Decrease in nerve pain

Phillis · 06-03-2002, 01:08 PM

I just wondered if anyone had experienced a decrease in their nerve pain over time? I don't mean through medication but rather just having the pain subside over time. I keep hoping my pain will get better but so far it hasn't! Any information would be appreciated. Thanks.

SCI-Nurse · 06-03-2002, 05:48 PM

Phillis, I hate to be the bearer of bad news, but this is unlikely. In fact, many studies show that one of the effects of aging with SCI for many people is an increase in neuropathic pain.

(KLD)

Joe B · 06-04-2002, 10:57 AM

I agree with KLD, central pain seems to get worse over the years. Idont know if it's that I have less energy to fight it or if it actually is worse but I am more conscious of it and it takes over more of my life.

I am hopeful that they will have a better treatment for it soon though. There is a lot of basic research being done on pain and it could result in a treatment for central pain.

In my case,the pain didn't increase for several years and then only gradually.

Best of luck

Joe B
C6-7
1988

alan · 06-04-2002, 08:00 PM

If you've seen any of my other posts, my pains only get worse with time.

AngelaandKC · 06-10-2002, 10:45 PM

Okay, I guess I am the exception to what people are posting, but I found that my nerve pain from a compression fracture at t-7 started with a bang, went off and running and then decreased after about four months. Just when I thought "Hmm, this is good." I got nerve pain at my injury level, t 10/11. It started gradually, increased and is now diminishing a little. I did start some suppliments before the first round of nerve pain, and I really think that they have had a hand at helping.

Phillis · 06-11-2002, 07:12 AM

What kind of supplements did you start taking? I'm glad to hear someone has had a decrease in the pain! I keep hoping!

AngelaandKC · 06-28-2002, 10:39 PM

I am taking something called "Lions Mane" (mushroom), flax oil and lecithin granules. I don't know which of the three is helping, and I am afraid to stop one or the others to find out. What ever works right? Best wishes and let me know if it works for you too.

Phillis · 06-29-2002, 10:19 AM

How much of each of the supplements do you take? I really appreciate your help as this nerve pain is driving me crazy! Do you take any prescription medicine for your pain or just the supplements? Thanks for your help!

Chris Chappell · 06-29-2002, 04:17 PM

Pain is weakness leaving the body.

I keep telling myself that day after day.

No meds / drugs for me.

Hope you feel better Phillis.

Onward and Upward!

GermanyC4 · 07-02-2002, 01:40 AM

My husband is C4 incomplete (23 Feb 02) and walking - fracture of C5/C6 with titanium plate screwed into C4-C7 on 24 Feb, and postoperative gallbladder perfortion with gangrene on 8 Mar. He is on a cocktail of Neurontin, Valoron-N and Musaril - and has constant, consistent pain bilaterally in his forearms and hands (syrinx ruled out this past week), accompanied by numbness and tingling in both arms and legs, and has a claw (improving with time/use) for his right hand.

Pain relief is very much individualized. His pain has not decreased in this short amount of time since injury, but does seem to subside with medication. More importantly, Steve was/is a very high caliber athlete and has always been able to live "mind over matter" ... he achieves the greatest amount of pain relief by not focusing on the pain, and continuing to push through it - replacing it with other more productive images and thoughts.

Four months after injury and these two surgeries later ... we just road biked 30 miles averaging 14.7 mph - and (as usual) he kicked my butt. I am so proud of him and amazed by him.

Best of luck to you, and I hope you find the right combination of internal and external strength ... Beth

06-03-2002, 01:08 PM	#1
Phillis Senior Member Join Date: Feb 2002 Location: Texas Posts: 203	Decrease in nerve pain I just wondered if anyone had experienced a decrease in their nerve pain over time? I don't mean through medication but rather just having the pain subside over time. I keep hoping my pain will get better but so far it hasn't! Any information would be appreciated. Thanks.

