SCI myths for Book to Promote Cure - Page 9

starlightangel · 07-30-2003, 05:47 PM

The "life stories", as you put it, will reflect a cross section of any population. Many people will go on to live full and happy post-SCI lives. The rest of us will be left dealing with the complete and utter hash we've made of our lives.

rbyrd49100 · 07-31-2003, 08:29 PM

Debbie....I think it will be a great book..
make us proud!

Russ Byrd

angel7 · 08-01-2003, 03:05 PM

Thanks for the show of confidence, Russ. Thanks also to everyone who have supported this idea.

Deb

angel7 · 08-02-2003, 11:36 AM

I've decided to include this whole thread in the book. The preface to this thread will read as follows (rough draft):

"When I was about 80% complete on this book I decided to add a section entitled, "SCI myths." I was so amazed by some of the responses that I decided to include the thread in its entirety. I'll let the reader come to their own conclusions regarding the tone and intent of the various responses. The differences of opinions or mind sets of those who have come to terms with their injury and those that haven't exist in just about every topic on the Care/Cure website. Some have labeled the differences the "care" group versus the "cure" group. Some believe the differences exist between those newly injured and those that had been injured a long time although this criterion was not present in all responders. Some felt it was the difference between those that were paralyzed from the waist down (paraplegic - more independent) and those that had more severe injuries (quadriplegic - loss of legs, hands, arms, etc. less independent)."

If anyone does not want his or her responses to be included, please let me know.

Deb

Chris Chappell · 08-04-2003, 10:38 AM

Based upon your last post Debbie I don't feel that you were accurate in describing, at least, my sentiments.

Therefore, please don't include my posts.

Thanks. And again, good luck.

larwatson · 08-04-2003, 01:10 PM

Quote:

Originally posted by Debbie7:

I've decided to include this whole thread in the book. The preface to this thread will read as follows (rough draft):

"Some have labeled the differences the "care" group versus the "cure" group. Some believe the differences exist between those newly injured and those that had been injured a long time although this criterion was not present in all responders. Some felt it was the difference between those that were paralyzed from the waist down (paraplegic - more independent) and those that had more severe injuries (quadriplegic - loss of legs, hands, arms, etc. less independent)."

Debbie you are more than welcome to use my comments on this thread.

I would argue that the differences expressed on this thread are more reflective of philisophical differences on how people with SCI prefer to be characterized. Chris and I are certainly cure advcocates so we don't fit into that category. I'm 20 years post injury, I believe Chris is 3 years post injury. So the difference in time from injury doesn't necessarily explain our different philosophy from others. We're both c5-6 quads so that doesn't fit with yourself and other quads who don't track our thoughts. We are both males, about the same age, with athletic backgrounds, and who have ongoing professional careers and are married. But my guess is that others who disagree with us fit that category as well.

I would suggest that people with SCI "come to terms" with their injuries in different ways. I have developed a personal philosophy that basically is this:
I have an SCI. I didn't ask for it and I didn't want. I still don't want it. I don't know why it happened. I used to blame God. Why would he allow this to happen? What did I do that was so bad? But then I came to realize if not me then who? What makes me so priviliged that nothing bad should happen to me? Why did this happen? Who knows. But why do I care at the end of the day? That answer isn't going to get me out of this chair.

I figure I'm on a need to know basis with God and right now it appears I don't need to know. I figure I have eternity to resolve what happens during this tiny speck of time I experience on this earth. In the meantime SCI is what it is. I can sit and drive myself crazy trying to sort it all like a zen master or I can move on with my life, engage people, and suck as much joy out of this brief time as I can.

I will expand my knowledge, I will be an addition to society not a subtraction (meaning that I will find a way to contribute in one form or other to make someone else's life a little better), I will fight every day of my life to overcome the physical burden that has been placed on me, I will not accept excuses from myself for failure, and I will not fear to fail.

I will live life to the fullest and SCI will not stop me from doing that. No hero or rah rah stuff; just live life.

Lindox · 08-04-2003, 01:25 PM

Debbie you are more than welcome to use my comments on this thread.

I would argue that the differences expressed on this thread are more reflective of philisophical differences on how people with SCI prefer to be characterized. Chris and I are certainly cure advcocates so we don't fit into that category. I'm 20 years post injury, I believe Chris is 3 years post injury. So the difference in time from injury doesn't necessarily explain our different philosophy from others. We're both c5-6 quads so that doesn't fit with yourself and other quads who don't track our thoughts. We are both males, about the same age, with athletic backgrounds, and who have ongoing professional careers and are married. But my guess is that others who disagree with us fit that category as well.

I would suggest that people with SCI "come to terms" with their injuries in different ways. I have developed a personal philosophy that basically is this:
I have an SCI. I didn't ask for it and I didn't want. I still don't want it. I don't know why it happened. I used to blame God. Why would he allow this to happen? What did I do that was so bad? But then I came to realize if not me then who? What makes me so priviliged that nothing bad should happen to me? Why did this happen? Who knows. But why do I care at the end of the day? That answer isn't going to get me out of this chair.

I figure I'm on a need to know basis with God and right now it appears I don't need to know. I figure I have eternity to resolve what happens during this tiny speck of time I experience on this earth. In the meantime SCI is what it is. I can sit and drive myself crazy trying to sort it all like a zen master or I can move on with my life, engage people, and suck as much joy out of this brief time as I can.

