we didnt make the top 10....probably not the top 10,000 either.

DA · 01-02-2002, 08:37 PM

With apologies, DA, I am replacing your long posting of heart research advances with a link to Max's post that gives the same information. This thread is about SCI research and not heart research. For those who want to learn about the top ten advances in heart advances, see http://carecure.org/forum/showthread.php?t=14801

[This message was edited by Wise Young on January 09, 2002 at 10:12 AM.]

Wise Young · 01-02-2002, 09:39 PM

I must disagree with you on this, DA, as much as I respect you for your views. Spinal cord injury research has gone further and faster than anybody could have thought, given the lack of support and resources. Were you really seriously expecting a miracle? Scientists have done their job in working hard to establish proof of cure despite the lack of funding. Industry is not yet investing seriously, the government is distracted, and the community is frankly antagonistic to the concept of cure. The community needs get behind cure research, the government must come to their senses cncerning the cost of disability, and industry needs to understand that they can't make money if they don't take risks. You are expecting a superbowl victory from a team that is playing to an empty stadium and that does not have enough money to attract the star players.

Please understand that the American Heart Association spends over $150 million per year on research, the National Institute of Heart Lung and Blood Institue received $2.2 billion compared to $1.2 billion for the National Institute of Neurological Disorders and Stroke. Cardiac researchers have done less than spina cord injury scientists have done in spinal cord injury that have received less than $100 million in funding from all sources combined. On my next poting, I shall try to put together a list of the 10 ten in spinal cord injury research.

DA · 01-03-2002, 06:22 AM

dont get the messenger, i didnt write the article. clearly those who did wrote the article thinks very little of the progress researchers made.
i know the sci community as a whole dont support cure. i am first to admitt our community is brain damaged. but how about you researchers. why cant you guys toot your horns louder. brag about your progress. force youself on cnn. scream. it worked for ali.

bill j. · 01-03-2002, 08:59 AM

Read the first line again, DA. "New treatments for heart failure - implantable heart devices and cell-grown tissues - are among the top 10 research advances in heart disease and stroke for 2001."

These are 10 top ten advances in heart and stroke research, not all of medical research. Why would any advances in spinal research make the list of heart research? I think you are looking too hard for things to complain about. Bill

DA · 01-03-2002, 01:23 PM

bill i know what you mean. just like those who look for reasons and obsessed to attack me. hint hint.

cheesecake · 01-03-2002, 01:49 PM

DA, The antagonism is getting the SCI community no closer to a cure. Sort of like the dog that bites the hand that feeds him. I am not saying that we grovel at the feetof the researchers, but they are not the "evil conspirator" as you protray them to be.

Read below, for many this is a first stage cure. For gvinton it was more than the 20% that some of us received due to hard working scientist.

**************************************************
posted January 03, 2002 03:49 PM
--------------------------------------------------------------------------------
Thank You Dr. Young

I was injured September 2, 2001 (C5/6) and was initially paralyzed from the neck down. I was given methylprednisolone within a half hour of my injury and put into traction the same day. I was told in the ER that I probably would never walk again. I had surgery the following day fusing bone from my hip with a plate and a couple screws.
I spent a week in that hospital and 3 weeks in a rehab hospital. By the time I left rehab I walked out with a cane. I'm now 4 months post and still getting return. I walk normally and can basically jog but not sprint. I have very few limitations other than not being able to play sports yet. I am very lucky.

Had it not been for your research and breakthroughs regarding methylprednisolone my surgeon tells me I'd probably still be in the same condition I was in the ER. Your hard work has affected my life tremendously. Thank you!

martha · 01-03-2002, 02:09 PM

I may be way off base here, but how many people suffer heart problems as opposed to SCI? Everyone I know is concerned about heart attack, high blood pressure, stroke, etc. etc. etc. because it could happen to THEM. NO ONE is worried about SCI because it only happens to someone else. If it hadn't directly hit my life, I probably wouldn't give it a thought either --- I know many more people with heart problems than I did with SCI prior to my husband's injury. The general population worries about what they think will happen to them --- heart problems and cancer. The two scariest possibilities to many.

