Links for Parents of Disabled Kids

[betheny]

Came across these links in the Paralysis Resource Guide from the Christopher & Dana Reeve Paralysis Resource Center. This is a free book they will send, 1 per family, it is the best resource I've ever found. Order it, no joke, it's great. From care to cure.

To order:Link to PRCLinks from the book and the website:

Alliance for Parent Centers
Each state provides training and info to parents of kids w/ dis, as well as the pros who work w/ them. Find your center.

Council for Exceptional Kids
Dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.

Easter Seals
Helping ppl w/ disabilities live better lives for 80 yrs.

Family Center on Technology and Disability
Supports assistive technology orgs and programs that work w/ families of chidren and youth w/ disabilities. Searchable database w/ reviews of books, articles and other materials.

Family Voices
A national grassroots clearing-house to improve healthcare for children with disabilities and chronic conditions.

Fathers Network
Supports men who have children with special needs through support and mentoring programs, technical assistance, national conferences and information resources.

The Shriners Hospitals
The Shriners have three facilities in the U.S. to provide expert, no-cost care to children under 18 with spinal cord injuries.

Our-Kids
An online family of parents, caregivers and others working with children with physical and/or mental disabilities.

Kids Move
Devoted to pediatric movement disorders with up-to-date information about the recognition, assessment, treatment, and support.

Internet Resources for Special Children
Provides information to parents, family members, caregivers, friends, educators, and medical professionals who provide for children with disabilities and other health related disorders.

The American Camping Association
Accredits camping facilities, including dozens across the U.S. that cater to kids with paralysis, to assure a safe and healthy experience. Click above to locate a camp.

National Information Center for Children and Youth with Disabilities (NICHCY)
Provides information on disabilities and disability-related issues for families, educators, and other professionals; special focus is children and youth (birth to age 22).

Ability OnLine
A computer friendship network where children and youth with disabilities or chronic illnesses connect to each other as well as to friends, family members, caregivers and supporters.

Getting Benefits for Kids
This link illustrates the kinds of Social Security and Supplemental Security Income (SSI) benefits a child with a disability might be eligible for and explains how we evaluate disability claims for children.

C5/6 incomplete, injured Aug. 2000