Too many bricks on the load

simba · 08-25-2004, 01:11 PM

Yesterday was the 1 year anniversary of my accident. This date came with continued mind numbing spasms & central pain that no medications can touch! My husband is exhausted trying to be my caregiver, work and do household duties. I have regained some function, but it is greatly undermined by powerful and continous spasms/spasticity/CP!

We are contantly having to fight some battle with the insurance or disability co wanting to subrogate benefits. We are amazed and frustrated by dr that walk into an appt without even looking at my chart and ask when I was last seen. They didn't even have a record of my recent hospitalization in the same hospital as their practice! They shrug it off when we complain and we can't switch dr as they are the only one in the state!

As if this wasn't enough, this weekend (3 days before my daughter and my accident) her close friends were in a car accident in which one was injured and the other killed instantly! Michelle and her group were all at a SR year girls sleepover. The two girls went to get a board game and after leaving the house of the girl hat died, they hit a bridge on a rain slicked road!

This has been a h*llish year and all I can hope is that it gets better. That is really hard to hold onto when life is this hard1

I am lucky because i have a loving devoted husband, wonderful children and a fantastic family and friends.

Thanks for listening to me!

Elaine

Shaun · 08-25-2004, 02:54 PM

It'll get better Elaine.It may not completely never suck! but it wont suck as bad

..It sounds like things cant get worse for ya so they have to get better right..My first 2yrs were awful too,they got better after that..Be strong and be well Mrs.''G''...

~We must save the princess,or die trying~..Mickey Mouse

booster · 08-25-2004, 03:03 PM

Shaun brings me to tears, I've never seen this side... *sniff*

So, with his wise words and softness there is encouragement.

I just saw a young kid today with a c-6 injury, made me think of this post

. I will lend him Shaun's words of wisdom...

marco25 · 08-25-2004, 03:40 PM

Elaine, I'm so sorry about all you and your family have been going through. Somehow we get through these valleys, though I haven't quite figured out the how and why of it all.

Just know that you're not alone.

~ Sign says: "Stay away fools, cuz love rules at the Love Shack" ~ B-52s

Nancie · 08-25-2004, 04:43 PM

i'm sorry this year has been so awful for you.
welcome to this msg brd, there are ppl here who can help.
you said:

Quote:

we can't switch dr as they are the only one in the state!

what kind of dr. are you seeing?
NC is a big state, there must be someplace else you can go?

chae wolterbeek · 08-25-2004, 04:55 PM

Dear Elaine:

Please consider contacting your state Chapter at: http://www.ncscia.org/. Perhaps they can provide guidance dealing with beauracracy and support. It will get better. Cheers!

Hunker · 08-25-2004, 04:56 PM

It is a battle but congrats on ONE year! You can get a lot of information here.

Matt

jd87 · 08-25-2004, 09:08 PM

man, the first year can be tough, eh.

when i had my wreck that should have been bad enough, right. but then we found out that my sister has a small tumor behind her eye. Then my grandpa had a heart attack that kept my whole family, just calming down from my accident, back on worry mode. what a year!

Hope it gets better for you.

[This message was edited by jd87 on 08-26-04 at 12:31 AM.]

betheny · 08-25-2004, 09:32 PM

Oh, I'm so sorry about your daughter's friends.

Also about your own hellish 1st year. The first 2 are terrible, I'm sorry to report. It gets easier. Not EASY, but easi-ER.
If it helps, Elaine, vent away. We've all been there.

C5/6 incomplete, injured Aug. 2000

Obieone · 08-26-2004, 07:03 AM

Sorry for the difficult time Elaine .... but glad you found us .....we all would like the answer to the question why??? .... I think even with all that we adults must live with the hardest is watching our kids have to learn the really hard lessons in life ...... stay strong ... visit often!