It's up to the SCI community to bring attention to the problem in some organized way. Leave the wonderful people who are dedicating their lives to curing this problem alone to do their work. If you want to attack someone, attack those of us who could be banding together someway to draw attention to the plight of the SCI. I'm not an organizer, but I'm a great joiner. Just point in the direction of what to do to help and I'll be there. But to attack the researchers as if they're slacking off on the job is insulting and just plain ludicrous. Take Dr. Young as our example. He runs the research program, travels to educate, makes appearances and speeches, helps raise funds and have you ever noticed the hours he posts on here? Does the man never sleep? How much more do you want from him, DA? You're obviously a smart guy, DA. So stop bitching and come up with an idea to organize and get those of us together who don't have the brains to run the research! Organize us to be "out there" in front of the public to beg for the money. Or to write the millions of letters to the gov't to promote more funding. Or to the drug companies to promote more research grants. Come on, do something positive instead of pointing out everything wrong. We already know the problems, we need help finding the money and the public support to promote the solution!

Just my .02.

martha

bill j. · 01-03-2002, 06:16 PM

DA wrote: oops, i copied wrong article
bill i know what you mean. just like those who look for reasons and obsessed to attack me. hint hint.

*************

DA, I stay awake nights reading and examining your posts. I am absolutely obsessed with finding ways to attack you. And why not? You dare to profit from the disabled and elderly by selling wheelchairs while bashing the medical care industry and yelling conspiracy! DA, do you sell wheel chair umbrellas, too?

I think you are a double agent. I think you have been sent here by the establishment to bash researchers and yell conspiracy while leading the conspiracy yourself. You try to confuse us all by articles like you posted above. It is all part of a grand conspiracy to keep us confused and to keep a cure from us. I imagine you give a report to your wheel chair company at the same time you get your monthly check. Oh! The shame of it all! We are going to be in our chairs forever thanks to people like you! Double agents have infiltrated this cure forum! Bill

marmalady · 01-03-2002, 06:18 PM

Martha,

You go, girl! Took the words right out of my mouth!

Jackie

DA · 01-03-2002, 07:05 PM

seeeeeee, i knew that bill. it has become very obvious. but i do understand. we all need to vent in some manner.

yeah yeah cheesecake we know. a quiet invisible protest is the way to go. the quiet wheel gets the grease.

martha in 1998 on the cpn forum. we took a poll. 90% of the ppl who responded said 2-3 years or 3-5 years. even cr on letterman of may 1998 said 2 years. cedar had stem cells ready to go. well in 12 months, 90% of us will be wrong. the mood then was so much more positive. back in 1998 we knew about in-1 and ait-082 and that combination was needed. we knew about the skin biopsy and cells from the nose as well as schwann cell bridging. we have been talking about this for almost 5 years. who to say we wont be sitting in these chairs another 5 years. i cant be everyones scapegoat forever. why is it so hard to get into your skull that researchers need to be held accountable. of all the therapies we chatted about in 1998, only 1 has gone into trial. that is unaceptable number. they must work harder and more aggressive. they need to stop all this nickle and dime stuff. i am and im sure others are no longer impressed with curing rats and primates. it gets old after a few years. researchers need to stop living in the past and do something new, like curing humans. there is no doubt in my mind they will succeed becoming hero's to the world. but until then, they need to do their job. dr young speaks of plenty of breathroughs, yet the good ones never trickle down. what good is a breakthrough for us if they never benefit anyone.

01-02-2002, 08:37 PM	#1
DA Senior Member Join Date: Jul 2001 Location: beaumont tx usa Posts: 32,390	we didnt make the top 10....probably not the top 10,000 either. With apologies, DA, I am replacing your long posting of heart research advances with a link to Max's post that gives the same information. This thread is about SCI research and not heart research. For those who want to learn about the top ten advances in heart advances, see http://carecure.org/forum/showthread.php?t=14801 [This message was edited by Wise Young on January 09, 2002 at 10:12 AM.]

