Pain Board

[craig]

Thank you Dr. Young and anyone else responsible for starting this board.

The information here is so important to people in pain related to SCI. I truly believe it can help anyone in pain also.

PLUS, I just like to vent sometimes...lol. It is nice to do it in a place where ppl understand what I'm going through (I hope).

craig

[Joe B]

Craig

It is nice to have a place to vent where others understand because they have the same problem. I dont tell people at work because they would not be able to understand. I tell my wife but I dont want to do that to often, it would drive anyone away.

What's your best coping mechanism?

Joe B

[craig]

I have learned so many over the years Joe. I'm afraid at this time it is oral medication and not bitching too much to my wife as you said. I'm in the middle of a process that will hopefully identify why I'm in pain. I hope that comes to some conclusion soon. I am not holding my breath however.

Over the years I have tried deep breathing, meditation, so many things. One thing that worked well was staying busy. It is hard to suggest much not knowing how intence your pain level can get. Sometimes I just grip the nearest thing and hang on for a while. I wish I could give you an answer that will work for you.

I fear the main thing we have in common is pain, and coping is just plain hell. Wish I was more help.

Stay strong
craig

[Ken]

Craig

Did you find a solution to your pain?

[craig]

Originally posted by Ken:

Craig

Did you find a solution to your pain?

No Ken , and things don't look good. I may be forced to use a pump.

[alan]

What med will you be pumping? Baclofen, morphine, or something else?

[craig]

Originally posted by alan:

What med will you be pumping? Baclofen, morphine, or something else?

My neurologist called this morning with a new Idea.
The last time I talked to him was 9/12, the day after the attack on America. We had a brief discussion after I spent 9 hours in the hospital for a myelogram. It was 6:30 in the evening and we both had little to say. Then the hole in my spine from the myelogram did not close. After 2 blood patches over a 5 day period it finally closed. A month later I was back to normal (what ever that is).
Today he suggested I talk with a neuro-surgeon and conceder an operation on a disk that has been suspect.
I will meet with Dr.Green (surgeon) in Jan at the Univ. of Miami and see what he has to say.

It never seems to end sometimes. The medication I am on now is making me crazy.

[alan]

What the hell - I feel the need for a diatribe re modern medicine. What good is modern medicine for people with SCI? It can't cure us of our paralysis. It can't relieve our post-SCI pain (if we have it. Heck, in my case, it can't even explain why the pains keep intensifying over time, even though nothing changes in my neck.) It can't restore our scoliosises (scoliosisi?) to normal orientation, even with rods. Can it do anything for winged scapulae?

What modern medicine can do is keep us alive in these bodies for decades. That's certainly an advance, but it would be much better if it could do the first thing I mention above, and allow us to live for decades in working bodies.