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| Care Health and wellness for those with spinal cord injury and related disabilities |
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#11 |
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Senior Member
Join Date: May 2006
Location: Oberlin, Ohio
Posts: 749
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Uncalled for.
This is absolutely and totally uncalled for. Use a shower commode chair with a bucket below. So degrading.
Ti
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"We must overcome difficulties rather than being overcome by difficulties." |
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#12 |
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Senior Member
Join Date: Feb 2007
Location: From a small cabin in the big woods of The Allegheny National Forest, PA
Posts: 1,245
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I just found out the Cleveland VA has a P.I.E. Machine. Next trip should be a lot different.
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C 5/6 Comp. No Tri's or hand function. Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat. Teddy Roosevelt |
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#13 |
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Senior Member
Join Date: Mar 2006
Location: florida
Posts: 5,464
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#14 |
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Member
Join Date: Nov 2006
Location: ottawa canada
Posts: 66
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I feel your pain my friend.
When I had one done and found out what prep work was I simply told the doc that there was no way I was going through that. We agreed to evacuate things one day prior to the scope. That morning I brought in a small flat screen TV in to the bathroom, hooked up my PS3 and started the long day ahead, I spent 9 hours on the bowl. By far one of the most brutal experiences of my disability life....the worse was getting C-Diff after a round of meds That experience drained the life out of me...it was like being run over twice by a truck. |
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#15 |
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Moderator
Join Date: Jul 2001
Location: Wisconsin USA
Posts: 9,114
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I got lucky with a young new nurse during my first with a 23 hour stay. My GI doc prescribed 5 bottles of mag citrate and an IV to keep my electrolytes normal and my blood pressure decent. As soon as my stomach began gurgling after the 3rd bottle the RN was there right away to help me transfer to a bedside commode. I stayed there until I finished the 4th bottle and things became totally liquid. Then back to the bed with a chux on it. Then we did a little troubleshooting knowing what the rest of the night would be like and that those commodes are not good on skin. She went to talk to a more experienced nurse and we decided on taping a colon collection bage to my butt. I could sleep on my side and the RN came in to check the tape occasionally and my BP. This only works once things turn liquid. I also understand some people with kidney problems don't do well with the magnesium citrate and so get the awful GoLytely. I've had 3 and due for my 4th colonoscopy this Fall. One failed miserably when my GI doc opened his own endoscopic center and couldn't do 23 hour stays. His clean out routine did not work for a good result and so we'll be doing the 23 hour stay as my new PCP will soon find out for this one.
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Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911. |
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#16 |
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Senior Member
Join Date: Jan 2011
Location: NJ
Posts: 246
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I am scheduled to get it done in 2 weeks. The dr. gave me a page of instruction. Basically, no food after sat night and drink water the entire sunday. Take miralax twice on sunday and come in on monday. He didn't mention anything about golytely. May be i should call back and ask about the procedure.
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T3 Complete to my alarm: "quiet b*tch! I know what I have to do every two hr. Argggggg!!!!"
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#17 | |
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Senior Member
Join Date: Apr 2011
Location: San Diego, CA, USA
Posts: 307
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Quote:
Unless you can get to a PIE machine, it is apparently worth a shot. I personally will never undergo 2 gallons of Go Litely again. And for it to be in use in a VA SCI center today is beyond my words to comment on in public.
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T4 complete, 150 ft fall, 1966. Completely fused hips, partially fused knees and spine, heterotopic ossification. Unsuccessful DREZ surgery about 1990. Successful bladder augmentation using small intestine about 1992. Normal SCI IC UTI problems culminating in a hospital stay in 2001. No antibiotics or doctor visits for UTI since 2001: d-mannose. Your mileage may vary. |
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#18 | |
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Moderator
Join Date: Jul 2001
Location: Wisconsin USA
Posts: 9,114
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Quote:
__________________
Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911. |
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#19 |
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Moderator
Join Date: Jul 2009
Location: Tx
Posts: 3,911
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What a nightmare I do not even like thinking of lying on my side trying to rush off to the commode > it is degrading , Just me thinking of drinking a gallon of golitly scares the Poo out of me
Like healthy ol warm prune juice is not enough !!! My Friend told me recently after he just had that procedure his insides do not feel the same I told him because you were so full of ***t no pun intended He has problems BTw the Dr lost the polyp,s and other samples and then Wanted to perform the procedure again !!! How do you lose a Polyp ? My friend said No He will go to the other place it is only over 100 miles from him ...some VA He has choices ... What scares me is the fact I dont have choices In my case Scary thing is there is only one place ( hospital ) to get the procedure I am not looking forward to my round ....Same place where his polyp got lost ... GL
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http://www.scinetusa.org/http://www.justadollarplease.org/ http://www.scibracelets.com/ Embrace eachother and remember the good times
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#20 |
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Senior Member
Join Date: May 2002
Location: WA
Posts: 171
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These stories remind me why I take care of myself at home, and avoid hospitals.
I did my prep at home. Started on a light diet 3 days ahead of the prep. Soups broths, etc. Bought those square 'chucks' and did my deed on that then had helper clean me up for next round... etc etc while drinking that stuff. Started on a Sunday about 1pm. I think it was like 6 hours total and i was done. Had 1 or two eruptions during night..which i didnt have helper around for.. so definitely will next time. by next morning all was done. Ya it sucks, but shouldn't be that horrible. One key is eating light before. Oh.. and I drank 7up periodically with that stuff to gag it down.
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www.myquadriplegia.com |
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