he also was the inventor of the Restorative Therapy FES bike.
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04-18-2007, 01:35 PM
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#8 |
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Senior Member
Join Date: Jan 2006
Posts: 176
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Jiill.
It is good that you are open and searching for the best treatment possible. Dr.s, nurses and people who have lived with SCI offer support here. I moved my daughter, 16, SCI C/6 incomplete, post 2 years, from Shenton Park in Perth, Australia. I regret waiting seven months to do so. I have heard that there is a progressive place in New Zealand, but don't know if they use E-Stim. Shepards spealizes in young people and I know that Kennedy Kreiger does as well. My daughter did therapy at Kennedy Kreiger and thought highly of their program. |
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04-19-2007, 02:39 PM
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#9 |
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Junior Member
Join Date: Apr 2007
Location: Arkansas
Posts: 7
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Rehab Choices
I am in the process of writing a book on my experience with spinal cord injury. I have just completed writing the chapter on rehabilitation hospitals in the US. Here is the information. I hope this helps. If you want to talk to me further, my email is cboyles@swbell.net. I can't tell you anything about rehabilitation from a personal perspective. I never had any rehabilitation. It took 6 weeks from the time of the accident until the doctors finally figured out I had a spinal cord injury.
Notwheels There is a group of 16 facilities in the United States that are called Model System of Care facilities. These 16 facilities are the most progressive in their care of spinal cord injuries. I have provided below a list of spinal cord injury hospitals and rehabilitation centers by state according to www.sci-info.pages.com: Alabama University of Alabama at Birmingham (UAB) (16) UAB Model SCI System Office of Research Services 619 19th Street South, SRC 529 Birmingham, AL 35249-7330 1-205-934-3293 sciweb@uab.edu www.spinalcord.uab.edu Spain Rehabilitation Center part of the University of Alabama System I could not find contact information California CareMeridian (10 facilities throughout California) 1-800-852-1256 gwakefield@caremeridian.com www.caremeridian.com There is a contact form on the website Casa Colina Centers for Rehabilitation 255 East Bonita Avenue P.O. Box 6001 Pomona, CA 91769-6001 1-909-596-7733 1-800-926-5462 Fax 1-909-593-0153 TDD-TYY-Q 1-909-596-3646 rehab@casacolina.org www.casacolina.org Rancho Los Amigos National Rehabilitation Center 7601 E. Imperial Highway Downey, CA 90242 1-562-401-7111 TDD/TTY 1-562-401-8450 www.rancho.org Santa Clara Valley Medical Center (16) Rehabilitation Research Center for TBI & SCI Santa Clara Valley Medical Center 751 South Bascom Avenue San Jose, CA 95128 1-408-793-6433 Fax 1-408-793-6434 www.tbi.sci-org Stanford Hospital & Clinics 300 Pasteur Drive Stanford, CA 94305 1-650-723-4000 Stanford Referral Center 1-800-756-9000 www.stanfordhospital.com contact form on website Colorado Craig Hospital (16) 3425 S. Clarkson Street Englewood, CO 80113 1-303-789-8000 Spinal Cord Injury Admissions Karen Mathias 1-303-789-8437 www.craighospital.org admissions@craighospital.org Spalding Rehabilitation Hospital 900 Potomac Street Aurora, CO 80011 1-303-367-1166 www.spaldingrehab.com contact form on website University of Colorado Hospital Aurora/Anschutz Medical Campus University of Colorado Hospital Anschutz Inpatient Pavillion 12605 E. 16th Avenue Aurora, CO 80045 1-720-848-4011 www.uch.edu University of Colorado Hospital 9th & Colorado 4200 E. Ninth Avenue Denver, CO 80220 1-303-372-0000 www.uch.edu