01-03-2002, 06:22 AM	#3
DA Senior Member Join Date: Jul 2001 Location: beaumont tx usa Posts: 32,390	dr young dont get the messenger, i didnt write the article. clearly those who did wrote the article thinks very little of the progress researchers made. i know the sci community as a whole dont support cure. i am first to admitt our community is brain damaged. but how about you researchers. why cant you guys toot your horns louder. brag about your progress. force youself on cnn. scream. it worked for ali.

01-03-2002, 01:23 PM	#5
DA Senior Member Join Date: Jul 2001 Location: beaumont tx usa Posts: 32,390	oops, i copied wrong article bill i know what you mean. just like those who look for reasons and obsessed to attack me. hint hint.

01-03-2002, 01:49 PM	#6
cheesecake Moderator Join Date: Aug 2001 Location: USA Posts: 7,522	One mans Cure---DA DA, The antagonism is getting the SCI community no closer to a cure. Sort of like the dog that bites the hand that feeds him. I am not saying that we grovel at the feetof the researchers, but they are not the "evil conspirator" as you protray them to be. Read below, for many this is a first stage cure. For gvinton it was more than the 20% that some of us received due to hard working scientist. ************************************************** posted January 03, 2002 03:49 PM -------------------------------------------------------------------------------- Thank You Dr. Young I was injured September 2, 2001 (C5/6) and was initially paralyzed from the neck down. I was given methylprednisolone within a half hour of my injury and put into traction the same day. I was told in the ER that I probably would never walk again. I had surgery the following day fusing bone from my hip with a plate and a couple screws. I spent a week in that hospital and 3 weeks in a rehab hospital. By the time I left rehab I walked out with a cane. I'm now 4 months post and still getting return. I walk normally and can basically jog but not sprint. I have very few limitations other than not being able to play sports yet. I am very lucky. Had it not been for your research and breakthroughs regarding methylprednisolone my surgeon tells me I'd probably still be in the same condition I was in the ER. Your hard work has affected my life tremendously. Thank you!

01-03-2002, 02:09 PM	#7
martha Senior Member Join Date: Jul 2001 Location: Texas hallelujah! Posts: 1,077	Could it be sheer numbers? I may be way off base here, but how many people suffer heart problems as opposed to SCI? Everyone I know is concerned about heart attack, high blood pressure, stroke, etc. etc. etc. because it could happen to THEM. NO ONE is worried about SCI because it only happens to someone else. If it hadn't directly hit my life, I probably wouldn't give it a thought either --- I know many more people with heart problems than I did with SCI prior to my husband's injury. The general population worries about what they think will happen to them --- heart problems and cancer. The two scariest possibilities to many. It's up to the SCI community to bring attention to the problem in some organized way. Leave the wonderful people who are dedicating their lives to curing this problem alone to do their work. If you want to attack someone, attack those of us who could be banding together someway to draw attention to the plight of the SCI. I'm not an organizer, but I'm a great joiner. Just point in the direction of what to do to help and I'll be there. But to attack the researchers as if they're slacking off on the job is insulting and just plain ludicrous. Take Dr. Young as our example. He runs the research program, travels to educate, makes appearances and speeches, helps raise funds and have you ever noticed the hours he posts on here? Does the man never sleep? How much more do you want from him, DA? You're obviously a smart guy, DA. So stop bitching and come up with an idea to organize and get those of us together who don't have the brains to run the research! Organize us to be "out there" in front of the public to beg for the money. Or to write the millions of letters to the gov't to promote more funding. Or to the drug companies to promote more research grants. Come on, do something positive instead of pointing out everything wrong. We already know the problems, we need help finding the money and the public support to promote the solution! Just my .02. martha

