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Old 06-27-2006, 01:53 PM   #1091
joesmom
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As I have mentioned under the Baku thread......I did notice from the report and from talking to the last four patients done in Baky by Dr. Elchin, they all seem to have regained some bladder sensation. For my son, that would be a dramatic improvement.
At any rate, we are set to begin the procedure in Baku on the 14th of August, 2006. Prior to that we will take about 2 weeks and do some traveling and sightseeing. Joey was born in Germany and I want to show him where he was born and grew up......we will also be visiting Amsterdam and Istanbul.
I suppose the bottom line is simply what your expectations are versus what the risks are. Every one has to make that personal decision.
Toni
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Old 06-30-2006, 09:56 AM   #1092
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Quote:
Originally Posted by Corinne Jeanmaire
4 patients > 9 months post procedure: 2 patients have actually lost significant functions further to the procedure. The lost functions have not been recuperated back, in spite of C4H’s statement that they would be temporary. The 2 remaining patients got no change at all.
Wow, that must be crushing .

I realise someone has to be first to try these therapies, but it's a shame more tests can't be done to avoid the loss of function, especially in someone who is so desperate to regain function.

Simon.
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Old 07-01-2006, 12:35 PM   #1093
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no good for naten manuel
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Old 07-01-2006, 12:47 PM   #1094
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Quote:
Originally Posted by Schmeky
Carmen,

Thank you very much for your response. As with Dr. Huang, Dr. Lima, Cells4Health, and Dr. Rameriz, these procedures have generated no significant results, just revenue.

Research is clearly demonstrating combination strategies will be necessary to accomplish a degree of recovery. The above therapies are presently single modality approaches.
I think it also shows that American researchers and research are needed here. More has to be done for them so they can solve this SCI quest for a cure. Academia and serious European research also needs to be stimulated.
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Old 07-14-2006, 04:37 PM   #1095
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Hello everybody, I have heard that Kleinbloesem is under investigation in nl and also that he is a dr. but not a md.
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Old 07-14-2006, 05:35 PM   #1096
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Timothy you are right, don't know what this means though but something is going on, I don't have access to the full article here;
Quote:

Full Text
Science Magazine (subscription) - 22 hours ago
... After Dutch neurologists complained, for instance, the Dutch Health Inspectorate began looking into PMC and a second company in the Netherlands, Cells4Health. ...
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Old 07-15-2006, 04:44 AM   #1097
Corinne Jeanmaire
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Quote:
Originally Posted by Leif
Timothy you are right, don't know what this means though but something is going on, I don't have access to the full article here;
For your info, I think that PMC refers to the Medical Center located in Rotterdam, where the Dr Drossel [?] carries out the ACT stem-cell procedure which we also discussed in another thread. Dutch neurologists have indeed complained about both those practices, as being irresponsible and dangerous.
The investigations about Cells4Health started already months ago, as far as I know but the results are not known yet.

About Mr Kleinbloesem's title, yes, there is a discussion there also, which was also shown in some TV programs here in NL. He has completed some high studies in pharmacology, that indeed gave him a Dr title, but he is not a Medical Doctor and the medical world therefore thinks that he should not be allowed to sign his letters as 'Dr Kleinbloesem' since potential customers might be misled think that he is a Medical Doctor, which he is not.
The other thing that the Dutch are looking at is whether patients are duly informed before going for the procedure, both concerning potential risks and results.
All is all, that is a pity because it gives an extremelly bad image of stem-cells procedures here in NL, which is the contrary of what we, patients, need.

Wait and see !
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Old 07-15-2006, 11:10 AM   #1098
antiquity
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Quote:
Originally Posted by Corinne Jeanmaire

About Mr Kleinbloesem's title, yes, there is a discussion there also, which was also shown in some TV programs here in NL. He has completed some high studies in pharmacology, that indeed gave him a Dr title, but he is not a Medical Doctor and the medical world therefore thinks that he should not be allowed to sign his letters as 'Dr Kleinbloesem' since potential customers might be misled think that he is a Medical Doctor, which he is not.
Yikes. Thanks Timothy and Corrine for the updates.
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Old 07-15-2006, 02:08 PM   #1099
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Thumbs down

I never really trusted "Dr" Kleinbloesem. I sent my MRI and he replied and said that I was a very good candidate for the treatment he offers. I asked him: "Is there a good chance that I can move at least one arm after the treatment? " He said: "You can hope more than your arms".
No,no... I always heard that my spinal cord is very atrophied and I will move my legs after his treatment? I don't believe it.

Cure is still far. Maybe not for researchers but for me, quad since 91 and tired to wait ...it's sad
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Old 07-22-2006, 12:33 PM   #1100
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Dear Wise Young,
I have spoken several times with Annie Meiniel doctor and science research director of CNRS of Clermont-Ferrand in France. It is she that discovered and made ready the neuropeptide for Neuronax and Cells4Health. I would like to know if it would interest you to ask her some questions about the neuropeptide. This woman is very open and nice and will respond to your questions. If you want to post your questions I will then get in touch with here. It would be very good to know more about this treatment and to have your opinion. Thank you. I should clarify for you that she works for CNRS and not for Neuronax. Neuronax purchased the rights to the neuropeptide to develop it for preclinical trials and went into agreement with Cells4Health for the clinical and commercial development of the neuropeptide.

Thank you

adolphe patrick guerdener

grand merci carbar vous s'ete super
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