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05-10-2005, 07:54 PM
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#1 |
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Junior Member
Join Date: May 2005
Posts: 4
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Online Chordoma Support Group
http://groups.msn.com/Chordoma
This is an online support group for people affected by clival, spinal or sacral chordoma, a rare tumour occuring in about one in two million population. |
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09-24-2007, 05:18 AM
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#2 |
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Junior Member
Join Date: Sep 2007
Posts: 1
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my son
Hi my name is peggy and i have a nine year old son with chordoma and im want some advice on what it is and how can it be cured
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11-11-2007, 09:32 PM
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#3 | |
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Junior Member
Join Date: May 2005
Posts: 4
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Contact with support group
Quote:
http://groups.msn.com/chordoma or here: chordomamanagers@gmail.com We have been trying to contact you but email is bouncing. |
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06-11-2009, 11:08 AM
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#4 |
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Junior Member
Join Date: May 2005
Posts: 4
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The online Chordoma Support Group
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03-30-2012, 09:57 PM
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#5 |
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Junior Member
Join Date: Mar 2012
Posts: 1
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Hello ! My name is Betsy and I am a 7 year clival chordoma survivor! I had 3 resections (brain surgeries) and completed Proton Beam Radiation in 2005. I am looking for others who have walked the walk so to speak that I can communicate with.
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