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| Care Health and wellness for those with spinal cord injury and related disabilities |
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#1 |
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Senior Member
Join Date: Nov 2005
Location: NEW HAMPSHIRE
Posts: 1,090
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Bad Results
My last DR.'s appointment , the news wassn't good as my wife works in the office she was told to read his notes on my last appointment and it was as follows , Larry's rare lung disease is in it's final stages and he feels like he's a burden to his family ,now my feelings on this are as follows I am in my appartment most of the time when I go out I have to struggle around pushing a portable oxygen tank that only lasts about 1hr.40min. that time flies by and it's time to go home and get a refill , it's getting tougher and tougher to get around , so now I have disscused with my DR. it may be time for me to go into Primitive care and pray to the good Lord for a better life in the passing , the last 24 years I've had 21 operations and right now I'm on 20 medications a day , way to much for any one person to have to be a part of , so I just want to thank you for being part of this web site ,I'll know the the final answer will be after talking with the DR.'s over the next 2 weeks and I hope and pray it's not to late for that specialist to do his thing .LBUSH49
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#2 |
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Senior Member
Join Date: Jun 2008
Location: Seattle area Wash state
Posts: 2,382
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Sorry you've had such a tough row of it lately, oxygen dependence surely does cut into the "freedom" outside the home. Only thing left to say, is happy sailing, and you are in my prayers.
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#3 |
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Senior Member
Join Date: Mar 2006
Posts: 353
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Sorry to hear that, hopefully the specialist can halt the progression and improve your lung function. Keep us updated.
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#4 |
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Senior Member
Join Date: Aug 2007
Location: last house on the left
Posts: 9,796
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Sorry to hear that you are experiencing such difficulties. Is there a way an additional tank could be brought with you on outings, such as in a backpack, so that you had more time outside? Wishing you the very best and hoping your doctor might have some solutions for you.
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#5 |
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Moderator
Join Date: Jul 2001
Location: USA
Posts: 41,520
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We appreciate your contributions to the website. Sorry to hear you aren't doing better.Discuss all options with your doctor and family and you will make the right decisions but the fight isn't over yet.
cWO |
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#6 |
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Senior Member
Join Date: Oct 2001
Posts: 3,333
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I'm still praying for you, Larry. Please take care of yourself. We care what happens to you!
God bless... Teena |
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#7 |
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Senior Member
Join Date: Oct 2007
Location: Cleburne, Texas, USA
Posts: 5,640
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Hang in there Larry. Don't cut yourself short.
Only God knows your future. Trust in him! I'll be praying for you. God bless.
__________________
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#8 |
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Senior Member
Join Date: Nov 2005
Location: NEW HAMPSHIRE
Posts: 1,090
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Last Thursday 2/ 2 the Home & Hospice came to my home under the advice of my Primary DR. and the DR.treating me for my Lung Diseasethey informed me I have about 6 months left to live , all I ask is to keep me in your prayrers thank you for letting me be part of this web site , MAY GOD BLESS ALL AND WATCH OVER AND BRING GOOD HEALTH ,Yours truly LBUSH49
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#9 | |
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Senior Member
Join Date: Jul 2008
Location: NC, USA
Posts: 1,976
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Quote:
__________________
"The truth will set you free. But first, it will piss you off." -Gloria Steinem |
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#10 |
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Senior Member
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i'm very sorry, lbush49. may god be with you.
lola
__________________
"All that is necessary for the triumph of evil is that good men do nothing" ~ edmund burker c4-5 quad |
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