I will expand my knowledge, I will be an addition to society not a subtraction (meaning that I will find a way to contribute in one form or other to make someone else's life a little better), I will fight every day of my life to overcome the physical burden that has been placed on me, I will not accept excuses from myself for failure, and I will not fear to fail.

I will live life to the fullest and SCI will not stop me from doing that. No hero or rah rah stuff; just live life.[/QUOTE]

This is some excellent stuff indeed.

alan · 08-04-2003, 05:18 PM

Anything I say on this site is for public consumption, or I wouldn't post it.

Christopher Paddon · 08-04-2003, 11:24 PM

How do we buy a copy of the book?

Red_1 Canada · 08-05-2003, 12:59 AM

youd better not use my stuff...not all of it.

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07-30-2003, 05:47 PM	#81
starlightangel Senior Member Join Date: Feb 2002 Posts: 1,211	The "life stories", as you put it, will reflect a cross section of any population. Many people will go on to live full and happy post-SCI lives. The rest of us will be left dealing with the complete and utter hash we've made of our lives.

07-31-2003, 08:29 PM	#82
rbyrd49100 Senior Member Join Date: Oct 2001 Posts: 515	Debbie....I think it will be a great book.. make us proud! Russ Byrd

08-01-2003, 03:05 PM	#83
angel7 Senior Member Join Date: Oct 2001 Location: Alvin,Texas Posts: 1,961	Thanks for the show of confidence, Russ. Thanks also to everyone who have supported this idea. Deb

08-02-2003, 11:36 AM	#84
angel7 Senior Member Join Date: Oct 2001 Location: Alvin,Texas Posts: 1,961	I've decided to include this whole thread in the book. The preface to this thread will read as follows (rough draft): "When I was about 80% complete on this book I decided to add a section entitled, "SCI myths." I was so amazed by some of the responses that I decided to include the thread in its entirety. I'll let the reader come to their own conclusions regarding the tone and intent of the various responses. The differences of opinions or mind sets of those who have come to terms with their injury and those that haven't exist in just about every topic on the Care/Cure website. Some have labeled the differences the "care" group versus the "cure" group. Some believe the differences exist between those newly injured and those that had been injured a long time although this criterion was not present in all responders. Some felt it was the difference between those that were paralyzed from the waist down (paraplegic - more independent) and those that had more severe injuries (quadriplegic - loss of legs, hands, arms, etc. less independent)." If anyone does not want his or her responses to be included, please let me know. Deb

08-04-2003, 10:38 AM	#85
Chris Chappell Senior Member Join Date: Jul 2001 Location: Denver, CO Posts: 7,035	Based upon your last post Debbie I don't feel that you were accurate in describing, at least, my sentiments. Therefore, please don't include my posts. Thanks. And again, good luck.

08-04-2003, 01:25 PM	#87
Lindox Senior Member Join Date: Mar 2003 Location: USA Posts: 9,025	Debbie you are more than welcome to use my comments on this thread. I would argue that the differences expressed on this thread are more reflective of philisophical differences on how people with SCI prefer to be characterized. Chris and I are certainly cure advcocates so we don't fit into that category. I'm 20 years post injury, I believe Chris is 3 years post injury. So the difference in time from injury doesn't necessarily explain our different philosophy from others. We're both c5-6 quads so that doesn't fit with yourself and other quads who don't track our thoughts. We are both males, about the same age, with athletic backgrounds, and who have ongoing professional careers and are married. But my guess is that others who disagree with us fit that category as well. I would suggest that people with SCI "come to terms" with their injuries in different ways. I have developed a personal philosophy that basically is this: I have an SCI. I didn't ask for it and I didn't want. I still don't want it. I don't know why it happened. I used to blame God. Why would he allow this to happen? What did I do that was so bad? But then I came to realize if not me then who? What makes me so priviliged that nothing bad should happen to me? Why did this happen? Who knows. But why do I care at the end of the day? That answer isn't going to get me out of this chair. I figure I'm on a need to know basis with God and right now it appears I don't need to know. I figure I have eternity to resolve what happens during this tiny speck of time I experience on this earth. In the meantime SCI is what it is. I can sit and drive myself crazy trying to sort it all like a zen master or I can move on with my life, engage people, and suck as much joy out of this brief time as I can. I will expand my knowledge, I will be an addition to society not a subtraction (meaning that I will find a way to contribute in one form or other to make someone else's life a little better), I will fight every day of my life to overcome the physical burden that has been placed on me, I will not accept excuses from myself for failure, and I will not fear to fail. I will live life to the fullest and SCI will not stop me from doing that. No hero or rah rah stuff; just live life.[/QUOTE] This is some excellent stuff indeed.

08-04-2003, 05:18 PM	#88
alan Senior Member Join Date: Jul 2001 Location: Baltimore, MD Posts: 6,169	Anything I say on this site is for public consumption, or I wouldn't post it.

08-04-2003, 11:24 PM	#89
Christopher Paddon Senior Member Join Date: Oct 2001 Location: New Zealand Posts: 3,207	How do we buy a copy of the book?

08-05-2003, 12:59 AM	#90
Red_1 Canada Senior Member Join Date: Jul 2002 Location: Kelowna B.C. Canada Posts: 187	youd better not use my stuff...not all of it.