Hope for complete's, chronics?

lilsister · 06-20-2006, 07:52 PM

I have a hard time keeping up, some of the snippets I am able to digest seem to say that it's the incompletes and acutes who will benefit. Of course that is good but IS there some hope for the complete's? I try not to be too greedy, even a level or two would help so much. The higher cervical injuries are so devastating and trying to keep fit is getting harder both financially and logistically. Hearing on the news about the mouse walking, being interviewed by the news media here about ESC research, sometimes I get so upset that it isn't already in place and ready for trials. My patience gets thin and more often I get so angry when I see the divisive snide comments, course it could be the emergent catheter change at 3 in the morning that is contributing to my anxiety.

Curt Leatherbee · 06-20-2006, 08:06 PM

Is I agree with everything you say. A Cure or at least partial recovery of function for Chronic SCI is long overdue.

dan_nc · 06-20-2006, 10:17 PM

give me back my bladder and bowel control.

paramoto · 06-21-2006, 03:16 PM

Quote:

Originally Posted by dan_nc

give me back my bladder and bowel control.

Same here.

antiquity · 06-21-2006, 04:07 PM

Hi Lilsister. Based on the info. posted on CC, looks like the only researchers with something near term (within the next 1-3 years) in line for chronics are Wise, Borgens and McDonald. Dr. Huang is also starting a schwann plus oeg trial for chronics.

Cherry · 06-21-2006, 04:10 PM

Don't forget Total-Record and Neuraxo!!!!

kittim · 06-21-2006, 04:14 PM

I just wish my husband had his hands back. We are slowly getting used to everything else, but the lack of dexterity in his hands is such a source of frustration. And he is 55. When I hear them say 3-5 years for human trials... I could just cry.

antiquity · 06-21-2006, 04:24 PM

Thanks Cherry. I always forget about Neuraxo.

I'm with you guys. BB, finger flexion and trunk control alone would significantly improve my QOL.

Them Bones · 06-21-2006, 04:31 PM

being able to feel sex would improve my QOL to the point where I wouldn't even worry about something like QOL.

Cherry · 06-21-2006, 04:33 PM

Im with the 'i want the whole deal cos' its possible and coming' posse

06-20-2006, 07:52 PM	#1
lilsister Senior Member Join Date: Jan 2003 Location: Madison,Wisconsin, USA Posts: 1,481	Hope for complete's, chronics? I have a hard time keeping up, some of the snippets I am able to digest seem to say that it's the incompletes and acutes who will benefit. Of course that is good but IS there some hope for the complete's? I try not to be too greedy, even a level or two would help so much. The higher cervical injuries are so devastating and trying to keep fit is getting harder both financially and logistically. Hearing on the news about the mouse walking, being interviewed by the news media here about ESC research, sometimes I get so upset that it isn't already in place and ready for trials. My patience gets thin and more often I get so angry when I see the divisive snide comments, course it could be the emergent catheter change at 3 in the morning that is contributing to my anxiety.

06-20-2006, 08:06 PM	#2
Curt Leatherbee Moderator Join Date: Jul 2001 Location: Florida Posts: 9,308	All I can say Is I agree with everything you say. A Cure or at least partial recovery of function for Chronic SCI is long overdue.

06-20-2006, 10:17 PM	#3
dan_nc Senior Member Join Date: Nov 2005 Posts: 4,691	give me back my bladder and bowel control. __________________ Daniel

Thread Tools
Show Printable Version Email this Page
Display Modes
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
Embryos offer greatest hope for cures	manouli	Cure	0	06-23-2005 04:06 PM
HOPE: Idealism breeds Reality	chick	Cure	3	05-12-2005 05:44 PM
Hope or hoax? Paralyzed man puts faith in shark treatment	Max	Cure	14	08-20-2002 07:02 PM
Finding fresh hope in ancient cures	antiquity	Life	0	06-05-2002 11:55 AM

06-21-2006, 04:07 PM	#5
antiquity Moderator Join Date: Jul 2001 Posts: 14,540	Hi Lilsister. Based on the info. posted on CC, looks like the only researchers with something near term (within the next 1-3 years) in line for chronics are Wise, Borgens and McDonald. Dr. Huang is also starting a schwann plus oeg trial for chronics.

06-21-2006, 04:10 PM	#6
Cherry Senior Member Join Date: Nov 2005 Posts: 1,899	Don't forget Total-Record and Neuraxo!!!!

06-21-2006, 04:14 PM	#7
kittim Senior Member Join Date: Nov 2005 Location: CA Posts: 255	I just wish my husband had his hands back. We are slowly getting used to everything else, but the lack of dexterity in his hands is such a source of frustration. And he is 55. When I hear them say 3-5 years for human trials... I could just cry.

06-21-2006, 04:24 PM	#8
antiquity Moderator Join Date: Jul 2001 Posts: 14,540	Thanks Cherry. I always forget about Neuraxo. I'm with you guys. BB, finger flexion and trunk control alone would significantly improve my QOL.

06-21-2006, 04:31 PM	#9
Them Bones Senior Member Join Date: Mar 2006 Location: Lawrence, MA Posts: 1,024	being able to feel sex would improve my QOL to the point where I wouldn't even worry about something like QOL.

06-21-2006, 04:33 PM	#10
Cherry Senior Member Join Date: Nov 2005 Posts: 1,899	Im with the 'i want the whole deal cos' its possible and coming' posse