low dose naltrexone? - Page 3

Bonnette · 11-03-2011, 01:25 AM

Welcome, minnie60! How wonderful that LDN stopped your progression! What dose do you take?

MSWIFE1 · 11-03-2011, 06:55 AM

Why 4AP and not Ampyra Minnie? Just wondering and yes welcome to carecure.

minnie60 · 11-03-2011, 12:31 PM

Hello to both of you and thank you for the welcome.

LDN dose is 3 mg, I do have allot of spasticity. Regarding 4AP there are a couple reasons. I have read several posts all over and for those who went off the compounded to the new, have found it less effective and many are going back. 2nd, cost is much more reasonable compounded.

3rd, I am super sensitive to meds, from what I have read the quick release would be a better fit for me. Dosing is better controlled when using quick release.

I am a person who can't handle 5 mg of baclofen. It knocks me out and legs feel too weighted, zanaflex doesn't work either. When I can't handle my spasticity I take 1 mg of valium and find I rarely use it because of sleepiness. But out of all the meds I have tried it is what I tolerate the best. I am hopeful 4AP will offer some relief for spasticity as well as the other positive effects. as some patients have reported it has reduced theirs.

I think it was when I was on Skip's forum I saw listed under approved pain killers for LDN is DL-Phenylalanine DLPA, which it posts also enhances the effectiveness of LDN. It states it should be taken twice daily on an empty stomach in doses of 500 mg. I just ordered it yesterday. Am hopeful once I can try it it will reduce some of my pain. Pre LDN the only pain killer I could tolerate was tylonol 3 and is what I used after my carpel tunnel surgery. My body responds extremely well to very small amounts of help. But as you know with LDN any narcotics are out of the equasion.

Have a great day.

Bonnette · 11-03-2011, 06:05 PM

Minnie, thank you for this great information - it is all very, very helpful!

Random · 11-03-2011, 07:15 PM

I've been taking 3 MG daily for a few years maybe, and have not noticed anything from it, either positive or negative. But I did not know there was any prohibition against narcotics with it. I'm sure I must have had some narcotics when I got injured again in 2009. But maybe I didn't have my other pills with me at the hospital.

What are some common narcotics?

minnie60 · 11-03-2011, 08:45 PM

Hi Random,
Will see if this will copy & paste. Lists ok and not ok drugs for LDN and LDN websites I go into them for allot of information. Didn't reference before because I hadn't researched the site well enough to see if they were already in here.

Another informational site is Patientslikeme, it is a forum for MS, ALS etc.

LINKS

The official LDN website:

http://www.ldninfo.org
Diseases helped by LDN:

http://tinyurl.com/ldn-responsive
Drugs to avoid when taking LDN:
http://tinyurl.com/drugs-to-avoid-on-ldn
Side effects and dosing of LDN:
http://tinyurl.com/ldn-side-effects
How to obtain LDN:
http://tinyurl.com/how-to-obtain-ldn
LDN-related research:
http://tinyurl.com/ldn-trials
Dawn's Hashimoto's blog:

http://tinyurl.com/4wszdl
An LDN chat group for MS:
http://groups.yahoo.com/group/spotlight_ldn
The 1st U.S. LDN Conference:
http://tinyurl.com/28e6be
The 2nd U.S. LDN Conference:
http://tinyurl.com/second-ldn-conf
The 1st European LDN Conference:
http://tinyurl.com/euro-ldn-conf-1
Dr. Lawrence's advice on LDN and MS:
http://tinyurl.com/2ejrdj
LDN for FMS:
http://tinyurl.com/ldn-for-fms
A charity for LDN research:
http://www.ldnresearchtrust.org
LDN for Alzheimer's:
http://tinyurl.com/ldn-for-alzheimers
LDN for autism:
http://tinyurl.com/ldn-for-autism
LDN for cancer:

http://tinyurl.com/ldn-for-cancer
Bill's LDN and MS site:
http://tinyurl.com/2b3zvt

