|02-26-2008, 11:23 AM||#1|
Join Date: Feb 2008
Recognizing malfunctions with baclofen pumps?
I don' know if this is the right place to post this, if it's in wrong place, hopefully one of the moderators will move it for me.
My husband will be having a baclofen pump installed soon for severe spasticity from primary progressive MS, and I'm his primary caregiver. (We have an aide 2 hours each morning to get him up and dressed.)
I've been reading that caregivers need to look out for the side effects of an overdose or underdose. I'm wondering how often there's really a problem, and how worried I need to be about this. His symptoms fluctuate to begin with..I'm not sure how I'd be able to tell if there's a change because of a pump malfunction.
(As background, he was semi-ambulatory for a little while and could do slide transfers. Then he was a full-time power wheelchair user but doing pivot transfers. Two years ago he had a particularly bad UTI, and has not been able to stand at all since then. We use a hoyer for all transfers. We're hoping that he'll get enough relief from the pump to at least be able to stand and do pivot transfers again.)
I'd love to get some feedback from people with baclofen pumps and/or their caregivers about the "malfunction of pump" issue...or any other advice or info you can give about the pump.
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