Delaware Regional Spinal Cord Injury Center of Delaware Valley (16) Thomas Jefferson University Hospital Spinal Cord Injury Center Main Building, Suite 375 132 South 10th Street Philadelphia, PA 19107 1-215-955-6579 Fax 1-215-955-5152 www.spinalcordcenter.org Magee Rehabilitation Hospital 1513 Race Street 6 Franklin Plaza Philadelphia, PA 19102 1-215-587-3000 1-800-96-MAGEE www.spinalcordcenter.org District of Columbia National Rehabilitation Hospital 102 Irving Street, NW Washington, DC 20010 1-202-877-1000 www.nrhrehab.org Florida South Florida Regional Spinal Cord Injury Model System (16) Mailing Address Leonard M. Miller School of Medicine University of Miami South Florida Spinal Cord Injury Model Systems P.O. Box 016960 Mailing Locator D-48 Miami, FL 33101 Building Location Leonard M. Miller School of Medicine University of Miami Department of Rehabilitative Medicine 1611 N.W. 12th Street Rehab Center-Basement Floor Miami, FL 33136 1-305-585-1339 Fax 1-305-585-1340 Appointments 1-305-243-6605 Consult Line 1-305-585-7112 www.sci.med.miami.edu Georgia Shepherd Center (16) 2020 Peachtree Road, NW Atlanta, GA 30309 Referral (Admissions) 1-404-350-7345 Main Line 1-404-352-2020 www.shepherd.org Illinois Midwest Regional Spinal Cord Injury Care System (16) Northwestern University Feinberg School of Medicine Department of Physical Medicine and Rehabilitation Rehabilitation Institute of Chicago 345 East Superior Street Chicago, IL 60611 1-312-238-2870 Fax 1-312-238-1219 r-bailey@northwestern.edu www.medschool.northwestern.edu Indiana Hook Rehabilitation Center Mailing Address Community Health Network 1500 North Ritter Avenue Indianapolis, IN 46219 1-317-355-1411 1-800-777-7775 www.ecommunity.com website offers live chat with an operator from 8 am to 8 pm M-F EST Rehabilitation Hospital of Indiana—RHI 4141 Shore Drive Indianapolis, IN 46254 1-317-329-2000 www.rhin.com Maryland Kernan Hospital 2200 Kernan Drive Baltimore, MD 21207 1-410-448-2500 TTY 1-410-448-1967 Appointments 1-800-492-5538 University Rehabilitation Referral Service 1-410-328-8680 www.umm.edu/kernan www.kernanhospital.com Massachusetts New England Regional Spinal Cord Injury Center (16) Boston Medical Center One Boston Medical Center Place Boston, MA 02118 1-617-638-8000 www.bmc.org Spaulding Rehabilitation Hospital 125 Nashua Street Boston, MA 02118 1-617-573-7000 TTD/TTY 1-800-439-2370 www.spauldingrehab.org Michigan Center for Spinal Cord Injury Recovery Rehabilitation Institute of Michigan 261 Mack Detroit, MI 48201 1-866-SCI-CENTER Brian F. Sheridan, OTR CSCIR, Program Supervisor bsherida@dmc.org Mary Free Bed 235 Wealthy SE Grand Rapids, MI 49503 1-616- 242-0300 or 1-800-528-8989 Spanish or Vietnamese interpreters available info@maryfreebed.com University of Michigan (16) University of Michigan Health System 1500 E. Medical Center Drive Ann Arbor, MI 48109 1-734-936-4000 www.med.umich.edu contact form on website Minnesota Gillette Children’s Specialty Healthcare 2000 East University Avenue St. Paul, MN 55101 1-651-291-2848 1-800-719-4040 TDD/TTY 1-651-229-3928 www.gillettechildrens.org Mayo Clinic-Rochester 200 First Street, S.W. Rochester, MN 55905 1-507-284-2511 Fax 1-507-284-0161 TTD/TTY 1-507-284-9786 www.mayoclinic.org Miller-Dwan Medical Center 502 East Second Street Duluth, MN 55805 1-218-727-8762 TTD/TTY 1-218-720-1950 webfeedback@smdc.org www.miller-dwan.com Missouri Rusk Rehabilitation Center 315 Business Loop 70 W. Columbia, MO 65203 Department 1-573-882-3101 Clinic 1-573-884-0033 www.muhealth.org Nebraska Immanuel Rehabilitation Center Immanuel Medical Center 6901 North 72nd Street Omaha, NE 68122 1-402-572-2121 www.alegent.com contact form on website Madonna Rehabilitation Center 5401 South Street Lincoln, NE 68506 1-402-489-7102 1-800-676-5448 www.madonna.org Nevada CareMeridian 1-800-852-1256 gwakefield@caremeridian.com