Apparently living with SCI is not enough torture - Page 3

crypticgimp · 02-08-2012, 07:23 AM

lol at robbie!!! go get em, kid!!!! sometimes, all you need to do is dance to get the steam off! i am so glad he had fun!

Bonnette · 02-08-2012, 09:02 AM

That's wonderful!

LindaT · 02-08-2012, 10:51 AM

Good for Robbie! I'm glad he didn't let the pants incident ruin the night and he had a fun time. Loved the part aobut the girls in the short dresses.
Thoughts coming your way for the appointments ahead.

graybeard · 02-08-2012, 12:25 PM

Robbie got game, thats for sure...cute honies cures a lot of ills.

wishing for the best on the appt. today.

Domosoyo · 02-08-2012, 08:38 PM

Sweet story about the party! Sneaky therapy...dance=tired arms!

In your corner for the upcoming appointment.....

lynnifer · 02-08-2012, 09:03 PM

LOL @ Robbie. Attention span of a teenager .. mad one minute (albeit for different reasons) and then excited the next, lol!

Hope the appointment today went well.

SharonD · 02-09-2012, 06:50 AM

So we saw Robs neurosurgeon at VCU and viewed his scans, his brain is drooping, he is losing CSF, could be a vascular lesion causing the leak. He also has a very large syrinx at his injury site which runs all the way down from T4 to T11/12. I need to learn quickly about this syrinx. Neuro dr not sure if that syrinx could cause the lack of fluid in the head.

Boston Childrens neuro/vascular team has not reviewed scans yet.

Bonnette · 02-09-2012, 09:16 AM

Oh, I'm sorry about this - I so hope that the medical team will be able to zero in on where the main problem lies and address it without complication.

Domosoyo · 02-09-2012, 09:34 AM

Echoing what Bonnette said. Hang tough mama.

jody · 02-09-2012, 10:18 AM

wow what a post.

My heart aches for you and your son. you and he seem to be ordinary, and amazing people gifted with other.

like we said on your first post, sorry you had to find care cure, glad you did.

we know more than we did when first looking in to care cure don't we?

It was nice to know how the sweet 16 party went. Im glad he had a good time.
please keep us posted on how things are going, and hang in there the best you can. you will have prayers and good wishes following you both around.

02-08-2012, 07:23 AM	#21
crypticgimp Senior Member Join Date: Apr 2010 Location: Rochester, NY Posts: 3,539	lol at robbie!!! go get em, kid!!!! sometimes, all you need to do is dance to get the steam off! i am so glad he had fun! __________________ "Smells like death in a bucket of chicken!" http://www.elportavoz.com/

02-08-2012, 09:03 PM	#26
lynnifer Senior Member Join Date: Aug 2002 Location: Windsor ON Canada Posts: 15,323	LOL @ Robbie. Attention span of a teenager .. mad one minute (albeit for different reasons) and then excited the next, lol! Hope the appointment today went well. __________________ I think over again my small adventures, My fears, Those small ones that seemed so big, For all the vital things I had to get and to reach; And yet there is only one great thing, The only thing, To live to see the great day that dawns And the light that fills the world. Anonymous (Inuit, 19th century) T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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02-08-2012, 09:02 AM	#22
Bonnette Senior Member Join Date: Dec 2008 Location: Colorado Posts: 2,607	That's wonderful!

02-08-2012, 10:51 AM	#23
LindaT Senior Member Join Date: Jan 2010 Location: MN Posts: 7,756	Good for Robbie! I'm glad he didn't let the pants incident ruin the night and he had a fun time. Loved the part aobut the girls in the short dresses. Thoughts coming your way for the appointments ahead.

02-08-2012, 12:25 PM	#24
graybeard Senior Member Join Date: Apr 2005 Location: Va Posts: 1,634	Robbie got game, thats for sure...cute honies cures a lot of ills. wishing for the best on the appt. today.

02-08-2012, 08:38 PM	#25
Domosoyo Senior Member Join Date: Sep 2009 Location: Minneapolis/St. Paul, MN Posts: 537	Sweet story about the party! Sneaky therapy...dance=tired arms! In your corner for the upcoming appointment.....

02-09-2012, 06:50 AM	#27
SharonD Senior Member Join Date: Dec 2009 Location: Richmond VA Posts: 751	So we saw Robs neurosurgeon at VCU and viewed his scans, his brain is drooping, he is losing CSF, could be a vascular lesion causing the leak. He also has a very large syrinx at his injury site which runs all the way down from T4 to T11/12. I need to learn quickly about this syrinx. Neuro dr not sure if that syrinx could cause the lack of fluid in the head. Boston Childrens neuro/vascular team has not reviewed scans yet.

02-09-2012, 09:16 AM	#28
Bonnette Senior Member Join Date: Dec 2008 Location: Colorado Posts: 2,607	Oh, I'm sorry about this - I so hope that the medical team will be able to zero in on where the main problem lies and address it without complication.

02-09-2012, 09:34 AM	#29
Domosoyo Senior Member Join Date: Sep 2009 Location: Minneapolis/St. Paul, MN Posts: 537	Echoing what Bonnette said. Hang tough mama.

02-09-2012, 10:18 AM	#30
jody Moderator Join Date: Jan 2004 Location: east o the southern warren Posts: 7,809	wow what a post. My heart aches for you and your son. you and he seem to be ordinary, and amazing people gifted with other. like we said on your first post, sorry you had to find care cure, glad you did. we know more than we did when first looking in to care cure don't we? It was nice to know how the sweet 16 party went. Im glad he had a good time. please keep us posted on how things are going, and hang in there the best you can. you will have prayers and good wishes following you both around.