Stepson broke T4-6 last Saturday - Page 4

JenJen · 01-15-2012, 04:21 PM

Wow PixieGirl! That's a lot to deal with. I see you live nearby. I would be happy to share resources and see if we can help you some of what you must need as a new injury. Were did this happen?

Quote:

Originally Posted by PixieGirl

Hi..I was involved in a car accident on 9-30-11. My 15yr old daughter and I were ran off the road by another driver with a touch or shall I say ALOT of road rage. While he left the scene, I was left paralyzed from the waist down T5-7. Thankfully my daughter walked away. However she had major injuries as well. I was told I would never walk again as well as I would never be able to hold myself up. I have complete feeling..which is not always a good thing in my case. I can move my toes,bring my legs in together and slightly lift my legs from ground up. I am sitting up in my chair and find myself getting stronger every day. I began not to listen to the doctors. It was the doctors who made me want to give up. Once I saw I could do the things I was told I would never do..well that just lit a fire under my a$$. Its a mind set. Goals. What we want and how to achieve it. Thats how I get through the day. Dont get me wrong. There are days I still morn for the loss of my loss of my legs and all the things I cant do. The day I walk..will be a day to remember. The one thing I find is the best piece of equipment is my stand up wheel chair. It helps so very much with cramping and spasms. Just to get in the up right position feels amazing.To stretch out my legs is great not only for blood flow but for digestion,the intestines and bowels. I found my online. it is a pricy piece of equipment but well worth it. Its electric and does drive in the upright postion. It is made by Karman. I wish nothing but success for your step-son.

Van Quad · 01-15-2012, 08:43 PM

You are so right about setting goals. Good luck PixieGirl, to you and your daughter

Quote:

Originally Posted by PixieGirl

Hi..I was involved in a car accident on 9-30-11. My 15yr old daughter and I were ran off the road by another driver with a touch or shall I say ALOT of road rage. While he left the scene, I was left paralyzed from the waist down T5-7. Thankfully my daughter walked away. However she had major injuries as well. I was told I would never walk again as well as I would never be able to hold myself up. I have complete feeling..which is not always a good thing in my case. I can move my toes,bring my legs in together and slightly lift my legs from ground up. I am sitting up in my chair and find myself getting stronger every day. I began not to listen to the doctors. It was the doctors who made me want to give up. Once I saw I could do the things I was told I would never do..well that just lit a fire under my a$$. Its a mind set. Goals. What we want and how to achieve it. Thats how I get through the day. Dont get me wrong. There are days I still morn for the loss of my loss of my legs and all the things I cant do. The day I walk..will be a day to remember. The one thing I find is the best piece of equipment is my stand up wheel chair. It helps so very much with cramping and spasms. Just to get in the up right position feels amazing.To stretch out my legs is great not only for blood flow but for digestion,the intestines and bowels. I found my online. it is a pricy piece of equipment but well worth it. Its electric and does drive in the upright postion. It is made by Karman. I wish nothing but success for your step-son.

JodiV · 01-17-2012, 03:20 PM

Thank you everyone! Sorry have had problems logging in for some reason. Pixie, you sound just like our Lou! He has the same attitude, I think it makes all the difference. The doctors/nurses keep talking to him about life in a wheelchair (living) and every times, he does his physio etc but insists that he will walk.

He has had some toe movement on left foot and lifted his knee of left leg up 3 or 4 times a few days ago. Not sure if it's a controlled spasm or what. We take everything as a good sign

They expect that he will be able to come home for a weekend by the end of the month. We are at 5 1/2 weeks and he is already doing his own catheter etc. He is amazing in his wheelchair, has done road course etc, after one day they said he can take training wheels off (showoff lol). Ribs (turned out 5 were broken) seem to have healed as he's not complaining about pain at all.

We go to see the Surgeon tomorrow morning, looking forward to any other information he might offer (not expecting much!). We feel like in the last couple of weeks he's made leaps and bounds!

594MOM · 01-17-2012, 06:54 PM

Hi Jody!! Just read your post and your stepson is a very lucky young man for many many reasons!! It sounds like he is doing awesome. The fact that he has sensations is incredible beyond words. Our son, 16 at the time, broke his back on 11/20/10, T6 ASIA A on his motorcycle. Since then we have done so much to learn all about SCI to help him and everyone with this injury. I have met some incredible people and one thing I know for sure the ones that are walking now are walking because of exercise based therapy. Tickle his legs, massage his legs, use a bath brush on his legs to remove the dead skin so his legs can breath. It is incredible what the body can do. Do not let his muscle forget what they need to do. Get his legs moving, have him wear the shoes he always wore, sit in different seats so he does not get used to one "chair". Our insurance will only pay for PT above his injruy, for below the injury the just want to teach him how to live in a chair. So he goes to Pushing boundaries, which is like Project Walk. He uses a Theracycle we got off Craigslist and we were able to get a stander too. These things are so important especially since he has some feelings. David like your step son has an incredibly positive attitide and that is challenge number 1. With that on board the sky is the limit!! Way to go!! If your step son was injured on a motorcycle or snowmobile have him or you check out RiderDown.org. There are some incredible stories and people there. 3 of which were told they would never walk again and they are!! Dont' give up as exhausting as it can be it is worth it.
hugs from Washington, Debbie

JodiV · 01-18-2012, 10:28 AM

Thank you Debbie!

