The hunt for 4-AP!

ChopperChick · 07-21-2006, 02:02 PM

College pharmacy gave me a list of doc's but only 2 were valid numbers and they were OB/GYN's...?? I am waiting for them to search for more numbers. Man this is frustrating!!

LaMemChose · 07-21-2006, 05:18 PM

Mike's physiatrist is the place to start.

ChopperChick · 07-21-2006, 05:44 PM

The physiatrist wouldn't do it, nor would the rehab doc, his neurologist or the primary....

LaMemChose · 07-21-2006, 05:47 PM

Quote:

Originally Posted by ChopperChick

The physiatrist wouldn't do it, nor would the rehab doc, his neurologist or the primary....

Why? My doc was all for it except my epilepsy precludes 4-AP.

SCI-Nurse · 07-21-2006, 06:12 PM

You may have to shop around for a private physiatrist or neurologist and private pay for a consultation to get a prescription. I suspect that Kaiser has a rule against prescribing non-formulary drugs or compounded drugs. I know that the VA has a rule like this.

(KLD)

LaMemChose · 07-21-2006, 06:17 PM

Don't you sometimes hate insurance KLD?

An rx for 4-AP shouldn't be cost prohibitive Chop. I was prepped to pay out of pocket had my insurance denied it, but couldn't get that far. Epilepsy hit the brakes hard on 4-AP for me.

SCI-Nurse · 07-21-2006, 06:24 PM

Fighting with insurance companies, and watching my patients & their families having to fight (often with no result) was the main reason I changed jobs to work for the VA instead of working in a private sector rehab (where we did a lot of contract Kaiser work in addition to a lot of other HMOs and PPOs).

I still sometimes have to say "no" because of an eligiblity or funding issue, but I know the rules up front, and I have to say "no" a LOT less often than I used to. I much prefer to tell my patients, "yes, we can do that for you"!!!

(KLD)

mr_coffee · 07-21-2006, 07:37 PM

I must have got luckly with my doc. She told me i know more than her about my body and sci, so she told me she'll follow whatever I want to do. It doesn't hurt to try she said. i'm going to keep this doc and she's a hottie. She is just a regular family doctor, not a physiatrist.

Have you tried just regular doc? rather than a neruo or physci? Somtimes if the doc has a special title he will think he knows it all and won't even let you try somthing new out there.

LaMemChose · 07-21-2006, 08:01 PM

Quote:

Originally Posted by SCI-Nurse

Fighting with insurance companies, and watching my patients & their families having to fight (often with no result) was the main reason I changed jobs to work for the VA instead of working in a private sector rehab (where we did a lot of contract Kaiser work in addition to a lot of other HMOs and PPOs).

I still sometimes have to say "no" because of an eligiblity or funding issue, but I know the rules up front, and I have to say "no" a LOT less often than I used to. I much prefer to tell my patients, "yes, we can do that for you"!!!

(KLD)

KLD, have a feeling from your posts you are a total patient advocate, always have been. Kudos to you.

ChopperChick · 07-21-2006, 08:14 PM

Yeah, it's a Kaiser issue I am sure of it. We are looking for someone outside the network and we are near the bay area so we should find someone eventually... I even gave those docs all kinds of info on 4-AP like Cory did and they just weren't having it.....

07-21-2006, 02:02 PM	#1
ChopperChick Senior Member Join Date: Apr 2006 Location: Northern California Posts: 815	The hunt for 4-AP! College pharmacy gave me a list of doc's but only 2 were valid numbers and they were OB/GYN's...?? I am waiting for them to search for more numbers. Man this is frustrating!!

07-21-2006, 07:37 PM	#8
mr_coffee Senior Member Join Date: Mar 2005 Location: San Francisco, CA Posts: 6,026	I must have got luckly with my doc. She told me i know more than her about my body and sci, so she told me she'll follow whatever I want to do. It doesn't hurt to try she said. i'm going to keep this doc and she's a hottie. She is just a regular family doctor, not a physiatrist. Have you tried just regular doc? rather than a neruo or physci? Somtimes if the doc has a special title he will think he knows it all and won't even let you try somthing new out there. __________________ Injured:10-16-04 C7/C8, T1 incomplete; For stalkers convenience: Blog: http://www.ordealsonwheels.com/ Facebook: http://www.facebook.com/#!/coryssanchez Progress: http://photobucket.com/albums/b290/swooty/ My drawings: http://kanvases.com/sites/corysanchez/home

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07-21-2006, 05:18 PM	#2
LaMemChose Senior Member Join Date: Oct 2005 Posts: 10,934	Mike's physiatrist is the place to start.

07-21-2006, 05:44 PM	#3
ChopperChick Senior Member Join Date: Apr 2006 Location: Northern California Posts: 815	The physiatrist wouldn't do it, nor would the rehab doc, his neurologist or the primary....

07-21-2006, 06:12 PM	#5
SCI-Nurse Moderator Join Date: Jul 2001 Location: USA Posts: 41,301	You may have to shop around for a private physiatrist or neurologist and private pay for a consultation to get a prescription. I suspect that Kaiser has a rule against prescribing non-formulary drugs or compounded drugs. I know that the VA has a rule like this. (KLD)

07-21-2006, 06:17 PM	#6
LaMemChose Senior Member Join Date: Oct 2005 Posts: 10,934	Don't you sometimes hate insurance KLD? An rx for 4-AP shouldn't be cost prohibitive Chop. I was prepped to pay out of pocket had my insurance denied it, but couldn't get that far. Epilepsy hit the brakes hard on 4-AP for me.

07-21-2006, 06:24 PM	#7
SCI-Nurse Moderator Join Date: Jul 2001 Location: USA Posts: 41,301	Fighting with insurance companies, and watching my patients & their families having to fight (often with no result) was the main reason I changed jobs to work for the VA instead of working in a private sector rehab (where we did a lot of contract Kaiser work in addition to a lot of other HMOs and PPOs). I still sometimes have to say "no" because of an eligiblity or funding issue, but I know the rules up front, and I have to say "no" a LOT less often than I used to. I much prefer to tell my patients, "yes, we can do that for you"!!! (KLD)

07-21-2006, 08:14 PM	#10
ChopperChick Senior Member Join Date: Apr 2006 Location: Northern California Posts: 815	Yeah, it's a Kaiser issue I am sure of it. We are looking for someone outside the network and we are near the bay area so we should find someone eventually... I even gave those docs all kinds of info on 4-AP like Cory did and they just weren't having it.....