am very afraid, nurses please help - Page 8

teena · 06-20-2012, 03:39 AM

Thinking of you, Bette!

cass · 06-26-2012, 11:15 PM

just an update. biopsy of bladder was normal. so now i'm going for pelvic ultrasound. pain still there, still is bladder pain to me. vesicare didn't change anything from detrol. still taking pyridium to control pain and damn sick of it.

LindaT · 06-27-2012, 12:26 AM

Good to hear the bladder biopsy was normal. When are you having the ultrasound?

cass · 06-27-2012, 01:24 AM

friday, i think. had renal us already before cystoscopy. this will look at vag, uterus etc. i guess. i am just wanting relief and to know what's wrong.

Sue Pendleton · 06-27-2012, 01:28 AM

This sounds like my Aunt. Out of nowhere she suddenly had uti symptoms and at her age, 70 and AB, she had one before this in her 30s. She was able to get into her OB/GYN right away and an ultrasound followed by a CT found what would be a BENIGN but lemon sized ovarian cyst. The surgery was Christmas Eve but she was home feeling much better the 27th after laprascopic removal. This was about 6 years ago. Her doc and she both figured uti was not probable even though that was her main complaints. I wouldn't worry. Anything pressing on the bladder at all can cause a ton of pain. Might try swapping out foleys more often too if you can until a cause is found.
Healing thoughts your way, Cass.

cass · 06-27-2012, 01:57 AM

Quote:

Originally Posted by Sue Pendleton

This sounds like my Aunt. Out of nowhere she suddenly had uti symptoms and at her age, 70 and AB, she had one before this in her 30s. She was able to get into her OB/GYN right away and an ultrasound followed by a CT found what would be a BENIGN but lemon sized ovarian cyst. The surgery was Christmas Eve but she was home feeling much better the 27th after laprascopic removal. This was about 6 years ago. Her doc and she both figured uti was not probable even though that was her main complaints. I wouldn't worry. Anything pressing on the bladder at all can cause a ton of pain. Might try swapping out foleys more often too if you can until a cause is found.
Healing thoughts your way, Cass.

thank you so much, sue! it does feel like pressure on my bladder and foleys have been swapped. and i did have uti, but pain never went away. this is weird, new and scary but i'm going for every test i can. it hurts.

teena · 06-29-2012, 08:54 AM

Still sending prayers my friend...

cass · 07-04-2012, 09:09 PM

just another update. trans vag ultrasound showed thickening of walls but here's the part i don't understand: they couldn't see ovaries...why? uro has put me on vesicare, uvibil and a 14 day course of augmentin and set up gyn appt 8/1. i'm talking to my pcp about the ovary thing tomorrow. radiologist blamed it on my quadriplegia making the trans vag too hard to do. i don't know why. i was on the table, flat on my back.

geez, never had so much trouble.

pain persists.

SoFla · 07-04-2012, 11:01 PM

The first question I would ask is, where the heck did my overies go? Then I might ask, how could the disappearance of my overies cause all this pain? OY!!! I hope you get some answers soon.

cass · 07-05-2012, 09:19 PM

OMG got a copy of cystoscopy charges today...$11,000!! bet medicare/aetna supplemental won't come close. and i'm supposed to do this annually??

06-27-2012, 01:28 AM	#75
Sue Pendleton Moderator Join Date: Jul 2001 Location: Wisconsin USA Posts: 9,172	This sounds like my Aunt. Out of nowhere she suddenly had uti symptoms and at her age, 70 and AB, she had one before this in her 30s. She was able to get into her OB/GYN right away and an ultrasound followed by a CT found what would be a BENIGN but lemon sized ovarian cyst. The surgery was Christmas Eve but she was home feeling much better the 27th after laprascopic removal. This was about 6 years ago. Her doc and she both figured uti was not probable even though that was her main complaints. I wouldn't worry. Anything pressing on the bladder at all can cause a ton of pain. Might try swapping out foleys more often too if you can until a cause is found. Healing thoughts your way, Cass. __________________ Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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06-20-2012, 03:39 AM	#71
teena Senior Member Join Date: Oct 2001 Posts: 3,333	Thinking of you, Bette!

06-26-2012, 11:15 PM	#72
cass Senior Member Join Date: Jul 2001 Location: WA Posts: 5,722	just an update. biopsy of bladder was normal. so now i'm going for pelvic ultrasound. pain still there, still is bladder pain to me. vesicare didn't change anything from detrol. still taking pyridium to control pain and damn sick of it.

06-27-2012, 12:26 AM	#73
LindaT Senior Member Join Date: Jan 2010 Location: MN Posts: 7,808	Good to hear the bladder biopsy was normal. When are you having the ultrasound?

06-27-2012, 01:24 AM	#74
cass Senior Member Join Date: Jul 2001 Location: WA Posts: 5,722	friday, i think. had renal us already before cystoscopy. this will look at vag, uterus etc. i guess. i am just wanting relief and to know what's wrong.

06-29-2012, 08:54 AM	#77
teena Senior Member Join Date: Oct 2001 Posts: 3,333	Still sending prayers my friend...

07-04-2012, 09:09 PM	#78
cass Senior Member Join Date: Jul 2001 Location: WA Posts: 5,722	just another update. trans vag ultrasound showed thickening of walls but here's the part i don't understand: they couldn't see ovaries...why? uro has put me on vesicare, uvibil and a 14 day course of augmentin and set up gyn appt 8/1. i'm talking to my pcp about the ovary thing tomorrow. radiologist blamed it on my quadriplegia making the trans vag too hard to do. i don't know why. i was on the table, flat on my back. geez, never had so much trouble. pain persists.

07-04-2012, 11:01 PM	#79
SoFla Senior Member Join Date: Nov 2004 Location: Florida Posts: 1,322	The first question I would ask is, where the heck did my overies go? Then I might ask, how could the disappearance of my overies cause all this pain? OY!!! I hope you get some answers soon.

07-05-2012, 09:19 PM	#80
cass Senior Member Join Date: Jul 2001 Location: WA Posts: 5,722	OMG got a copy of cystoscopy charges today...$11,000!! bet medicare/aetna supplemental won't come close. and i'm supposed to do this annually??