Let's Talk About TM

jlgrogan81 · 07-31-2011, 04:43 AM

Hi everyone! My name is Jen, and I was diagnosed with Transverse Myelitis in March of 2008. I have met a lot of people in chairs, but most are traumatic SCIs, and I am interested in talking to people who have TM. Anyways...say hello or whatever else...

Bonnette · 07-31-2011, 07:23 AM

Welcome to the forum, Jen. We have several members with TM and other non-traumatic SCIs - you'll find lots of information here. Best wishes to you!

lynnifer · 07-31-2011, 09:30 AM

T11 para since July 29 1985 @ age 12 - released from hospital on my 13th birthday, so 26yrs ago. It left me flaccidly paralyzed from the waist down.

ETA: Mine took 30 seconds. Had been having back pains for a month or so prior and a wicked allergic reaction to corn detassling .. was on Prednisone at the time. Huge back pain - went to stand up and fell like a raggedy-ann doll. When I hit the ground, a line of numbness started at my feet and crept up my body and stopped at my waist.

partygirl · 07-31-2011, 09:58 AM

Hi Jen, I was diagnosed in May 2007 and am T7 complete and also flaccid. Mine came on slowly over a few months which I gather is a bit unusual. It took until November of that year before I was in the chair.
I get a lot of neuropathic pain and seem to be ruled by that and all the drugs for various bits of my body, but on the plus side I still have a good brain!
Hope you are doing OK, this site is a great source of info, support and comfort, it's the only place where I feel 'normal'
Good luck

keps · 07-31-2011, 10:08 AM

Quote:

Originally Posted by Bonnette

Welcome to the forum, Jen. We have several members with TM and other non-traumatic SCIs - you'll find lots of information here. Best wishes to you!

I'm another non-traumatic sci. I didn't have TM, but a spinal bleed.

Welcome, Jen!

Bonnette · 07-31-2011, 01:38 PM

Quote:

Originally Posted by keps

I'm another non-traumatic sci. I didn't have TM, but a spinal bleed.

Welcome, Jen!

Reminds me, I forgot to say what my own issue is - MS primarily, with cervical stenosis and sacral nerve root cysts. And I'm old, too!

woman from Europe · 07-31-2011, 02:56 PM

And I am a non traumatic SCI, no diagnosis but I bet I had a TM, but we don't use that diagnosis here. T11-12 and spastic.

ZEN12many · 07-31-2011, 03:16 PM

Hi
Welcome to the site. TM at 58. Walking 12/6/04. Paralyzed from knees down 12/7/04. Paralyzed from waist down 12/9/04. Some recovery over the next 10 months.

Life moves on.

My395 · 08-01-2011, 01:50 AM

I had TM at age 11, 1973. Initial complete paralysis, T10... ish. Recovered to walk with cane for many years. Now use a chair for the majority of my mobility.

Kari.Sawyer · 08-17-2011, 08:21 AM

I was just diagnosed with TM on Thursday Aug. 11, 2011. I started 5 days of IV steriods and just finished that yesterday. Today I go back in and see my neurologist. I get the feeling that he really doesn't know what to do. I have millions of questions and not a lot of answers yet. I just feel so frustrated and want my life back to "normal". I don't know what to expect or what other things are going to happen. I seem to be getting worse and not better even after the round of steriods. It is like waking up a new world everyday, that is when I can sleep. I just feel a little lost and confused and not sure where to turn at this point. My family is supportive but equally unsure of what to do at this point. I wish I had a crystal ball and could see the future, as I am sure everyone does. I just don't know what to expect at this point. Thanks everyone, just need some advice from others who can really understand what is happening to me when no one else seems to get it. Kari

07-31-2011, 04:43 AM	#1
jlgrogan81 Junior Member Join Date: Jul 2011 Posts: 1	Let's Talk About TM Hi everyone! My name is Jen, and I was diagnosed with Transverse Myelitis in March of 2008. I have met a lot of people in chairs, but most are traumatic SCIs, and I am interested in talking to people who have TM. Anyways...say hello or whatever else...

