am very afraid, nurses please help - Page 4

cass · 06-08-2012, 12:05 AM

my bro died of esophageal cancer at age 35, neither a drinker or smoker, ditto my cousin (breast) and my best friend, kimberly (paralyzed, bladder cancer, age 40). these are just 3 that i have gone thru, thus my fear. i just want to know and this unknown pain is really unbearable on top of the central pain.

kate · 06-08-2012, 12:22 AM

Cass, can I help?

lynnifer · 06-08-2012, 12:47 AM

When I had the prolapse, it literally felt like I had a porcupine inside of my bladder that was constantly moving around.

Does that feeling resonate with you? It can't be cancer - it won't be. Make it a mantra.

cass · 06-08-2012, 12:55 AM

kate, are you familiar with overlake and bellevue uro?

lynnifer, just had pelvic exam by pcp, with just finger. couldn't she tell this? was yesterday. thank you both.

kate · 06-08-2012, 12:57 AM

Quote:

Originally Posted by cass

kate, are you familiar with overlake and bellevue uro?

lynnifer, just had pelvic exam by pcp, with just finger. couldn't she tell this? was yesterday. thank you both.

dunno about bellevue uro, but bruce did a fun tour in overlake icu last fall, so yeah.

LindaT · 06-08-2012, 01:00 AM

Cass-I hate that you have to wait until the 18th. Please try not to think the worst. Easier said than done.

cass · 06-08-2012, 01:53 AM

Quote:

Originally Posted by Stormycoon

Get well soon.. Since this is related and i was having bladder complications/uti ive had a SP for 8 years and just was thinking of this..Nurse are there any studys or history/stats of bladder cancer/ after long time of having indwelling cath/SP. My initial urologist that performed mine said it is possible after around 10 years... I dont see anything else forcoming of our bladders constantly being bombarded with bugs and un-natural dwellings inside them,..?

from craig rehab:

http://www.craighospital.org/Left-Na...Bladder-Cancer

cass · 06-08-2012, 01:56 AM

Quote:

Originally Posted by kate

dunno about bellevue uro, but bruce did a fun tour in overlake icu last fall, so yeah.

what did bruce think? i'm used to evergreen but uro and my pcp were out of town when all this started. not familiar w/overlake. you like?

jody · 06-08-2012, 02:50 AM

you know cass, lynnifer may have a point. Ive felt something slip lately, and pain and pressure in an odd way. It is more like really bad cramps in the back though. It isnt unbearable pain, but it does aggravate the central pain some.
My relatives did not have unbearable pain until the chemo. one friend with cancer learned on a pap smear, as well as my sisters having abnormal pap smears.

none of my family had unbearable pain before they started the chemo.
....... I did when my ovary twisted. I was scared It was cancer then too. the thing got as big as a volly ball and twisted over, and it still took months too for them to figure it out. this pain was very specific, and you could feel the mass. it felt like a stitch in the side but also like something inside was hooked over my ribs or my hip. that pain is the ten on my pain scale. It cause me to writhe and fold up like a lawn chair eventually, but until then it was nagging, and sometimes sharp.

I get a pelvic ultrasound and bladder/kidney ultrasound once a year, that test can actually see a lot, anything from misplaced parts, to fibroid tumors, to ovarian cysts.

anyway cass, Im trying to say I really get why you are afraid, you arn't being silly at all, but it can be many other things causing your pain, and probably is. it may or may not take a few tries to figure it out though. is it the pain that is unbearable or the pain making the fear unbearable? either way, girl you are in my silly little prayers, and Im sending you brave cosmic hugs while you figure this out.

Im sorry for what you are going through.

lynnifer · 06-08-2012, 03:10 AM

It could be anything pelvic causing distress. I never had so much pain as before/during/after surgery fo sho!

