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Old 04-02-2007, 01:38 PM   #1
Eric.S
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Best experimental procedures available

in america sci therapies seem bogged down with political crap with everyone blaming someone else and then theres the constant concern with money, it all looks like political bullsh1t to me so I believe that ship has sailed as far as in my viable, enjoyable, and productive life time goes. No disrespect to any researchers in america cuz i kno they work hard but why is the focus so heavily on funding and other political stuff when if you focused on the research with what ever means you have available and you found a procedure that appeared promising all the funding would take care of itself. I mean there has to be a reason therapies aren't getting funded if there promising. The whole system seems unproductive, cumbersome, overly expensive, and wasteful... And please forgive me to those that work hard at it but I don't see the whole advocacy thing having that great of an effect espeically after the death of christopher reeves.

anyway, with that said what experimental procedures that are now available would any of you say are worth trying. I know none are cures and none have had any great advancements such as walking and such but what are some procedures that people have benefited in some way from? Atleast a list of procedures that aren't scams would be a good starting place for my research of these procedures. I'm basically just looking for a starting point.... after the procedure i will probably also enroll in one of those heavy rehab programs such as sci-step i think it was called. One of those places that really pushes you as far rehab goes...
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Old 04-02-2007, 02:05 PM   #2
antiquity
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if you focused on the research with what ever means you have available and you found a procedure that appeared promising all the funding would take care of itself.
Basic and animal research requires funding too. Without funding, how can animal studies take place?

It follows a linear path - initial ideas need funding, in vitro studies need funding, animal studies need funding, human trials need funding....adequate funding is needing at every juncture, every step of the process...from concept to application.

So the "finding a procedure that appears promising" can't take place either unless the funding is there.
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Old 04-02-2007, 02:31 PM   #3
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Originally Posted by antiquity
Basic and animal research requires funding too. Without funding, how can animal studies take place?

It follows a linear path - initial ideas need funding, in vitro studies need funding, animal studies need funding, human trials need funding....adequate funding is needing at every juncture, every step of the process...from concept to application.

So the "finding a procedure that appears promising" can't take place either unless the funding is there.
if its truly promising why would funding not be there? if its promising why would someone not take it over seas and apply it to people immediately at a price?

if a viable procedure was found oversea's i would personally promise to set up a company to finance other people with sci to travel and have the procedure done. maybe, even rehab could be included.

In my mind Im done with all the clinical trials and fda bullsh1t. From what I've seen in my years in this chair that stuff is going nowhere and by the time they even do began it'll be another atleast half a decade before there complete. I'll be 28 this year, that time line doesn't suit me and what i want out of life. They'll argue over funding and grants and regulations well into my 40's the way it seems. I rather interact with those that are attempting things now. I don't need garantee's or promises, just an honest attempt from someone honestly trying to help will do.. (not saying that others aren't tryin to help)....
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Old 04-03-2007, 12:05 AM   #4
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Eric, this is exactly where Total ReCord Inc. was (Jan-Eric W. Ahlfors, CEO) of Worcester M.A. He finally got 7 million in "European" funding and is taking his product to the UK for trials and start up...There just doesn't seem to be a whole lot of interest in SCI therapy since the majority of large pharmacuticals and investors don't see any big $$ in the cure or a really good therapy. Jan-Eric Ahlfors posted a couple of times this past year, but haven't heard how things are going in Europe since he finally got financial support for his RMx 2nd generation...We anxiously await his developments!!
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Old 04-03-2007, 12:15 AM   #5
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hmm, Sounds like my type of guy.. I do wonder whats going on. I dont see how theres no money in the hundreds of thousands of people that suffer spinal cord injuries every year.
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Old 04-03-2007, 12:56 AM   #6
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Me too Eric...surely there should be enough $$ to go around and make everyone involved quite wealthy even after all the expenses...but, from everything I read...they say no...doesn't seem logical, but I'm not good at math...ho hum......I do hope that Total Re-Cord turns out to be very promising...I'm keeping my fingers crossed for Mr. Ahlfors success !!!!!!!!!
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Old 04-03-2007, 06:03 PM   #7
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Nothing else? I've heard people talk about procedures on this site before. Is there anything anyone finds some what promising?
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Old 04-03-2007, 06:24 PM   #8
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When it comes to science and medicine, America is descending due to political and religious backward thinking.
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Old 04-03-2007, 08:29 PM   #9
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It seems to me that the money is in TREATING sci,not cureing it! you can only skin a sheep 1 time but you can sheer it for ever! Think about how much money corps. who supply us with things we have to have would stand to lose if there were ever a cure. (power chairs,weel chairs,ramps,shower chairs,all adaptive devices,ECT. I think that they don't really want to find a cure. It is more profitable to bleed us. this is just my 2 cents.
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Old 04-03-2007, 09:01 PM   #10
Eric.S
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Originally Posted by kickingber
It seems to me that the money is in TREATING sci,not cureing it! you can only skin a sheep 1 time but you can sheer it for ever! Think about how much money corps. who supply us with things we have to have would stand to lose if there were ever a cure. (power chairs,weel chairs,ramps,shower chairs,all adaptive devices,ECT. I think that they don't really want to find a cure. It is more profitable to bleed us. this is just my 2 cents.
I've heard that theory before. I doubt the providers of sci equipment have that much power..
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