I might as well just light myself on fire :( :( - Page 4

Bonnette · 08-22-2012, 11:41 PM

Oh, wow, Becky, that is really tough. Fingers crossed that you will find some way to deal with all of this - which should include decent medical help!

CubGuyMS · 08-24-2012, 10:39 AM

Becky,

I sit here this morning and know exactly how you feel. I have been awake most of the night, despite a 10mg Ambien (Zolpidem)...Sometime before bed last night I had a pain in my lower right leg similar to as if someone had clobbered me with a brickbat across the bone. People assume because I am a T-3 paraplegic that I don't feel any type of pain and I wish I knew how to communicate to them that is further from the truth that they could ever realize.

I don't often have pain (knock on wood) but when I do, it makes up for it in buckets. I used to take Gabapentin but at the highest dose they can give you, it was slowly poisoning me. I switched to Lyrica and then all I wanted to do was lay around. I like to consider myself relatively high-functioning (I drive independently and many other things) but that medication made me where I couldn't even function. I have pain meds from a previous hospital visit that I saved in the fridge but cringe at the day that I no longer have that as a fall back plan on the really bad days. I have a high pain tolerance so it isn't often that I take anything at all, but last night was one of those intolerable ones.

I live in one of those areas where Pain Management centers don't have a lot of understanding with people who come in with a "history" and know what they can and can't take. They automatically assume you are trying to get pain meds for a "not-so-above board" reason. Doctors here are about the same.

I hope it gets better for you and me both and we will find ways to cope without gasoline. The idea that I could make it worse on myself. Yikes!

KyleP2112 · 08-27-2012, 10:46 AM

Hi Becky.
I also have bad chronic neurogenic pain that (when it's bad) keeps me awake, makes good days not so good, and basically wears me down and makes me miserable. I value the days when my pain seems to calm down...the problem, the pain may be severe again with little rhyme or reason the next day.
For you, I and many others out there with terrible neurogenic pain, hopefully new meds/new therapies will give us relief...
--------------------
Kyle, C4/5, 17 yrs post injury.

CapnGimp · 10-24-2012, 07:49 PM

Quote:

Originally Posted by thehipcrip

Just curious and way OT: have you explored taking part in any of the class-action lawsuits about problems arising from the use of surgical mesh?

EXACTLY what I was thinking, that's the root of the problem, mesh.

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08-22-2012, 11:41 PM	#31
Bonnette Senior Member Join Date: Dec 2008 Location: Colorado Posts: 2,604	Oh, wow, Becky, that is really tough. Fingers crossed that you will find some way to deal with all of this - which should include decent medical help!

08-24-2012, 10:39 AM	#32
CubGuyMS Junior Member Join Date: Jul 2012 Location: North Mississippi Posts: 13	Becky, I sit here this morning and know exactly how you feel. I have been awake most of the night, despite a 10mg Ambien (Zolpidem)...Sometime before bed last night I had a pain in my lower right leg similar to as if someone had clobbered me with a brickbat across the bone. People assume because I am a T-3 paraplegic that I don't feel any type of pain and I wish I knew how to communicate to them that is further from the truth that they could ever realize. I don't often have pain (knock on wood) but when I do, it makes up for it in buckets. I used to take Gabapentin but at the highest dose they can give you, it was slowly poisoning me. I switched to Lyrica and then all I wanted to do was lay around. I like to consider myself relatively high-functioning (I drive independently and many other things) but that medication made me where I couldn't even function. I have pain meds from a previous hospital visit that I saved in the fridge but cringe at the day that I no longer have that as a fall back plan on the really bad days. I have a high pain tolerance so it isn't often that I take anything at all, but last night was one of those intolerable ones. I live in one of those areas where Pain Management centers don't have a lot of understanding with people who come in with a "history" and know what they can and can't take. They automatically assume you are trying to get pain meds for a "not-so-above board" reason. Doctors here are about the same. I hope it gets better for you and me both and we will find ways to cope without gasoline. The idea that I could make it worse on myself. Yikes!

08-27-2012, 10:46 AM	#33
KyleP2112 Senior Member Join Date: Jun 2008 Location: Waterford,NY Posts: 413	Hi Becky. I also have bad chronic neurogenic pain that (when it's bad) keeps me awake, makes good days not so good, and basically wears me down and makes me miserable. I value the days when my pain seems to calm down...the problem, the pain may be severe again with little rhyme or reason the next day. For you, I and many others out there with terrible neurogenic pain, hopefully new meds/new therapies will give us relief... -------------------- Kyle, C4/5, 17 yrs post injury.