Project Walk

KENTR · 02-20-2011, 02:15 PM

Dear Dr. Young,
Your are pretty much reliable and informative doctor to me. I have a 12 yr old son, who suffer a spinal stroke in July 2010 at T10- T12 level. Recently have seen some movement back on his legs ( can slightly walk with walker for at least 20f-30 feet or more). However, bladder and bowel plus sensation doesn't seem to return except for he can feel vibration, tingly on along his legs when scrubbing. My son goes to rehab twice a week, and does at home along the week during his after school ( we have stander, not FES but a pwr assist pedal, column cable and walker used with leg braces). I recently discovered a " Project Walk" rehab program in San Diego that seems to have very positive methods for SCI, but might not be approved by insurance. However, I'm thinkin of having him to try that program for a 3 week period this summer. If you know anything about that program, please give us some advices. I have read some of your articles regarding SCI, and have become to admire you alot.
You can email me at VUKHANH1@VERIZON.NET or KVTRAN@MICROSEMI.COM. I truly appreciate your kindness.

drew82586 · 02-26-2011, 01:10 PM

I have been looking into Push to walk, which sort of branched off Project Walk. Which also isn't covered by insurance. I am a T-6, my accident was in Sept 08. I have regained alot of hip muscles. I have been walking with braces with a walker for about a year. but just recently took off the back brace and hip joint. I will be trying to getting a fes bike. I have been in and out of therapy since my accident. but I just don't feel like its intense enough for me and they only do the minimal. Don't get me wrong I absolutly love it there. I've just been debating on Push to walk since its a bit closer to me then Project Walk? I Just haven't gotten much input on it from actual people!

Mac85 · 02-26-2011, 03:29 PM

this is my video from pw, just to give you an idea of their workouts

drew82586 · 02-27-2011, 02:35 PM

haha, I just sent you a message on youtube... weird. i'm tubbabutt on youtube.

Donnie · 02-27-2011, 02:42 PM

Mac, did you regain anything besides strength?

Snowman · 02-27-2011, 06:19 PM

Hi KENTR

I just wanted to let you know if you do a search for "project walk" you will find quite a bit here on our program. I am not sure how much you have looked at our website but I would like to point you in the direction of our research page: http://www.projectwalk.org/institute/research_pw.htm

Our website is in the process of being completely redone, so we have not updated it in quite a while. For more recent news please see our blog page:
http://pwinstitute.blogspot.com/

Or Twitter:
http://twitter.com/ProjectWalkSCI

Mac85 · 02-27-2011, 07:14 PM

Quote:

Originally Posted by Donnie

Mac, did you regain anything besides strength?

Core strenght, but i'm complete so not much really.

Donnie · 02-27-2011, 07:45 PM

So would you say it's worth the $$$$ for the core strength and video you receive at the end of project walk?

nrf · 02-27-2011, 08:09 PM

donnie,

there is a project walk affiliate in sanford fla. i wont speak for mac but project walk was by far the best therapy/workout my son ever received.

Mac85 · 02-27-2011, 08:13 PM

PW is the greatest spinal cord recovery center... for incompletes imo

02-20-2011, 02:15 PM	#1
KENTR Junior Member Join Date: Feb 2011 Posts: 6	Project Walk Dear Dr. Young, Your are pretty much reliable and informative doctor to me. I have a 12 yr old son, who suffer a spinal stroke in July 2010 at T10- T12 level. Recently have seen some movement back on his legs ( can slightly walk with walker for at least 20f-30 feet or more). However, bladder and bowel plus sensation doesn't seem to return except for he can feel vibration, tingly on along his legs when scrubbing. My son goes to rehab twice a week, and does at home along the week during his after school ( we have stander, not FES but a pwr assist pedal, column cable and walker used with leg braces). I recently discovered a " Project Walk" rehab program in San Diego that seems to have very positive methods for SCI, but might not be approved by insurance. However, I'm thinkin of having him to try that program for a 3 week period this summer. If you know anything about that program, please give us some advices. I have read some of your articles regarding SCI, and have become to admire you alot. You can email me at VUKHANH1@VERIZON.NET or KVTRAN@MICROSEMI.COM. I truly appreciate your kindness.