LDN for Crohn's:
http://tinyurl.com/ldn-for-crohns
Dr. Berkson on ALA and LDN:
http://tinyurl.com/berkson-on-ala-and-ldn
LDN for HIV/AIDS:
http://tinyurl.com/ldn-for-hiv-aids
Mary's LDN Radio Show:

http://tinyurl.com/nnd2nq
LDN for lupus:

http://tinyurl.com/ldn-4-lupus
LDN for rheumatoid arthritis:
http://http://tinyurl.com/ldn-for-ra
LDNNow:

http://ldnnow.co.uk
LDN for PD:
http://tinyurl.com/ldn-for-parkinsons
LDNAware:

http://www.ldnaware.org
An LDN-related article:
http://tinyurl.com/nb4zee
LDN-related video clips:

http://tinyurl.com/mercola-on-ldn
http://tinyurl.com/lwcar5
http://tinyurl.com/9ean44
http://tinyurl.com/4gwl6l
LDN-related books:
http://tinyurl.com/bk9m8c
http://tinyurl.com/oz9wdg
http://tinyurl.com/mk9c58
http://tinyurl.com/ynkm4n
http://tinyurl.com/34fxet
http://tinyurl.com/43l6x2
http://tinyurl.com/46ut4v http://tinyurl.com/6ouxyy

minnie60 · 11-03-2011, 08:58 PM

OOPS, ONE MORE SITE: This is a person with health issues and it is her site I first learned about allot of things and further researched, internet is great once you have the terminology to look upsite

Just google
Crystal's MS,TM & LDN Website

Random · 11-04-2011, 12:29 AM

Wow minnie, thanks!

minnie60 · 11-04-2011, 04:30 PM

Your welcome and if anyone has others please share.

scottc74 · 04-20-2012, 08:03 PM

The first thing you should know about LDN is that it is not a miracle cure. That being said you will likely see any symptoms 6months old or newer will not hang around. I do not plan (unless there is an MS cure) I do not plan to stop using LDN.

11-03-2011, 12:31 PM	#23
minnie60 Member Join Date: Nov 2011 Location: Minnesota Posts: 31	Responses Hello to both of you and thank you for the welcome. LDN dose is 3 mg, I do have allot of spasticity. Regarding 4AP there are a couple reasons. I have read several posts all over and for those who went off the compounded to the new, have found it less effective and many are going back. 2nd, cost is much more reasonable compounded. 3rd, I am super sensitive to meds, from what I have read the quick release would be a better fit for me. Dosing is better controlled when using quick release. I am a person who can't handle 5 mg of baclofen. It knocks me out and legs feel too weighted, zanaflex doesn't work either. When I can't handle my spasticity I take 1 mg of valium and find I rarely use it because of sleepiness. But out of all the meds I have tried it is what I tolerate the best. I am hopeful 4AP will offer some relief for spasticity as well as the other positive effects. as some patients have reported it has reduced theirs. I think it was when I was on Skip's forum I saw listed under approved pain killers for LDN is DL-Phenylalanine DLPA, which it posts also enhances the effectiveness of LDN. It states it should be taken twice daily on an empty stomach in doses of 500 mg. I just ordered it yesterday. Am hopeful once I can try it it will reduce some of my pain. Pre LDN the only pain killer I could tolerate was tylonol 3 and is what I used after my carpel tunnel surgery. My body responds extremely well to very small amounts of help. But as you know with LDN any narcotics are out of the equasion. Have a great day.