Obieone

08-25-2004, 01:11 PM	#1
simba Member Join Date: Mar 2004 Location: NC Posts: 67	Too many bricks on the load Yesterday was the 1 year anniversary of my accident. This date came with continued mind numbing spasms & central pain that no medications can touch! My husband is exhausted trying to be my caregiver, work and do household duties. I have regained some function, but it is greatly undermined by powerful and continous spasms/spasticity/CP! We are contantly having to fight some battle with the insurance or disability co wanting to subrogate benefits. We are amazed and frustrated by dr that walk into an appt without even looking at my chart and ask when I was last seen. They didn't even have a record of my recent hospitalization in the same hospital as their practice! They shrug it off when we complain and we can't switch dr as they are the only one in the state! As if this wasn't enough, this weekend (3 days before my daughter and my accident) her close friends were in a car accident in which one was injured and the other killed instantly! Michelle and her group were all at a SR year girls sleepover. The two girls went to get a board game and after leaving the house of the girl hat died, they hit a bridge on a rain slicked road! This has been a h*llish year and all I can hope is that it gets better. That is really hard to hold onto when life is this hard1 I am lucky because i have a loving devoted husband, wonderful children and a fantastic family and friends. Thanks for listening to me! Elaine

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08-25-2004, 02:54 PM	#2
Shaun Moderator Join Date: Jul 2001 Location: Canada Posts: 7,790	It'll get better Elaine.It may not completely never suck! but it wont suck as bad ..It sounds like things cant get worse for ya so they have to get better right..My first 2yrs were awful too,they got better after that..Be strong and be well Mrs.''G''... ~We must save the princess,or die trying~..Mickey Mouse

08-25-2004, 03:03 PM	#3
booster Senior Member Join Date: Apr 2004 Location: somewhere, tx USA Posts: 856	Shaun brings me to tears, I've never seen this side... sniff So, with his wise words and softness there is encouragement. I just saw a young kid today with a c-6 injury, made me think of this post . I will lend him Shaun's words of wisdom...

08-25-2004, 03:40 PM	#4
marco25 Senior Member Join Date: Feb 2002 Location: Louisiana Posts: 2,912	Elaine, I'm so sorry about all you and your family have been going through. Somehow we get through these valleys, though I haven't quite figured out the how and why of it all. Just know that you're not alone. ~ Sign says: "Stay away fools, cuz love rules at the Love Shack" ~ B-52s

08-25-2004, 04:55 PM	#6
chae wolterbeek Member Join Date: Dec 2002 Posts: 86	Dear Elaine: Please consider contacting your state Chapter at: http://www.ncscia.org/. Perhaps they can provide guidance dealing with beauracracy and support. It will get better. Cheers!

08-25-2004, 04:56 PM	#7
Hunker Senior Member Join Date: Mar 2004 Location: In a wheelchair Posts: 3,862	It is a battle but congrats on ONE year! You can get a lot of information here. Matt

08-25-2004, 09:08 PM	#8
jd87 Senior Member Join Date: Aug 2004 Location: Oregon Posts: 184	man, the first year can be tough, eh. when i had my wreck that should have been bad enough, right. but then we found out that my sister has a small tumor behind her eye. Then my grandpa had a heart attack that kept my whole family, just calming down from my accident, back on worry mode. what a year! Hope it gets better for you. [This message was edited by jd87 on 08-26-04 at 12:31 AM.]

08-25-2004, 09:32 PM	#9
betheny Senior Member Join Date: Sep 2001 Location: Oklahoma,USA Posts: 18,333	Oh, I'm so sorry about your daughter's friends. Also about your own hellish 1st year. The first 2 are terrible, I'm sorry to report. It gets easier. Not EASY, but easi-ER. If it helps, Elaine, vent away. We've all been there. C5/6 incomplete, injured Aug. 2000

08-26-2004, 07:03 AM	#10
Obieone Moderator Join Date: Aug 2001 Location: Manitoba,Canada Posts: 5,603	Sorry for the difficult time Elaine .... but glad you found us .....we all would like the answer to the question why??? .... I think even with all that we adults must live with the hardest is watching our kids have to learn the really hard lessons in life ...... stay strong ... visit often! Obieone