seeking others w/ CENTRAL CORD SYNDROME

[trekker6]

My long term disability insurer wants me to start preparing to work, I went to fl vocational rehab, they are underfunded and can't help everyone that needs it, I'll go to the head of the group, but think it's wasted on me. I'm on ssdi and have an adequate income, I'm 60 and was close to retirement, I really don't have the stamina to work, just my daily routine keeps me busy enough, when I do projects, it totally knocks me out. I'll do what they ask of me and would be ecstatic if I could get off disability and work my old job in the powerplant, but that won't happen. I actually want to use these next few years getting stronger to enjoy my later years to the fullest, what people normally look to do in our retirement years, I had planned on completing the appalachian trail and to sail to Europe, my sailboat is still waiting for me.

[Revis]

Originally Posted by trekker6

My long term disability insurer wants me to start preparing to work, I went to fl vocational rehab, they are underfunded and can't help everyone that needs it, I'll go to the head of the group, but think it's wasted on me. I'm on ssdi and have an adequate income, I'm 60 and was close to retirement, I really don't have the stamina to work, just my daily routine keeps me busy enough, when I do projects, it totally knocks me out. I'll do what they ask of me and would be ecstatic if I could get off disability and work my old job in the powerplant, but that won't happen. I actually want to use these next few years getting stronger to enjoy my later years to the fullest, what people normally look to do in our retirement years, I had planned on completing the appalachian trail and to sail to Europe, my sailboat is still waiting for me.

These are hard decisions, aren't they? I'm trying to balance work and physical workouts. Lately work has been edging out the workouts. That concerns me somewhat for regaining stamina and ability. Also, the cold has been a bear. That, and the snow, also remind me that I can't go skiing. At least, not this year. Maybe later, if my wife will let me. We met through skiing, but now she hates it because that's how I got my sci.

Understand about getting worn out from projects. I was up and down a ladder for three hours pulling leaves out of my clogged gutters on Thursday afternoon before our snow storm. Managed to clear 3 out of 4 of the large gutters. Was shot afterwards.

I hope you regain enough strength and ability to attain your goals, trekker6. It may happen.

Are you in touch with Cajun? He's ahead of the two of us by about 8 or 9 months. He's an inspiration. Similar challenges. You should compare notes with him.

[lavenderthistle]

Cajun is in the merry band of walking q's also.

I've been trying some basic resistance and stretches. I've recently learned the larger muscle groups can outshine the smaller muscle groups. That makes complete sense when I think about my own recent struggles.

Sadly they don't rent out the ultralight chairs, I'll go for a store chair on the days my husband can't go with me to drag mine out of the car.

I've gotten a better handle (I think) on what's happening with me.

I've noticed....this is kicking my butt!! But I'm too stubborn to quit

[trekker6]

I've read cajuns post and would love to reach his level of ability, my spasticity gets worse the more I walk, but I will keep trying. I can't believe you went on a ladder and did gutters, I've been on a ladder o9nce and was absolutely terrified then froze up physically.

[trekker6]

Lav
If you are looking for an ultalight, have you tried looking for a used one? craigslist, online classifieds, someone on here was offering them for 500 dollars I think, not sure if they were ultralight, but they looked pretty good.

[lavenderthistle]

I should try that...it's evident...I've really screwed up working things evenly! Sooo this is a while of fixing. I'll give it a check Trek thanks

[Evonne]

Originally Posted by Revis

These are hard decisions, aren't they? I'm trying to balance work and physical workouts. Lately work has been edging out the workouts. That concerns me somewhat for regaining stamina and ability. Also, the cold has been a bear. That, and the snow, also remind me that I can't go skiing. At least, not this year. Maybe later, if my wife will let me. We met through skiing, but now she hates it because that's how I .

this is my major issue right now also. It seems like I don't have the time for physical therapy or workouts because after 8 hrs a day I'm dead and I've got nothing left. What is left goes to my 9 yr old son. Finding that balance his very difficult.

Evonne

[Revis]

Hoping and trusting all of you CCS friends had a good Thanksgiving. I pushed myself to get out and do some shopping with my wife. Boy do I hate to stand still for any period of time over 1 minute. How about the rest of you? I've also been out in the yard trimming bushes and raking up downed pine cones from all the high winds we've had. I'm coming up on the one year anniversary of my injury. That's starting to wear on me mentally. That, along with the 6 feet of snow at all the open ski resorts...nuts. I really wish I could try to ski, but fear I would be done in about one or two runs. It has been nice enough to get out for some walks. How about the rest of you?

[lavenderthistle]

I said to heck with it and learned to shovel snow with my cane. Took 3 hours...the snow was ankle deep....I felt like crap and am still dealing with a few bad areas. But...I did it!!! I did something, wild, reckless, stupid and fun. I'm proud.

I'm 10 months out as of yesterday. my surgeon released me today until/ unless I notice changes. So I guess this is pretty much it for things physically. I'll have ups and downs but things are good.

I had a fine thanksgiving and hope you did too! Heading in to Christmas wrapping and baking....hand therapy

[faceplant]

hello fellow CCS community members.....quick question. Does anyone have the burning hand/arm pain/numbness??? If so what has worked for you? Does the cold weather make the pain worse?? Also have you noticed any skin changes on your hands such as thickening or leathery skin??

Thanks for the input


faceplant ( I actually did a faceplant when I got injured)