06-03-2002, 05:48 PM	#2
SCI-Nurse Moderator Join Date: Jul 2001 Location: USA Posts: 29,465	Bad news Phillis, I hate to be the bearer of bad news, but this is unlikely. In fact, many studies show that one of the effects of aging with SCI for many people is an increase in neuropathic pain. (KLD)

06-11-2002, 07:12 AM	#6
Phillis Senior Member Join Date: Feb 2002 Location: Texas Posts: 203	AngelaandKC What kind of supplements did you start taking? I'm glad to hear someone has had a decrease in the pain! I keep hoping!

06-28-2002, 10:39 PM	#7
AngelaandKC Senior Member Join Date: May 2002 Location: Maryland Posts: 242	Supplements I am taking something called "Lions Mane" (mushroom), flax oil and lecithin granules. I don't know which of the three is helping, and I am afraid to stop one or the others to find out. What ever works right? Best wishes and let me know if it works for you too.

06-29-2002, 10:19 AM	#8
Phillis Senior Member Join Date: Feb 2002 Location: Texas Posts: 203	AngelaandKC How much of each of the supplements do you take? I really appreciate your help as this nerve pain is driving me crazy! Do you take any prescription medicine for your pain or just the supplements? Thanks for your help!

06-04-2002, 10:57 AM	#3
Joe B Senior Member Join Date: Jul 2001 Location: 21704 Slidell, Boyds MD 20841 Posts: 163	I agree with KLD, central pain seems to get worse over the years. Idont know if it's that I have less energy to fight it or if it actually is worse but I am more conscious of it and it takes over more of my life. I am hopeful that they will have a better treatment for it soon though. There is a lot of basic research being done on pain and it could result in a treatment for central pain. In my case,the pain didn't increase for several years and then only gradually. Best of luck Joe B C6-7 1988

06-04-2002, 08:00 PM	#4
alan Senior Member Join Date: Jul 2001 Location: Baltimore, MD Posts: 5,223	If you've seen any of my other posts, my pains only get worse with time.

06-10-2002, 10:45 PM	#5
AngelaandKC Senior Member Join Date: May 2002 Location: Maryland Posts: 242	Okay, I guess I am the exception to what people are posting, but I found that my nerve pain from a compression fracture at t-7 started with a bang, went off and running and then decreased after about four months. Just when I thought "Hmm, this is good." I got nerve pain at my injury level, t 10/11. It started gradually, increased and is now diminishing a little. I did start some suppliments before the first round of nerve pain, and I really think that they have had a hand at helping.

06-29-2002, 04:17 PM	#9
Chris Chappell Senior Member Join Date: Jul 2001 Location: Denver, CO Posts: 6,608	Pain is weakness leaving the body. I keep telling myself that day after day. No meds / drugs for me. Hope you feel better Phillis. Onward and Upward!

07-02-2002, 01:40 AM	#10
GermanyC4 Member Join Date: Mar 2002 Location: Kaiserslautern, Germany Posts: 37	How to decrease pain My husband is C4 incomplete (23 Feb 02) and walking - fracture of C5/C6 with titanium plate screwed into C4-C7 on 24 Feb, and postoperative gallbladder perfortion with gangrene on 8 Mar. He is on a cocktail of Neurontin, Valoron-N and Musaril - and has constant, consistent pain bilaterally in his forearms and hands (syrinx ruled out this past week), accompanied by numbness and tingling in both arms and legs, and has a claw (improving with time/use) for his right hand. Pain relief is very much individualized. His pain has not decreased in this short amount of time since injury, but does seem to subside with medication. More importantly, Steve was/is a very high caliber athlete and has always been able to live "mind over matter" ... he achieves the greatest amount of pain relief by not focusing on the pain, and continuing to push through it - replacing it with other more productive images and thoughts. Four months after injury and these two surgeries later ... we just road biked 30 miles averaging 14.7 mph - and (as usual) he kicked my butt. I am so proud of him and amazed by him. Best of luck to you, and I hope you find the right combination of internal and external strength ... Beth Attached Images

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