01-02-2002, 09:39 PM	#2
Wise Young Administrator Join Date: Jul 2001 Location: New Brunswick, NJ, USA Posts: 37,975	I must disagree with you on this, DA, as much as I respect you for your views. Spinal cord injury research has gone further and faster than anybody could have thought, given the lack of support and resources. Were you really seriously expecting a miracle? Scientists have done their job in working hard to establish proof of cure despite the lack of funding. Industry is not yet investing seriously, the government is distracted, and the community is frankly antagonistic to the concept of cure. The community needs get behind cure research, the government must come to their senses cncerning the cost of disability, and industry needs to understand that they can't make money if they don't take risks. You are expecting a superbowl victory from a team that is playing to an empty stadium and that does not have enough money to attract the star players. Please understand that the American Heart Association spends over $150 million per year on research, the National Institute of Heart Lung and Blood Institue received $2.2 billion compared to $1.2 billion for the National Institute of Neurological Disorders and Stroke. Cardiac researchers have done less than spina cord injury scientists have done in spinal cord injury that have received less than $100 million in funding from all sources combined. On my next poting, I shall try to put together a list of the 10 ten in spinal cord injury research.

01-03-2002, 08:59 AM	#4
bill j. Senior Member Join Date: Jul 2001 Location: Stratford, SD Posts: 6,695	Read the first line again, DA. "New treatments for heart failure - implantable heart devices and cell-grown tissues - are among the top 10 research advances in heart disease and stroke for 2001." These are 10 top ten advances in heart and stroke research, not all of medical research. Why would any advances in spinal research make the list of heart research? I think you are looking too hard for things to complain about. Bill

01-03-2002, 06:16 PM	#8
bill j. Senior Member Join Date: Jul 2001 Location: Stratford, SD Posts: 6,695	DA wrote: oops, i copied wrong article bill i know what you mean. just like those who look for reasons and obsessed to attack me. hint hint. ************* DA, I stay awake nights reading and examining your posts. I am absolutely obsessed with finding ways to attack you. And why not? You dare to profit from the disabled and elderly by selling wheelchairs while bashing the medical care industry and yelling conspiracy! DA, do you sell wheel chair umbrellas, too? I think you are a double agent. I think you have been sent here by the establishment to bash researchers and yell conspiracy while leading the conspiracy yourself. You try to confuse us all by articles like you posted above. It is all part of a grand conspiracy to keep us confused and to keep a cure from us. I imagine you give a report to your wheel chair company at the same time you get your monthly check. Oh! The shame of it all! We are going to be in our chairs forever thanks to people like you! Double agents have infiltrated this cure forum! Bill

01-03-2002, 06:18 PM	#9
marmalady Senior Member Join Date: Aug 2001 Posts: 3,988	Martha, You go, girl! Took the words right out of my mouth! Jackie

01-03-2002, 07:05 PM	#10
DA Senior Member Join Date: Jul 2001 Location: beaumont tx usa Posts: 32,390	seeeeeee, i knew that bill. it has become very obvious. but i do understand. we all need to vent in some manner. yeah yeah cheesecake we know. a quiet invisible protest is the way to go. the quiet wheel gets the grease. martha in 1998 on the cpn forum. we took a poll. 90% of the ppl who responded said 2-3 years or 3-5 years. even cr on letterman of may 1998 said 2 years. cedar had stem cells ready to go. well in 12 months, 90% of us will be wrong. the mood then was so much more positive. back in 1998 we knew about in-1 and ait-082 and that combination was needed. we knew about the skin biopsy and cells from the nose as well as schwann cell bridging. we have been talking about this for almost 5 years. who to say we wont be sitting in these chairs another 5 years. i cant be everyones scapegoat forever. why is it so hard to get into your skull that researchers need to be held accountable. of all the therapies we chatted about in 1998, only 1 has gone into trial. that is unaceptable number. they must work harder and more aggressive. they need to stop all this nickle and dime stuff. i am and im sure others are no longer impressed with curing rats and primates. it gets old after a few years. researchers need to stop living in the past and do something new, like curing humans. there is no doubt in my mind they will succeed becoming hero's to the world. but until then, they need to do their job. dr young speaks of plenty of breathroughs, yet the good ones never trickle down. what good is a breakthrough for us if they never benefit anyone.

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