11-03-2011, 08:45 PM	#26
minnie60 Member Join Date: Nov 2011 Location: Minnesota Posts: 31	Response to Random Hi Random, Will see if this will copy & paste. Lists ok and not ok drugs for LDN and LDN websites I go into them for allot of information. Didn't reference before because I hadn't researched the site well enough to see if they were already in here. Another informational site is Patientslikeme, it is a forum for MS, ALS etc. LINKS The official LDN website: http://www.ldninfo.org Diseases helped by LDN: http://tinyurl.com/ldn-responsive Drugs to avoid when taking LDN: http://tinyurl.com/drugs-to-avoid-on-ldn Side effects and dosing of LDN: http://tinyurl.com/ldn-side-effects How to obtain LDN: http://tinyurl.com/how-to-obtain-ldn LDN-related research: http://tinyurl.com/ldn-trials Dawn's Hashimoto's blog: http://tinyurl.com/4wszdl An LDN chat group for MS: http://groups.yahoo.com/group/spotlight_ldn The 1st U.S. LDN Conference: http://tinyurl.com/28e6be The 2nd U.S. LDN Conference: http://tinyurl.com/second-ldn-conf The 1st European LDN Conference: http://tinyurl.com/euro-ldn-conf-1 Dr. Lawrence's advice on LDN and MS: http://tinyurl.com/2ejrdj LDN for FMS: http://tinyurl.com/ldn-for-fms A charity for LDN research: http://www.ldnresearchtrust.org LDN for Alzheimer's: http://tinyurl.com/ldn-for-alzheimers LDN for autism: http://tinyurl.com/ldn-for-autism LDN for cancer: http://tinyurl.com/ldn-for-cancer Bill's LDN and MS site: http://tinyurl.com/2b3zvt LDN for Crohn's: http://tinyurl.com/ldn-for-crohns Dr. Berkson on ALA and LDN: http://tinyurl.com/berkson-on-ala-and-ldn LDN for HIV/AIDS: http://tinyurl.com/ldn-for-hiv-aids Mary's LDN Radio Show: http://tinyurl.com/nnd2nq LDN for lupus: http://tinyurl.com/ldn-4-lupus LDN for rheumatoid arthritis: http://http://tinyurl.com/ldn-for-ra LDNNow: http://ldnnow.co.uk LDN for PD: http://tinyurl.com/ldn-for-parkinsons LDNAware: http://www.ldnaware.org An LDN-related article: http://tinyurl.com/nb4zee LDN-related video clips: http://tinyurl.com/mercola-on-ldn http://tinyurl.com/lwcar5 http://tinyurl.com/9ean44 http://tinyurl.com/4gwl6l LDN-related books: http://tinyurl.com/bk9m8c http://tinyurl.com/oz9wdg http://tinyurl.com/mk9c58 http://tinyurl.com/ynkm4n http://tinyurl.com/34fxet http://tinyurl.com/43l6x2 http://tinyurl.com/46ut4v http://tinyurl.com/6ouxyy __________________ Best Regards, Minnie

11-03-2011, 08:58 PM	#27
minnie60 Member Join Date: Nov 2011 Location: Minnesota Posts: 31	OOPS, ONE MORE SITE: This is a person with health issues and it is her site I first learned about allot of things and further researched, internet is great once you have the terminology to look upsite Just google Crystal's MS,TM & LDN Website __________________ Best Regards, Minnie

11-04-2011, 04:30 PM	#29
minnie60 Member Join Date: Nov 2011 Location: Minnesota Posts: 31	Knowledge is great! Your welcome and if anyone has others please share. __________________ Best Regards, Minnie

04-20-2012, 08:03 PM	#30
scottc74 Junior Member Join Date: Apr 2012 Posts: 15	LDN, I've been on it for over 7.5 years... The first thing you should know about LDN is that it is not a miracle cure. That being said you will likely see any symptoms 6months old or newer will not hang around. I do not plan (unless there is an MS cure) I do not plan to stop using LDN.

11-03-2011, 01:25 AM	#21
Bonnette Senior Member Join Date: Dec 2008 Location: Colorado Posts: 2,607	Welcome, minnie60! How wonderful that LDN stopped your progression! What dose do you take?

11-03-2011, 06:55 AM	#22
MSWIFE1 Senior Member Join Date: Sep 2007 Location: Fithian, IL Posts: 1,852	Why 4AP and not Ampyra Minnie? Just wondering and yes welcome to carecure.

11-03-2011, 06:05 PM	#24
Bonnette Senior Member Join Date: Dec 2008 Location: Colorado Posts: 2,607	Minnie, thank you for this great information - it is all very, very helpful!

11-03-2011, 07:15 PM	#25
Random Senior Member Join Date: May 2006 Location: Central NJ Posts: 2,203	I've been taking 3 MG daily for a few years maybe, and have not noticed anything from it, either positive or negative. But I did not know there was any prohibition against narcotics with it. I'm sure I must have had some narcotics when I got injured again in 2009. But maybe I didn't have my other pills with me at the hospital. What are some common narcotics?

11-04-2011, 12:29 AM	#28
Random Senior Member Join Date: May 2006 Location: Central NJ Posts: 2,203	Wow minnie, thanks!

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