Autonomic Dysreflexia -- need help

Darryl · 05-22-2011, 02:45 PM

What causes someone with an SCI to have their blood pressure go too high then too low? It has been going on for a few days now. Is this a result of AD? If a person is taken to a hospital emergency room can they treat it there or does the person need to be admitted to the hospital? Any and all help is greatly appreciated.

macska · 05-22-2011, 03:32 PM

Quote:

Originally Posted by Darryl

What causes someone with an SCI to have their blood pressure go too high then too low? It has been going on for a few days now. Is this a result of AD? If a person is taken to a hospital emergency room can they treat it there or does the person need to be admitted to the hospital? Any and all help is greatly appreciated.

Well I think that all depends on what causing the AD. Do go to the ER, and get checked out.
Hope u feel better soon.

Darryl · 05-22-2011, 03:42 PM

Thank you, macska. Her bladder was overextended two days ago but that has bin remedied. I have researched a lot about AD and it really scares me. I've talked to her about having atropine at her bedside but she hasn't done it yet. I am really scared for her.

gjnl · 05-22-2011, 03:48 PM

Hi Darryl,
She absolutely needs to have a autonomia kit either at the bedside or bathroom and in a purse or pack on her wheelchair. There are some threads on this website outlining what needs to be in the kit, including a medical alert card that describes autonomia, symptoms and what to do for it.
Some people prefer a paste over pills. Search this site for complete information.

All the best,
GJ

Darryl · 05-22-2011, 03:59 PM

Thank you, gjnl.

TomRL · 05-22-2011, 04:06 PM

I use nitropaste to subdue symptoms while we search for causes. If you go to an ER, and I would if you can't find an obvious problem, carry some info on AD with you . Not all ERs are familiar with the condition.

This might be helpful:

http://www.sci-info-pages.com/ad.html

Darryl · 05-22-2011, 04:13 PM

Quote:

Originally Posted by TomRL

I use nitropaste to subdue symptoms while we search for causes. If you go to an ER, and I would if you can't find an obvious problem, carry some info on AD with you . Not all ERs are familiar with the condition.

This might be helpful:

http://www.sci-info-pages.com/ad.html

Thank you, TomRL. She's bin using a paste -- thanks. "Not all ERs are familiar with the condition." This is what I am afraid of. Thank you for the link, TomRL.

Tim C. · 05-22-2011, 04:52 PM

Quote:

Originally Posted by gjnl

Hi Darryl,
She absolutely needs to have a autonomia kit either at the bedside or bathroom and in a purse or pack on her wheelchair. There are some threads on this website outlining what needs to be in the kit, including a medical alert card that describes autonomia, symptoms and what to do for it.
Some people prefer a paste over pills. Search this site for complete information.

All the best,
GJ

When I was in Kessler rehab I was told that under no circumstances should a non medical professional be administering nitro paste. In fact, while I was interred there and experiencing AD at night, the resident had to be summoned just for my nurse (a rehab-trained nurse that was infinitely familiar with AD) to apply the paste, and record Bp readings every 3 mins. Post rehab, we were instructed to try our luck at the local ER.
That was nine yrs ago.
Was I mis-directed?

LindaT · 05-22-2011, 04:59 PM

I gave our AD alert card (from Craig) to the doc at ER once and he looked at me like I was an idiot.

chick · 05-22-2011, 05:07 PM

Look here. Autonomic Dysreflexia (AD): Alert Card

05-22-2011, 02:45 PM	#1
Darryl Member Join Date: Sep 2010 Location: U.S. and Canada Posts: 72	Autonomic Dysreflexia -- need help What causes someone with an SCI to have their blood pressure go too high then too low? It has been going on for a few days now. Is this a result of AD? If a person is taken to a hospital emergency room can they treat it there or does the person need to be admitted to the hospital? Any and all help is greatly appreciated.

05-22-2011, 04:06 PM	#6
TomRL Senior Member Join Date: Mar 2007 Location: NE Ohio Posts: 754	I use nitropaste to subdue symptoms while we search for causes. If you go to an ER, and I would if you can't find an obvious problem, carry some info on AD with you . Not all ERs are familiar with the condition. This might be helpful: http://www.sci-info-pages.com/ad.html __________________ Tom "Blessed are the pessimists, for they hath made backups." Exasperated 20:12 Last edited by TomRL; 05-22-2011 at 04:07 PM. Reason: dumb typos

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05-22-2011, 03:42 PM	#3
Darryl Member Join Date: Sep 2010 Location: U.S. and Canada Posts: 72	Thank you, macska. Her bladder was overextended two days ago but that has bin remedied. I have researched a lot about AD and it really scares me. I've talked to her about having atropine at her bedside but she hasn't done it yet. I am really scared for her.

05-22-2011, 03:48 PM	#4
gjnl Senior Member Join Date: Jun 2005 Posts: 5,057	Hi Darryl, She absolutely needs to have a autonomia kit either at the bedside or bathroom and in a purse or pack on her wheelchair. There are some threads on this website outlining what needs to be in the kit, including a medical alert card that describes autonomia, symptoms and what to do for it. Some people prefer a paste over pills. Search this site for complete information. All the best, GJ

05-22-2011, 03:59 PM	#5
Darryl Member Join Date: Sep 2010 Location: U.S. and Canada Posts: 72	Thank you, gjnl.

05-22-2011, 04:59 PM	#9
LindaT Senior Member Join Date: Jan 2010 Location: MN Posts: 7,756	I gave our AD alert card (from Craig) to the doc at ER once and he looked at me like I was an idiot.

05-22-2011, 05:07 PM	#10
chick Senior Member Join Date: Jul 2003 Posts: 6,685	Look here. Autonomic Dysreflexia (AD): Alert Card