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Funding, Legislation, & Advocacy Funding and fundraising, legislation, and advocacy

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Old 07-09-2006, 05:59 PM   #1
wormie
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Hollow best wishes to www.stepnow .org

Have you ever heard Dr. Young say we must pick up the slack and advocate so he can work in his lab?

There is an organization called stepnow ( www.stepnow.org )with a brilliant administrator and several members who are 1000% cure fighters.

Since its arrival, it seemed there were 2 diehard Dr. Young groupies who posted there.

Susan maus and Steven Edwards.

They were there in the beginning only, and have not returned.

Were they just spying?

Edwards was reported to have a half hearted envolvement and never came back.

Susan was pissed about this and refused to be of service unless...........Here is her post: yes, on stepnow

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Posted: Thu May 11, 2006 12:01 pmbarbara wrote:Bob wrote:
Whatever. I am not happy with the results, not much publicity at all. I am also upset about leading up to the rally, the strong distaste that was expressed for other people's views. I also feel it was a limited edition, meaning carecure and CR org. I didn't like that, and find it self serving. And the sad thing about it, even though they promoted non-controversial, if esc hr810 passes watch them take credit for it. They will tell you they were always for it. I believe successfull advocacy must be open and not designed to enhance one org or one scientist. And if stepnow wants to be in the in crowd count me out. I am looking to represent sci victims, not orgs or a cult like figure. We don't need another carecure. Maybe that is why mike dicipeo does it on his own. Do you want to feel good and hear praise and be used, or to you want to be cured? If stepnow is going to be just another org that gets sucked in count me out. I want radical advocacy. Nothing insane, but hey we ain't eleanor roosevelt either, to get our message across we need to be a little adventurous and provacative. We need to get noticed. The rest will fall in place. It is time for industry to stop using us for self benefit. We need to be heard. So far we have done a poor job, and we get sucked in by big guys.

Hi Bob,
Some of us here know what you are referring to and there will be some who don't - not everyone came to stepnow through carecure. I don't really want to labour over what does or doesn't happen there, I don't think it is going to get us anywhere, do you?
Stepnow is here because it does want to do things differently - it is about taking action, and it is about involving as broad a base as possible worldwide. We are in this together, and I mean together. OK I started the site along with Leif, and I will administer it for the time being. I do have my own strong feelings about the nature of the actions we could take, and I aim to express them, but I also want all other members to do the same. We will arrive at a consensus most of the time, but there may be occasions when someone has to take the bull by the horns and make a move first.

I can understand why Mike diCipeo does his own thing - in many ways it could be a lot simpler to organize and control - but more individuals doing their own thing is not what is needed. What is needed is global grassroots activism - we have to be seen as a force, not as isolated individuals. How radical a force will have to be determined as we go along and as ideas come up.
My background is the arts, so I tend to channel my ideas (radical or not) into more visual avenues - I believe in the power of the image and want to find a powerful way to use it.
I am hoping there are others here who have different perspectives who will offer up other interpretations for actions. In that way things can stay dynamic, lively.

So don't count stepnow out just yet Bob. Hang in, maybe be a little patient while we get ourselves lined up for the fight!

Barbara

Hi Barabara,

I visited StepNow today because I believe in what you're trying to do and want to support your efforts. Plus, I promised Leif I would do my best to get involved with Stepnow post the W2W Symposium and Rally. I now see the same disgusting diatribe by Bob -- bashing other people's efforts through unfounded accusations and innuendos. As a result, I will no longer be visiting this site. However, if you feel I can be of value and/or if I can be of any assistance, please contact me directly: sue@unite2fightparalysis.org.

Thank you,
Susan

Too often you get those congratulations without real support.

Does SCI Cure Advocacy on CareCure have to be approved and for the betterment of Wise in order to be an approved advocacy site?


Susan, Your love for Wise is commendable. I wish I could be as happy as you loving a researcher, but I rather walk and climax, shit and pee normally.


The CareCure Forum has been less than receptive to Stepnow Advocacy. That Sucks.