06-08-2012, 12:47 AM	#33
lynnifer Senior Member Join Date: Aug 2002 Location: Windsor ON Canada Posts: 15,313	When I had the prolapse, it literally felt like I had a porcupine inside of my bladder that was constantly moving around. Does that feeling resonate with you? It can't be cancer - it won't be. Make it a mantra. __________________ I think over again my small adventures, My fears, Those small ones that seemed so big, For all the vital things I had to get and to reach; And yet there is only one great thing, The only thing, To live to see the great day that dawns And the light that fills the world. Anonymous (Inuit, 19th century) T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

06-08-2012, 03:10 AM	#40
lynnifer Senior Member Join Date: Aug 2002 Location: Windsor ON Canada Posts: 15,313	It could be anything pelvic causing distress. I never had so much pain as before/during/after surgery fo sho! __________________ I think over again my small adventures, My fears, Those small ones that seemed so big, For all the vital things I had to get and to reach; And yet there is only one great thing, The only thing, To live to see the great day that dawns And the light that fills the world. Anonymous (Inuit, 19th century) T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

Thread Tools
Show Printable Version Email this Page
Display Modes
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
To the SCI-Nurses: Happy Nurses Week!	thehipcrip	Life	25	05-11-2010 08:34 PM
August, Saturday, 2pm: be afraid, be very afraid	Max	Life	0	07-30-2004 08:45 AM
Are you afraid...	Raven	Life	23	07-30-2003 11:44 PM

06-08-2012, 12:05 AM	#31
cass Senior Member Join Date: Jul 2001 Location: WA Posts: 5,710	my bro died of esophageal cancer at age 35, neither a drinker or smoker, ditto my cousin (breast) and my best friend, kimberly (paralyzed, bladder cancer, age 40). these are just 3 that i have gone thru, thus my fear. i just want to know and this unknown pain is really unbearable on top of the central pain.

06-08-2012, 12:22 AM	#32
kate Moderator Join Date: Jan 2002 Location: bellevue, wa, usa Posts: 10,901	Cass, can I help?

06-08-2012, 12:55 AM	#34
cass Senior Member Join Date: Jul 2001 Location: WA Posts: 5,710	kate, are you familiar with overlake and bellevue uro? lynnifer, just had pelvic exam by pcp, with just finger. couldn't she tell this? was yesterday. thank you both.

06-08-2012, 01:00 AM	#36
LindaT Senior Member Join Date: Jan 2010 Location: MN Posts: 7,752	Cass-I hate that you have to wait until the 18th. Please try not to think the worst. Easier said than done.

06-08-2012, 02:50 AM	#39
jody Moderator Join Date: Jan 2004 Location: east o the southern warren Posts: 7,808	you know cass, lynnifer may have a point. Ive felt something slip lately, and pain and pressure in an odd way. It is more like really bad cramps in the back though. It isnt unbearable pain, but it does aggravate the central pain some. My relatives did not have unbearable pain until the chemo. one friend with cancer learned on a pap smear, as well as my sisters having abnormal pap smears. none of my family had unbearable pain before they started the chemo. ....... I did when my ovary twisted. I was scared It was cancer then too. the thing got as big as a volly ball and twisted over, and it still took months too for them to figure it out. this pain was very specific, and you could feel the mass. it felt like a stitch in the side but also like something inside was hooked over my ribs or my hip. that pain is the ten on my pain scale. It cause me to writhe and fold up like a lawn chair eventually, but until then it was nagging, and sometimes sharp. I get a pelvic ultrasound and bladder/kidney ultrasound once a year, that test can actually see a lot, anything from misplaced parts, to fibroid tumors, to ovarian cysts. anyway cass, Im trying to say I really get why you are afraid, you arn't being silly at all, but it can be many other things causing your pain, and probably is. it may or may not take a few tries to figure it out though. is it the pain that is unbearable or the pain making the fear unbearable? either way, girl you are in my silly little prayers, and Im sending you brave cosmic hugs while you figure this out. Im sorry for what you are going through.