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Old 09-15-2012, 10:29 AM   #1
lunasicc42
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this is an amazing site, very in-depth about jerry silvers research

happy happy joy joy!!
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Old 09-15-2012, 12:13 PM   #2
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Very interesting article. Thanks for sharing.
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Old 09-16-2012, 01:29 AM   #3
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Nice, thanks for the link. Very informative article about Dr. Silvers research
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Old 09-16-2012, 10:42 AM   #4
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Hey,

Well done page.

It does a good job of informing those not too aware with SCI, although it bring no new information to the exciting info we got at the last W2W.

I was however a little surprised (disappointed) to see that there is a video in there of a girl who (once again) tries to convince us that life with SCI is not that bad. C'mon!!!

The girl seems intelligent (has degrees from Harvard and all) but her claim that her life "... is not worse than what it has to be (whatever that is supposed to mean) in a physical matter" Oh yeah? Honestly, it's hard for me to see a more diffuclt life "in a physical sense"than being high-level quadraplegicn where you can't move anything except your head and need assistance for breathing and speaking. With all due respect, this claim is absolutely non-sense. What is it with this obsession of media depicting how life of SCI people is not so bad after all. It honestly makes me sick. Why don't they show the silent majority who suffer greatly and have no words to express their dispair as to how they live in this punishment. Maybe a cure would come faster then.

Don't get me wrong, I think what she has done is very courageous and impressive but making statements like this one is just pushing it too far.
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Old 09-16-2012, 09:25 PM   #5
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Originally Posted by tweez View Post
Hey,

Well done page.

It does a good job of informing those not too aware with SCI, although it bring no new information to the exciting info we got at the last W2W.

I was however a little surprised (disappointed) to see that there is a video in there of a girl who (once again) tries to convince us that life with SCI is not that bad. C'mon!!!

The girl seems intelligent (has degrees from Harvard and all) but her claim that her life "... is not worse than what it has to be (whatever that is supposed to mean) in a physical matter" Oh yeah? Honestly, it's hard for me to see a more diffuclt life "in a physical sense"than being high-level quadraplegicn where you can't move anything except your head and need assistance for breathing and speaking. With all due respect, this claim is absolutely non-sense. What is it with this obsession of media depicting how life of SCI people is not so bad after all. It honestly makes me sick. Why don't they show the silent majority who suffer greatly and have no words to express their dispair as to how they live in this punishment. Maybe a cure would come faster then.

Don't get me wrong, I think what she has done is very courageous and impressive but making statements like this one is just pushing it too far.
Yeah I also agree that such statements are ludicrous and don't help to educate the none injured public.
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Old 09-17-2012, 05:17 PM   #6
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I totaly agree, with you guys
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Old 09-18-2012, 03:48 PM   #7
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Don't get me wrong, I think what she has done is very courageous and impressive but making statements like this one is just pushing it too far.
I think perhaps you misunderstand.

In November of 2006, Brooke ran for New York State Senate, focusing her attention on the issues of health care, education, and funding for stem cell research. Her campaign was endorsed by the New York Times, and was highlighted on the TODAY Show. Just as Brooke had overcome challenges in her life, she sought to help the state of New York overcome its challenges. Brooke based her campaign on restoring a sense of hope to politics, with the belief that government has an important and problem-solving role in our lives.
Since the field of human embryonic stem cell research has been in existence, Brooke has been a steadfast advocate and supporter of this promising work. Appearing on Larry King Live in 2004, Brooke spoke at length about the importance of public funding for embryonic stem cell research. During her 2006 state Senate campaign, Brooke campaigned extensively on the stem cell funding issue, holding press conferences and public events with gubernatorial candidate Eliot Spitzer and lieutenant gubernatorial candidate, David Paterson. In 2007, Brooke delivered the keynote address at the World Stem Cell Summit in Boston, MA, before an audience of leading stem cell scientists, policymakers, advocates, and pharmaceutical representatives.
Brooke has continued her work as stem cell research advocate and public speaker by founding a nonprofit organization, The Brooke Ellison Project, which works to further this cause. Through the work of this organization, Brooke has conducted many speeches and community forums on the basics of stem cell research and its promise for the future of medicine. Speeches and public events include presentations given at Harvard University, University of Pennsylvania, Stony Brook University, Rutgers University, Amherst College, The New School, SUNY Farmingdale, and Suffolk County Community College. Working with director, Jimmy Siegel from A-Political Productions, The Brooke Ellison Project has produced a documentary both about the research and the lives it stands to benefit. This documentary film has been screened all across the country, and was the recipient of the Humanitarian Award in the Long Island Film Festival, and The “Mass Impact” Award in the Boston Film Festival.
Brooke’s work as a stem cell research advocate precipitated her involvement in a public forum event conducted by the Harvard Stem Cell Institute, and several similar events conducted by the New York Stem Cell Foundation. It has been as a result of this work that Brooke was inducted into the Suffolk County Women’s Hall Of Fame, was presented with the Inspiration Award at the 2008 World Stem Cell Summit, and was announced as a New York State Woman of Distinction. In May of 2011, Brooke will receive an honorary doctorate from Rutgers University as a result of the work she has done in this field. During the 2008 presidential election, Brooke was approached by the Obama campaign to offer input on recommendations for a federal stem cell policy. In 2010, in response to the prohibitive court ruling by Judge Royce Lamberth overturning President Obama’s stem cell policy, Brooke held a press conference with Congressman Steve Israel at Cold Spring Harbor Laboratories on the importance of congressional action. Brooke has written and been interviewed extensively on this issue, appearing on News 12, NBC News, WPIX, and Channel 55, and opinion pieces running in Newsday, The Seattle Post-Intelligencer, the Philadelphia Inquirer, and the DailyKos.
In addition to her professional pursuits in the area of stem cell research, Brooke has received two gubernatorial appointments in New York State in relation to it. In April of 2007, Brooke was appointed to the New York State Spinal Cord Injury Research Board, which provides grants for spinal cord injury research. In August of that same year, Brooke was appointed to serve on the Ethics Committee of the Empire State Stem Cell Research Board, which oversees New York’s $600 million stem cell research initiative. Through both of these appointments Brooke hopes to help advance a cause she has long worked to promote.
Now a Ph.D. student in sociology at Stony Brook University, Brooke has focused attention on the social influence on medicine, science, and bioethics. She is currently completing her dissertation on the social shaping of science policy across international contexts, using the evolution of stem cell research policy as an exemplifying case study. In addition, Brooke is on faculty at Stony Brook University’s Center for Compassion Care, Medical Humanities, and Bioethics, teaching a course, called The Ethics of Hope, to second-year medical students. Brooke also teaches a course, entitled Stem Cells and Society, at Stony Brook’s School of Health Technology and Management, which addresses the science, legislation, ethics, and social implications of stem cell research.
The details of Brooke’s life have been widely covered in such publications as The New York Times, People Magazine, USA Today, Newsday, Biography Magazine, and The International Herald Tribune, as well as, such programs as Entertainment Tonight, Access Hollywood, The Today Show, Good Morning America, The Early Show, and Larry King Live. In each of these appearances, Brooke has expressed her desire to have an impact on the world.

http://www.brookeellison.com/

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