Is CareCure only receptive to Certain advocacy?
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Old 07-09-2006, 06:10 PM   #2
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"Wormie" It fits you, BB
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Old 07-09-2006, 06:12 PM   #3
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Quote:
Originally Posted by DIGGER
"Wormie" It fits you, BB
I am not Bigbob, but I don't mind at all being confused for him.
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Old 07-09-2006, 06:22 PM   #4
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Maybe Bob has a clone.

Nobody can spy on a public website. Duhhhhh.
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Old 07-09-2006, 06:32 PM   #5
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stand together to end paralysis now! http://www.stepnow.org appears to be the beginning of a global advocacy organization with tremendous potential.
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Old 07-09-2006, 07:08 PM   #6
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Another Steven Edwards groupie, I see.

Seriously, though.

I apologize for having a weak diaphragm.

I apologize for getting a respiratory infection that kicked my butt for three weeks after the Rally.

I apologize for the fact that I'm currently working on a story focusing on Dr. McDonald's NTT Project.

I apologize for ever doing an interview with Dr. Okarma -- especially one that got Slashdotted.

I apologize for not having ten working fingers.

I apologize for not having 36 hours in a day.

I apologize for seeing reality.

I apologize for not agreeing with sending test tubes to politicians.

I apologize for not sticking around StepNOW to vehemently argue against the idea.

I apologize for not polluting StepNOW's forums with messages that would not be welcome.

Wormie, most of all, I apologize for failing you.

StepNOW has potential. I hope it works out well.
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Old 07-09-2006, 07:13 PM   #7
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My hats off to you Mr. Edwards

You are such a psuedo intellect it is funny.

When Hans was on 60 minutes you were so taken by trying to change the fact that he used ESC to derive something to remylinate the spinal cord.

Instead of being happy, you were so upset it might have been seen as a success for ESC.
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Old 07-09-2006, 07:21 PM   #8
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Quote:
Originally Posted by wormie
You are such a psuedo intellect it is funny.
I do wish I had done more with my intellect. I don't know what happened, though.

Quote:
When Hans was on 60 minutes you were so taken by trying to change the fact that he used ESC to derive something to remylinate the spinal cord.
Trying to change history, I see.

I was upset that they said ESCs remyelinated the injured axons instead of pointing out that the ESCs were used to derive a cell type that remyelinated axons. I was upset because their failure to clarify perpetuated the myth among ESC opponents that researchers were planning on transplanting ESCs into humans, which would cause tumors. (Which, btw, Okarma agreed with me on.)

Would you mind telling us a bit about yourself?
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Old 07-09-2006, 10:05 PM   #9
wormie
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Quote:
Originally Posted by Steven Edwards
I do wish I had done more with my intellect. I don't know what happened, though.

Trying to change history, I see.

I was upset that they said ESCs remyelinated the injured axons instead of pointing out that the ESCs were used to derive a cell type that remyelinated axons. I was upset because their failure to clarify perpetuated the myth among ESC opponents that researchers were planning on transplanting ESCs into humans, which would cause tumors. (Which, btw, Okarma agreed with me on.)

Would you mind telling us a bit about yourself?
So what did remyelinate the injured axons? Lithium? Condroitenase? ASC's?

Are you so hung up that whenever you have a chance to put anything derived from ESC research it is your duty to fight it? And, may I ask for what purpose?

A bit about me? Here goes-----Not religious, don't believe there isn't a god and dont believe there is. But there might be several gods. Some are for ESC and some are against it. That in itself says it is not the duty of any ONE Religion to decide if ESC is right or wrong.

Being you left me with a question I have one for you and Dr. Caring Wise. The tireless one. The Esquire's pic for best and brightest, that led the rally. The one that doesn't sip drinks and smoke by the pool. How would CareCure react to ESC if the tireless one worked with ESC instead of UBC? Would CareCure then be a wholesome pro-ESC website? Would Edwards be stifiled? If not I would assume there is great fairness here. If that was true then ESC activists shouldn't have been stifiled either, when they were pointing out the harm of using terminology like NON CONTROVERSIAL>>>>>>>>>>>>>>>>>>>>>

So I conclude this is a biased house.
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Old 07-09-2006, 10:21 PM   #10
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I am not Bigbob, but I don't mind at all being confused for him.
"family member?"
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