07-31-2011, 09:30 AM	#3
lynnifer Senior Member Join Date: Aug 2002 Location: Windsor ON Canada Posts: 15,323	T11 para since July 29 1985 @ age 12 - released from hospital on my 13th birthday, so 26yrs ago. It left me flaccidly paralyzed from the waist down. ETA: Mine took 30 seconds. Had been having back pains for a month or so prior and a wicked allergic reaction to corn detassling .. was on Prednisone at the time. Huge back pain - went to stand up and fell like a raggedy-ann doll. When I hit the ground, a line of numbness started at my feet and crept up my body and stopped at my waist. __________________ I think over again my small adventures, My fears, Those small ones that seemed so big, For all the vital things I had to get and to reach; And yet there is only one great thing, The only thing, To live to see the great day that dawns And the light that fills the world. Anonymous (Inuit, 19th century) T-11 Flaccid Paraplegic due to TM July 1985 @ age 12 Last edited by lynnifer; 07-31-2011 at 01:44 PM.

07-31-2011, 02:56 PM	#7
woman from Europe Senior Member Join Date: Jan 2004 Location: Norway Posts: 6,546	And I am a non traumatic SCI, no diagnosis but I bet I had a TM, but we don't use that diagnosis here. T11-12 and spastic. __________________ TH 12, 43 years post

07-31-2011, 03:16 PM	#8
ZEN12many Senior Member Join Date: Jun 2011 Location: Woodland, CA, USA [Grew up in Benton Harbor, MI] Posts: 197	Hi Welcome to the site. TM at 58. Walking 12/6/04. Paralyzed from knees down 12/7/04. Paralyzed from waist down 12/9/04. Some recovery over the next 10 months. Life moves on. __________________ TM 2004 T12 incomplete

08-01-2011, 01:50 AM	#9
My395 Senior Member Join Date: Sep 2008 Location: California Posts: 823	I had TM at age 11, 1973. Initial complete paralysis, T10... ish. Recovered to walk with cane for many years. Now use a chair for the majority of my mobility. __________________ Adaptive Sports Forums.com http://adaptivesportsforums.com Non-commercial adaptive sports user community

07-31-2011, 07:23 AM	#2
Bonnette Senior Member Join Date: Dec 2008 Location: Colorado Posts: 2,606	Welcome to the forum, Jen. We have several members with TM and other non-traumatic SCIs - you'll find lots of information here. Best wishes to you!

07-31-2011, 09:58 AM	#4
partygirl Senior Member Join Date: Jun 2009 Location: south eastern Australia Posts: 129	Hi Jen, I was diagnosed in May 2007 and am T7 complete and also flaccid. Mine came on slowly over a few months which I gather is a bit unusual. It took until November of that year before I was in the chair. I get a lot of neuropathic pain and seem to be ruled by that and all the drugs for various bits of my body, but on the plus side I still have a good brain! Hope you are doing OK, this site is a great source of info, support and comfort, it's the only place where I feel 'normal' Good luck

08-17-2011, 08:21 AM	#10
Kari.Sawyer Junior Member Join Date: Aug 2011 Location: Oklahoma Posts: 1	Newly diagnosed with TM I was just diagnosed with TM on Thursday Aug. 11, 2011. I started 5 days of IV steriods and just finished that yesterday. Today I go back in and see my neurologist. I get the feeling that he really doesn't know what to do. I have millions of questions and not a lot of answers yet. I just feel so frustrated and want my life back to "normal". I don't know what to expect or what other things are going to happen. I seem to be getting worse and not better even after the round of steriods. It is like waking up a new world everyday, that is when I can sleep. I just feel a little lost and confused and not sure where to turn at this point. My family is supportive but equally unsure of what to do at this point. I wish I had a crystal ball and could see the future, as I am sure everyone does. I just don't know what to expect at this point. Thanks everyone, just need some advice from others who can really understand what is happening to me when no one else seems to get it. Kari

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