Best of luck with your son as well. We went to Surgeon today, he gave us about 2 minutes of his time lol. Said nothing except the spine is healing well. That's ok, we know what we need to do! Like you said exercise exercise exercise!!! Thanks for the tips, we do a lot of massaging etc but we need to exfoliate his feet for sure! They are peeling... Will keep everyone posted, thanks all!

Patrick Madsen · 01-18-2012, 11:56 AM

I agree exercize is the way to maximize one's potential. But if the connections aren't intact; all the exercize in the world won't get a person up walking.

All we can do is to get as strong as we can. But if a person doesn't get up walking again, it's not because they didn't exercize enough.

A Positive Menatal Attitude and hard work does maximize what we have left,

Thread Tools
Show Printable Version Email this Page
Display Modes
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
Saturday Night	brucec	Life	310	04-07-2011 12:43 AM
Gig last saturday	paramoto	Life	9	07-10-2008 10:13 PM
Sad Saturday!	Obieone	Caregiving	15	06-02-2008 11:13 AM
CNN Saturday 8/11	Mike T12	Cure	0	08-12-2001 12:01 AM

01-17-2012, 03:20 PM	#33
JodiV Junior Member Join Date: Dec 2011 Posts: 17	Thank you everyone! Sorry have had problems logging in for some reason. Pixie, you sound just like our Lou! He has the same attitude, I think it makes all the difference. The doctors/nurses keep talking to him about life in a wheelchair (living) and every times, he does his physio etc but insists that he will walk. He has had some toe movement on left foot and lifted his knee of left leg up 3 or 4 times a few days ago. Not sure if it's a controlled spasm or what. We take everything as a good sign They expect that he will be able to come home for a weekend by the end of the month. We are at 5 1/2 weeks and he is already doing his own catheter etc. He is amazing in his wheelchair, has done road course etc, after one day they said he can take training wheels off (showoff lol). Ribs (turned out 5 were broken) seem to have healed as he's not complaining about pain at all. We go to see the Surgeon tomorrow morning, looking forward to any other information he might offer (not expecting much!). We feel like in the last couple of weeks he's made leaps and bounds!

01-17-2012, 06:54 PM	#34
594MOM Junior Member Join Date: Sep 2011 Location: Enumclaw, WA Posts: 3	Hi Jody!! Just read your post and your stepson is a very lucky young man for many many reasons!! It sounds like he is doing awesome. The fact that he has sensations is incredible beyond words. Our son, 16 at the time, broke his back on 11/20/10, T6 ASIA A on his motorcycle. Since then we have done so much to learn all about SCI to help him and everyone with this injury. I have met some incredible people and one thing I know for sure the ones that are walking now are walking because of exercise based therapy. Tickle his legs, massage his legs, use a bath brush on his legs to remove the dead skin so his legs can breath. It is incredible what the body can do. Do not let his muscle forget what they need to do. Get his legs moving, have him wear the shoes he always wore, sit in different seats so he does not get used to one "chair". Our insurance will only pay for PT above his injruy, for below the injury the just want to teach him how to live in a chair. So he goes to Pushing boundaries, which is like Project Walk. He uses a Theracycle we got off Craigslist and we were able to get a stander too. These things are so important especially since he has some feelings. David like your step son has an incredibly positive attitide and that is challenge number 1. With that on board the sky is the limit!! Way to go!! If your step son was injured on a motorcycle or snowmobile have him or you check out RiderDown.org. There are some incredible stories and people there. 3 of which were told they would never walk again and they are!! Dont' give up as exhausting as it can be it is worth it. hugs from Washington, Debbie

01-18-2012, 10:28 AM	#35
JodiV Junior Member Join Date: Dec 2011 Posts: 17	Thank you Debbie! Best of luck with your son as well. We went to Surgeon today, he gave us about 2 minutes of his time lol. Said nothing except the spine is healing well. That's ok, we know what we need to do! Like you said exercise exercise exercise!!! Thanks for the tips, we do a lot of massaging etc but we need to exfoliate his feet for sure! They are peeling... Will keep everyone posted, thanks all!

01-18-2012, 11:56 AM	#36
Patrick Madsen Senior Member Join Date: Apr 2009 Location: Blaine, Wa Posts: 3,873	I agree exercize is the way to maximize one's potential. But if the connections aren't intact; all the exercize in the world won't get a person up walking. All we can do is to get as strong as we can. But if a person doesn't get up walking again, it's not because they didn't exercize enough. A Positive Menatal Attitude and hard work does maximize what we have left,