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| Pain Experiences and treatments of pain |
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#11 |
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Senior Member
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I place the patch on side of my nipple, about a quarter-inch away from it. It's worked best for me there. It never falls off in that spot either. I've found the best relief from the Mylan brand as well, and I change mine every 48hrs, instead of every 72, which means I get 15 per month.
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#12 | |
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Moderator
Join Date: Jul 2001
Location: Wisconsin USA
Posts: 9,114
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What state do you live in where you cannot get at least hospitalization insurance if working; pay for the hysterectomy in cash-docs do give discounted prices for uninsured cash patients; and, if not working qualify for medicaid or medicare? It doesn't take many months of $600 to pay for a hysty especially if it can be done vaginally. If your endometriosis is this bad where your gyn is prescribing fentanyl he/she should be able to get you in for surgery even if uninsured.
As for fibro, have you discussed detoxing and then trying Lyrica? Detoxing is hell but once through it you have some of your life back. I assume that with the patches your IBS is constipation dominant? My PCP just recently spoke with his drug sales person and she was saying many both C and D dominant are reporting great relief from a multiple probiotics supplement called something like Allyn that is OTC at Walgreens and CVS. I'm IBS-D and controlled taking cholestryamine daily with a rare oxycodone 5mg when it flares. Been through migranes as a teen and into my early 20s. Hiding in a dark room, cool clothes and silence are now helped with some new topical meds. IOWs, fix what causes the most pain and then reshuffle the cards for the least pain relief needed. Drug seeking is a bad sign as you do acknowledge. Now act on it. This site is aimed primarily at those with spinal cord injuries. Placement of the patches, without doctor review, below the level of injury can cause a serious condition in these people resulting in stroke, coma or death. So if their feeling stops at the arms then that is why their doctors say place on arms. This also lets them know if the itching is an allergy to the adhesive. BTDT, sucked. If placed below where they have feeling at first their first allergic reaction may be not itching but skyrocketing blood pressure. Just so you know why pain meds on this site may be used in a different manner than you use. Quote:
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Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911. |
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#13 |
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Junior Member
Join Date: Dec 2008
Posts: 1
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to frustrated...have you talked to your dr about the SCS implant. i am almost to that point. ive only been using fentanyl for about 6 months now. i am only up to 37mg but my pain spec says that the implant would be a good choice for me. has anyone else heard about the SCS implant or has had one done
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#14 |
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Junior Member
Join Date: Nov 2008
Location: south philly
Posts: 10
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i put the patch on my lower back just above the waist line and just to the left lookin down on ur nipples about a quarter inch in from them on ur chest. i found that them 2 spots works best and they stay on..oh and they were the brand name duragesic..the mylan patch in my opinion sux.
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#15 |
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Junior Member
Join Date: Nov 2008
Location: south philly
Posts: 10
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what is the scs implant?
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#16 |
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Junior Member
Join Date: Oct 2008
Location: Pontypridd WALES
Posts: 4
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hi all ,
i have the exact same problem as you have all described ... day 3 , and no pain relief !! i have tried time and time again to ask GP, Reumo and Neurologist what i can do about this - even suggested what some of you have said - Doctor allowing you to change them every 2 days - but they just say '' no , that would give you an overdose'' I cant understand how one doctor can say 'yes , its alright to change every 48hrs' and mine say 'no' ?? im on Fentynal 75mgs/hr , have been for almost 4 years. does anyone know about 'slow release morphine tablets' im getting so fed up with this 3rd day - im willing to come off them and try something else mel xx |
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#17 |
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Senior Member
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We must have different patches than you, we only change once a week. Even cancer patients. I use a Duragesic patch, only a 5 mg but together with clonazepam it has taken all my pain. And the strongest one you can get is only 20 mg.
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TH 12, 43 years post |
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#18 |
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Junior Member
Join Date: Aug 2009
Posts: 1
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Newbe
Just started using the fentanyl patch (mylan I think) Any advise for me do's and don'ts how does it make you feel? I'm I going to fall asleep in my food bowl? All the little details............I felt like my doc was more worried that I was going to abuse it, so did tell me much......I had my back broke in 8 places i can walk but not with out a poop load of pain......please help ty all
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#19 |
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Junior Member
Join Date: Jan 2010
Posts: 1
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FYI- The Duragesic Brand Name and Sandoz Fentanyl are exactly the same.One gets labeled with Brand and the other Generic. I know this because I work in a pharmacy. There is not difference in them. The real difference is in the Mylan brand because it's not made the same. I've had problems with the Mylan brand in that it releases all the medication into my system at one time and then I suffer for several days. If the patch is not lasting the full 72hrs talk to your DR about switching it to every 2 days. Most are willing to do this. Plus it cuts down on the skin irritation caused by the patches themselves. Hope this helps.
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#20 |
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Junior Member
Join Date: Jul 2008
Location: Hawaii
Posts: 5
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As i am commenting in 2010, hopefully you have "solved" your issues. Yeah right! My wife c-1/2 incomplete does this routine. Monday 25mcg Sandoz, Tues 12.5 mcg mylan (yep, i cut the 25's)Wed 25mcg Sandoz, Thu 12.5 mylan, Fri I replace 25 sandoz with new sandoz. So at all times she has 2-25's and 2-12.5's. Insurance allows for 20 patches per month. She swears some patches are duds or releases unevenly. Could be the body is doing its own regulation or withdrawals. Placement is 25's go on upper arm area and half patches go on breasts. She is level 8 pain 24/7.
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