Kudos to Bridget

TD · 11-10-2003, 02:51 PM

Here is a member who is taking an active role in getting proper care for fellow SCI sufferers. She underwent a mitrofanoff procedure at a VA SCI facility which turned out to be disastrous for her. Instead of grousing to herself she wrote about her experience and published it in The Desert Oracle, our local Paralyzed Veterans of America magazine, pointing out the pitfalls associated with having this procedure done without proper education, staffing, and followup care. Her story should be a lesson to all of us who are considering any procedure to make our lives a bit more comfortable and independent. Now if she would just share her story here (hint, hint...wink, wink

). I would download it but am sensitive to copyrights.

"And so it begins."

marmalady · 11-10-2003, 02:58 PM

TD - THanks for the heads up! Re copyright law, I believe that as long as you list your source, it's allright. Maybe someone who's more 'in the loop' can confirm or deny.

In any case, to Bridget - Good lookin' out!!! We need more people to vocalize on poor health care practices, whether it's SCI related or not.

_____________
Tough times don't last - tough people do.

tegdirb · 11-10-2003, 06:25 PM

Thanks TD and Marmalady! I appreciate it and will post it here...its funny you should mention it today because I was thinking earlier that no one read it! Thanks again!

Even if your body cannot move, you can still think and meditate ~Dalai Lama~

Liz321 · 11-12-2003, 12:06 PM

nice article

11-10-2003, 02:51 PM	#1
TD Senior Member Join Date: Aug 2001 Location: Phoenix, AZ, USA Posts: 649	Kudos to Bridget Here is a member who is taking an active role in getting proper care for fellow SCI sufferers. She underwent a mitrofanoff procedure at a VA SCI facility which turned out to be disastrous for her. Instead of grousing to herself she wrote about her experience and published it in The Desert Oracle, our local Paralyzed Veterans of America magazine, pointing out the pitfalls associated with having this procedure done without proper education, staffing, and followup care. Her story should be a lesson to all of us who are considering any procedure to make our lives a bit more comfortable and independent. Now if she would just share her story here (hint, hint...wink, wink ). I would download it but am sensitive to copyrights. "And so it begins."

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11-10-2003, 02:58 PM	#2
marmalady Senior Member Join Date: Aug 2001 Posts: 3,988	TD - THanks for the heads up! Re copyright law, I believe that as long as you list your source, it's allright. Maybe someone who's more 'in the loop' can confirm or deny. In any case, to Bridget - Good lookin' out!!! We need more people to vocalize on poor health care practices, whether it's SCI related or not. _____________ Tough times don't last - tough people do.

11-10-2003, 06:25 PM	#3
tegdirb Senior Member Join Date: Mar 2003 Posts: 1,123	Thanks TD and Marmalady! I appreciate it and will post it here...its funny you should mention it today because I was thinking earlier that no one read it! Thanks again! Even if your body cannot move, you can still think and meditate ~Dalai Lama~

11-12-2003, 12:06 PM	#4
Liz321 Senior Member Join Date: Jan 2003 Location: NY Posts: 5,582	nice article