Benzene Exposure & Paralysis - Page 3

Sue Pendleton · 07-07-2012, 08:46 PM

Your numbness went from the feet up? Or just generalized leg numbness all over? Any pain? I was hit by extreme pain in both elbows for about 10 minutes that seemed like hours and then it stopped and numbness and paralysis starting in my lower arms then to chest and before losing my ability to breath my left foot still moved some.

TM from PA · 07-08-2012, 08:12 PM

hi Sue, Istarted out feeling like my legs wewe asleep started slapping them and went for a cup of coffee. went on the computer got up and zap a sharp pain in lower back. worst pain i ever felt , lasted about a second and with in a hr. parelized toes to waist where that pain was. felt like it went up . i still have pain there feels like an bad injury there. you said your pain lasted 10 minutes then you were loseing your ability to breathe that must of been so scary.

Sue Pendleton · 07-08-2012, 08:45 PM

From first hit of pain to being intuated was probably two hours. It was a total of 3 hours before I was in the ICU of the hospital I would stay in. But I was in the second hospital when I started having problems breathing so the scariest pat was what my husband should tell my Dad because he would need to be called.
Have you had a follow up with a neurologist elsewhere that confirmed TM?

TM from PA · 07-09-2012, 04:52 PM

hi Sue, Idid see a another nuro. they were in the same office. they couldnt agree, 1 said spinel stroke the other said unkown cause. thats why i thought when i read about benzene mabe bcause i worked with paints and inks. every one i worked with didnt think so cause the area is vented.

Sue Pendleton · 07-10-2012, 01:37 AM

You might want to join the Transverse Myelitis Association. It's free just Google it. TM should be testable especially at a place like Thomas Jefferson Rehab.

TM from PA · 07-10-2012, 10:09 AM

hi Sue, I belong to that site...... i got so much more imformation reading on this site. Dr Young is amazing, i had tm from t11 to tip of the conus. no on knew what conus was or could explain any thing about it until this site. every one was so nice but didnt know different things on what to do when i had to know about my bowels. I am doing better now but still learning . didnt know about tm being testable. i am 3 years in now. O luv the nurses here. thanks Sue for replying to my posts Marge

07-07-2012, 08:46 PM	#21
Sue Pendleton Moderator Join Date: Jul 2001 Location: Wisconsin USA Posts: 9,172	Your numbness went from the feet up? Or just generalized leg numbness all over? Any pain? I was hit by extreme pain in both elbows for about 10 minutes that seemed like hours and then it stopped and numbness and paralysis starting in my lower arms then to chest and before losing my ability to breath my left foot still moved some. __________________ Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

07-08-2012, 08:45 PM	#23
Sue Pendleton Moderator Join Date: Jul 2001 Location: Wisconsin USA Posts: 9,172	From first hit of pain to being intuated was probably two hours. It was a total of 3 hours before I was in the ICU of the hospital I would stay in. But I was in the second hospital when I started having problems breathing so the scariest pat was what my husband should tell my Dad because he would need to be called. Have you had a follow up with a neurologist elsewhere that confirmed TM? __________________ Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

07-10-2012, 01:37 AM	#25
Sue Pendleton Moderator Join Date: Jul 2001 Location: Wisconsin USA Posts: 9,172	You might want to join the Transverse Myelitis Association. It's free just Google it. TM should be testable especially at a place like Thomas Jefferson Rehab. __________________ Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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07-08-2012, 08:12 PM	#22
TM from PA Member Join Date: May 2012 Location: around an hr from Philadelphia Posts: 59	hi Sue, Istarted out feeling like my legs wewe asleep started slapping them and went for a cup of coffee. went on the computer got up and zap a sharp pain in lower back. worst pain i ever felt , lasted about a second and with in a hr. parelized toes to waist where that pain was. felt like it went up . i still have pain there feels like an bad injury there. you said your pain lasted 10 minutes then you were loseing your ability to breathe that must of been so scary.

07-09-2012, 04:52 PM	#24
TM from PA Member Join Date: May 2012 Location: around an hr from Philadelphia Posts: 59	hi Sue, Idid see a another nuro. they were in the same office. they couldnt agree, 1 said spinel stroke the other said unkown cause. thats why i thought when i read about benzene mabe bcause i worked with paints and inks. every one i worked with didnt think so cause the area is vented.

07-10-2012, 10:09 AM	#26
TM from PA Member Join Date: May 2012 Location: around an hr from Philadelphia Posts: 59	hi Sue, I belong to that site...... i got so much more imformation reading on this site. Dr Young is amazing, i had tm from t11 to tip of the conus. no on knew what conus was or could explain any thing about it until this site. every one was so nice but didnt know different things on what to do when i had to know about my bowels. I am doing better now but still learning . didnt know about tm being testable. i am 3 years in now. O luv the nurses here. thanks Sue for replying to my posts Marge