Pitt to lead spinal cord injury study

[manouli]

If our goverment had funded spinal cord injury cure many years ago, by now we will not have this problem. We cost million and million every year.


Pitt to lead spinal cord injury study
Pittsburgh Business Times by Kris B. Mamula, Reporter
Date: Friday, July 27, 2012, 9:03am EDT

The University of Pittsburgh and health care giant University of Pittsburgh Medical Center will share $1.5 million of a $4.5 million grant to lead a five-year, multi-site project that is designed to help people with spinal cord injuries.

The study will use web-based training and group sessions to improve the skills of wheelchair users. The research will involve more than 500 participants at four sites, making it one of the largest studies of its kind, according to UPMC.

read...

http://www.bizjournals.com/pittsburg...dustry+News%29

[Leo]

1.5 million

The study will use web-based training and group sessions to improve the skills of wheelchair users.

who's priorities are screwed up here

[fulltree]

I would like to offer anyone who may need to go to pitt access to my Apartment i am 3 hours from pitt and have 2 sleeping recliners that are also lift up chairs of course if you have able-bodied with you an air mattress for them can be used on the floor if its more than 1 person with you, my apartment is off douse accessible with a ramp grab rails wide doorways and the Shower is roll is i have a basic plastic four legged chair so if you require something more you should bring it with you , i also have the commode toilet raise on the toilet with fixed arms. you also have full use of my fridge freezer and kitchen to prepare food and the wireless entertainment system including 55" 3 D HDTV with 3 D Blu Ray an Xbox, netflix and Broadband wireless access to the Internet
for anything tou may need to do from write to grandma to dowload a from iTunes, all for the lo low price of giving me a call and telling me when you are coming, I think thats fair?

[StemCells&AtomBombs]

ONE POINT FIVE MILLION to improve wheelchair skills.

Just to put this in perspective. The Roman Reed law to cure paralysis that many of us are supporting in California (don't forget to send
your emails in support www.bit.ly/RomanReed) reckoned that if this law had passed last year on one dollar per moving vehicle violation, it would have taken in 3 million, and this money is earmarked for paralysis cure research).

1.5 million sounds like a horrific waste of cash. How in the heck can this cost 1.5 million. Are they giving away gold plated wheelchairs to the participants? I'm sure I could run this for a few cases of beer. Sounds like someone has a lucrative business in keeping us in these chairs.

I'll raise the amount going to rick hansen in a different thread.

[khmorgan]

"Pitt to lead spinal cod injury study"

This is another example of facts being filtered through a journalist. Farther down in the article, it says:

“We need an effective, low-cost way to provide people with training that maximizes their independence – this study tackles that problem.”

So, this isn't a spinal cord injury study, it is an independence study.

This might be worth $1.5M.

Note: it also says:

Funding for the research came from Washington, D.C.-based National Institute for Disability and Rehabilitation Research, one of three components of the Office of Special Education and Rehabilitative Services at the federal Department of Education.

So, the $1.5M was not eligible for real SCI research.

[Leo]

Originally Posted by khmorgan

"Pitt to lead spinal cod injury study"

This is another example of facts being filtered through a journalist. Farther down in the article, it says:

“We need an effective, low-cost way to provide people with training that maximizes their independence – this study tackles that problem.”

So, this isn't a spinal cord injury study, it is an independence study.

This might be worth $1.5M.

Note: it also says:

Funding for the research came from Washington, D.C.-based National Institute for Disability and Rehabilitation Research, one of three components of the Office of Special Education and Rehabilitative Services at the federal Department of Education.

So, the $1.5M was not eligible for real SCI research.

thanks khmorgan,

my point is where does this research fall in the priorites of the sci community

in the begining it was federal money


http://www.chronicle.pitt.edu/media/...nalinjury.html

but now i wonder in original post are we talking about 4.5 million and the other centers getting thier split from it.

[Leo]

I'll go a bit off topic here,

I'd like to create a poll of us here on where peoples priorities are NOW.

Of cource the cure forum is a bias place to put it and we can fix that.

I have only created one poll on here so i need help.

since i'm pretty sure the wording of a poll question is as important as content let's work at being as fair as possible.

Question 1, Do you think care and cure are being funded in appropriate proportions

Question 2, Do you think it's time to shift funds some from care to cure

[Fly_Pelican_Fly]

Until policy makers realise that biological Cure is the ultimate form of Quality of Life, it will always be easier to get significantly large grants for some of these non-Cure related studies. A top-down understanding and acknowledgement of Cure being the ultimate form of QOL is important. After that, the rest will fall into place. How can that be achieved?

[Leo]

Originally Posted by Fly_Pelican_Fly

Until policy makers realise that biological Cure is the ultimate form of Quality of Life, it will always be easier to get significantly large grants for some of these non-Cure related studies. A top-down understanding and acknowledgement of Cure being the ultimate form of QOL is important. After that, the rest will fall into place. How can that be achieved?

I agree 95 percent

The policy makers though answer to local input or what's best for them financially. imo

we need to educate local state groups of our thinking. i serve on 2 state committees that are use to hearing me talk about cure and many are open minded and some are helpful.

if we got this poll done i'd be glad to show it to them, it's reversing 30 years of past thinking.

i am not a big facebook person but just discovered that many agenceies that give these grants have fb sites, a more dirrect and more visable way of getting our opinion out there.

so do those first 2 questions sound fair

any other ideas for questions

manouli mentioned the money

wise said for one person to do a clinical trial would run 125k

i'm not good at math, how many people would 4.5 million do