02-26-2011, 01:10 PM	#2
drew82586 Senior Member Join Date: Jun 2009 Location: Pittsburgh, Pennsylvania Posts: 278	I have been looking into Push to walk, which sort of branched off Project Walk. Which also isn't covered by insurance. I am a T-6, my accident was in Sept 08. I have regained alot of hip muscles. I have been walking with braces with a walker for about a year. but just recently took off the back brace and hip joint. I will be trying to getting a fes bike. I have been in and out of therapy since my accident. but I just don't feel like its intense enough for me and they only do the minimal. Don't get me wrong I absolutly love it there. I've just been debating on Push to walk since its a bit closer to me then Project Walk? I Just haven't gotten much input on it from actual people! __________________ I have more to claim. I have to fight through the hard places to go and get it! most recent video: http://www.youtube.com/watch?v=fHLEinnhYtg

02-26-2011, 03:29 PM	#3
Mac85 Senior Member Join Date: Jul 2010 Location: Chicago Posts: 795	this is my video from pw, just to give you an idea of their workouts __________________ C5/C6 Complete since 08/22/09

02-27-2011, 02:35 PM	#4
drew82586 Senior Member Join Date: Jun 2009 Location: Pittsburgh, Pennsylvania Posts: 278	haha, I just sent you a message on youtube... weird. i'm tubbabutt on youtube. __________________ I have more to claim. I have to fight through the hard places to go and get it! most recent video: http://www.youtube.com/watch?v=fHLEinnhYtg

02-27-2011, 02:42 PM	#5
Donnie Senior Member Join Date: May 2009 Location: Florida Posts: 392	Mac, did you regain anything besides strength? __________________ Donnie: Dr. Xiao, What are your thoughts on a cure/combination therapy for SCI's?? CG Xiao: Donnie, I don't want to disappoint you, but I think it is impossible to restore the continuity of the cord or "bridge the gap" in the near future, let's say: 50 years. Dr Wise Young has been my most respected scientist in SCI. He has dedicated and contributed to SCI no other can match.

02-27-2011, 06:19 PM	#6
Snowman Senior Member Join Date: Jan 2002 Location: Carlsbad, Ca USA Posts: 928	Hi KENTR I just wanted to let you know if you do a search for "project walk" you will find quite a bit here on our program. I am not sure how much you have looked at our website but I would like to point you in the direction of our research page: http://www.projectwalk.org/institute/research_pw.htm Our website is in the process of being completely redone, so we have not updated it in quite a while. For more recent news please see our blog page: http://pwinstitute.blogspot.com/ Or Twitter: http://twitter.com/ProjectWalkSCI __________________ Eric Harness, CSCS, CSRS III Co-Founder Director of Research and Development Project Walk® Spinal Cord Injury Social Network (Project Walk Connect)

02-27-2011, 07:45 PM	#8
Donnie Senior Member Join Date: May 2009 Location: Florida Posts: 392	So would you say it's worth the $$$$ for the core strength and video you receive at the end of project walk? __________________ Donnie: Dr. Xiao, What are your thoughts on a cure/combination therapy for SCI's?? CG Xiao: Donnie, I don't want to disappoint you, but I think it is impossible to restore the continuity of the cord or "bridge the gap" in the near future, let's say: 50 years. Dr Wise Young has been my most respected scientist in SCI. He has dedicated and contributed to SCI no other can match.

02-27-2011, 08:09 PM	#9
nrf Senior Member Join Date: Mar 2010 Posts: 2,729	donnie, there is a project walk affiliate in sanford fla. i wont speak for mac but project walk was by far the best therapy/workout my son ever received.

02-27-2011, 08:13 PM	#10
Mac85 Senior Member Join Date: Jul 2010 Location: Chicago Posts: 795	PW is the greatest spinal cord recovery center... for incompletes imo __________________ C5/C6 Complete since 08/22/09

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