www.caremeridian.com There is a contact form on the website I could not find any specific information for the Nevada location New Hampshire Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1-603-893-2900 webmaster@northeastrehab.com www.northeastrehab.com New Jersey Kessler Rehabilitation Corporation & NNJSCIS (16) 300 Market Street Saddle Brook, NJ 07663 1-201-368-6000 1-888-KESSLER Fax 1-201-368-6262 e-mail inquiry form on website www.kessler-rehab.com Kessler Rehabilitation Corporation & NNJSCIS (16) 1199 Pleasant Valley Way West Orange, NJ 07052 1-973-731-3600 1-888-KESSLER 1-973-243-6819 e-mail inquiry form on website www.kessler-rehab.com New York Burke Rehabilitation Hospital The Burke Rehabilitation Hospital 785 Mamaronek Avenue White Plains, NY 10605 1-914-597-2500 web@burke.org www.burke.org Helen Hayes Hospital Center for Rehabilitation Technology Route 9W West Haverstraw, NY 10993 1-888-70-REHAB (73422) Fax 1-845-947-3097 TTD/TTY 1-845-947-3187 info@helenhayes.org www.helenhayeshospital.org Mount Sinai Sinal Cord Injury Model System (16) Mailing Address One Gustave L. Levy Place New York, NY 10029 Department of Rehabilitation Medicine Faculty Practice 1-212-241-6335 1-212-241-6321 1-212-241-3981 www.mssm.edu Sunnyview Rehabilitation Hospital 1270 Belmont Avenue Schenectady, NY 12308 1-518-382-4500 1-877-REHAB-SV (1-877-734-2278) www.sunnyview.org Ohio Ohio State University Medical Center 410 W. 10th Avenue Columbus, OH 43210 1-800-293-5123 www.medicalcenter.osu.edu contact form on website Pennsylvania Magee Rehabilitation Hospital 1513 Race Street Philadelphia, PA 19102 Admissions 1-215-587-3117 Fax 1-215-568-3736 e-mail hskoczen@mageerehab.org www.mageerehab.org MossRehab Hospital 60 East Township Line Road Elkins Park, PA 19027 1-215-663-6000 1-800-EINSTEIN www.einstein.edu MossRehab Hospital 1200 West Tabor Road Philadelphia, PA 19141 1-215-456-9000 1-800-EINSTEIN www.einstein.edu Shriners Hospital for Children, Philadelphia 3551 North Broad Street Philadelphia, PA 19140 1-215-430-4000 Fax 1-215-430-4079 www.shriners.com UPMC Health System 200 Lothrop Street Pittsburgh, PA 15213 1-412-647-UPMC (8762) 1-800-533-UPMC (8762) www.upmc.com University of Pennsyvlania Health System Hospital of the University of Pennsylvania 3400 Spruce Street Philadelphia, PA 19104 1-215-662-4000 www.pennhealth.com contact form on website Rhode Island Shake-A-Leg P.O. Box 1264 Newport, RI 02840 1-401-849-8898 1-888-SHAKEALEG Fax 1-401-848-9072 Texas The Institute for Rehabilitation and Research Inpatient Rehabilitation Services 1333 Moursund Houston, TX 77030 1-800-44REHAB tirr.referals@memorialhermann.org www.tirr.org Virginia VCU Rehabilitation and Research Center P.O. Box 980661 Richmond, VA 23298-0661 1-804-828-0861 Fax 1-804-828-5074 beagle@hsc.vcu.edu www.rrc.pmr.vcu.edu Washington NextStepsNW 4162 148th Avenue NE Redmond, WA 98052 1-425-869-9506 Fax 1-425-869-9482 www.nextstepnw.org NW Regional Spinal Cord Injury System (16) Mailing Address Northwest Regional Spinal Cord Injury System University of Washington Rehabilitation Medicine, Box 356490 Seattle, WA 98195 Fax 1-206-685-3244 www.u.washington.edu Wisconsin Better Days, Inc. Hillsboro, WI 54634 Stanley Nofsinger 1-608-489-2628 1-608-489-2141 1-608-489-3569 www.betterdayinc.com |
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04-22-2007, 08:39 AM
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#10 |
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Senior Member
Join Date: Sep 2006
Location: Baltimore MD
Posts: 167
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You haven't said (or I haven't seen) whether you are
willing/able to leave "Down Under", and travel to another country (the USA, or other) for treatment.
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Bob B SCI - Parent |
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