Just wondering. Does anybody know how long it would be for a cure?

Dann21 · 04-13-2005, 04:43 AM

I'm not that up to date on research, although I should be. I was just wondering what everyone's opinions were on how long, or if ever for that matter when a cure may come?

It seems like every year the "Miami Project" comes out with a new pamphlet promising big and better things, but it seems to me when you get to the end of the pamphlet the last page is always the same "Please Donate." I believe it was not long ago that Nick Bioncitti (I think that's his name) was on Fox news saying that he firmly believes that there will be a human trial in the United States within one year.

Well sent his appearance, which was almost a year ago I don't think we are even close to having US trials in the United States. But that's just my opinion.

If anybody has any new information I would love to hear it.

Thanks

Dan

Tim C. · 04-13-2005, 05:50 AM

how long you willing to wait?

john smith · 04-13-2005, 05:55 AM

Hi Dann21;

Thanks for posting. The most important thing is to hold on to your hope. Secondly, I think if you do bring yourself up to date on the research that hope will be supported.

Much of the basic science on understanding the mechanics of the CNS has been done. Time frames for investigating theories and implementing trials in human subjects are driven by politics and funding.

There is significant work occuring at many institutions in the USA and overseas. The interest and motivation for restorative therapies exists at the scientific level but must be furthered at the political level.

That is why the recent Rally and advocacy efforts of the CRPF and The Miami Project are important. They are working together to spur on the research and to attain funding through political means.

Do not underestimate your ability to help this effort. The process is slow but is slowed further when we lose motivation. Which brings us back to the first and most important thing, HOPE.

John

"Hope is like a road in the country; there was never a road, but when many people walk on it, the road comes into existence." Lin Yutang

DA · 04-13-2005, 09:18 AM

the science is ready to attack paralysis, however the clincians aren't ready to lift their butts off the recliner.

Schmeky · 04-13-2005, 03:12 PM

Tim C. said:

Quote:

how long you willing to wait?

My question: How long you got?

Christopher Paddon · 04-14-2005, 11:47 PM

Dann21

Dr Huang's (China) Fetal OEC transplants are already producing positive results though the returns are modest at this time.

Wise Young has said that combination therapies will yield the best results but a lot of testing is required to find the best combinations.

If $400,000,000 is spent on clinical trials in the next 3 years and the Chinese Clinical Trial Network remains fully funded then there's hope.

When? is the question noone's prepared to answer.

Schmeky · 04-15-2005, 06:42 AM

Dann21,

Everything you read, w/o exception, is laced with disclaimers and caveats. Really effective application of therapies is still many years away. SCI research is still very much in the discovery phase. Researchers only hint at quality of life issues, i.e., sensation improvement, maybe bowel, bladder, and sexual function, which would be welcomed.

Substantial recovery (walking) and restoration to a significant degree of other lost bodily functions is a long way down the line. Think 15-20 years for availability, since the clinical trial process alone will take up half of this time table, if not more. It will happen, just not in the "near" future.

chasb · 04-15-2005, 03:20 PM

"...however the clincians aren't ready to lift their butts off the recliner." That's funny. Plus 1 for DA.(+1)

Schmeky · 04-15-2005, 05:01 PM

chasb,

DA's forgetting there ain't no money.

Christopher Paddon · 04-15-2005, 06:54 PM

Dr Huang may speed up the process merely by the fact that he effectively is in a clinical trial phase already. He could move quickly to try some combo therapies.

04-13-2005, 04:43 AM	#1
Dann21 Senior Member Join Date: May 2002 Posts: 185	Just wondering. Does anybody know how long it would be for a cure? I'm not that up to date on research, although I should be. I was just wondering what everyone's opinions were on how long, or if ever for that matter when a cure may come? It seems like every year the "Miami Project" comes out with a new pamphlet promising big and better things, but it seems to me when you get to the end of the pamphlet the last page is always the same "Please Donate." I believe it was not long ago that Nick Bioncitti (I think that's his name) was on Fox news saying that he firmly believes that there will be a human trial in the United States within one year. Well sent his appearance, which was almost a year ago I don't think we are even close to having US trials in the United States. But that's just my opinion. If anybody has any new information I would love to hear it. Thanks Dan

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04-13-2005, 05:50 AM	#2
Tim C. Senior Member Join Date: Oct 2002 Location: Long Island, New York Posts: 1,393	how long you willing to wait?

04-13-2005, 05:55 AM	#3
john smith Moderator Join Date: May 2003 Location: Hood River, OR USA Posts: 1,881	Hi Dann21; Thanks for posting. The most important thing is to hold on to your hope. Secondly, I think if you do bring yourself up to date on the research that hope will be supported. Much of the basic science on understanding the mechanics of the CNS has been done. Time frames for investigating theories and implementing trials in human subjects are driven by politics and funding. There is significant work occuring at many institutions in the USA and overseas. The interest and motivation for restorative therapies exists at the scientific level but must be furthered at the political level. That is why the recent Rally and advocacy efforts of the CRPF and The Miami Project are important. They are working together to spur on the research and to attain funding through political means. Do not underestimate your ability to help this effort. The process is slow but is slowed further when we lose motivation. Which brings us back to the first and most important thing, HOPE. John "Hope is like a road in the country; there was never a road, but when many people walk on it, the road comes into existence." Lin Yutang

04-13-2005, 09:18 AM	#4
DA Senior Member Join Date: Jul 2001 Location: beaumont tx usa Posts: 32,390	the science is ready to attack paralysis, however the clincians aren't ready to lift their butts off the recliner.

04-14-2005, 11:47 PM	#6
Christopher Paddon Senior Member Join Date: Oct 2001 Location: New Zealand Posts: 3,207	Dann21 Dr Huang's (China) Fetal OEC transplants are already producing positive results though the returns are modest at this time. Wise Young has said that combination therapies will yield the best results but a lot of testing is required to find the best combinations. If $400,000,000 is spent on clinical trials in the next 3 years and the Chinese Clinical Trial Network remains fully funded then there's hope. When? is the question noone's prepared to answer.

04-15-2005, 06:42 AM	#7
Schmeky Senior Member Join Date: Sep 2002 Location: West Monroe, LA, USA Posts: 3,398	Dann21, Everything you read, w/o exception, is laced with disclaimers and caveats. Really effective application of therapies is still many years away. SCI research is still very much in the discovery phase. Researchers only hint at quality of life issues, i.e., sensation improvement, maybe bowel, bladder, and sexual function, which would be welcomed. Substantial recovery (walking) and restoration to a significant degree of other lost bodily functions is a long way down the line. Think 15-20 years for availability, since the clinical trial process alone will take up half of this time table, if not more. It will happen, just not in the "near" future.

04-15-2005, 03:20 PM	#8
chasb Senior Member Join Date: Jul 2002 Posts: 1,283	"...however the clincians aren't ready to lift their butts off the recliner." That's funny. Plus 1 for DA.(+1)

04-15-2005, 05:01 PM	#9
Schmeky Senior Member Join Date: Sep 2002 Location: West Monroe, LA, USA Posts: 3,398	chasb, DA's forgetting there ain't no money.

04-15-2005, 06:54 PM	#10
Christopher Paddon Senior Member Join Date: Oct 2001 Location: New Zealand Posts: 3,207	Dr Huang may speed up the process merely by the fact that he effectively is in a clinical trial phase already. He could move quickly to try some combo therapies.