|04-24-2005, 02:09 PM||#1|
Join Date: Jan 2005
Location: Hilo, HI USA
The Regeneration Society
After studying all the responses to my post, I have thought about naming this organization "The Regeneration Society". This grand title covers all the maladies afflicting the brain, blood, nervous system and spinal cord. With a few responses to the following quotes from the members, I would like to point out that with a name that is recognizable vis-a-vis The Cancer Society, it contains everything about, and for, CANCER. There are sub-groups working under the Cancer Society like Breast Cancer, Prostate Cancer, etc.
To Bethany I would like to refute her analogy that I am not "throwing myself" into the stem cell fiasco, but rather emphasizing the importance of ONE VOICE. The political machine runs with a number of highly paid lobbyists who can change a legislator's mind in a flash.....money talks.
To Faye I have to say that I do know what major "complacency" is, and how it affects our organization. Again, this is exactly why I suggested ONE VOICE.
Hey BigB..... Dr. Wise Young IS our staunchest advocate!
To MetronycGuy, as you stated, there will always be "divisive and unhappy" people in an organization. Those are called the Complainers, not the DOERS.
And finally, Jereese.....I know many more people with MS than the two you know, which includes myself with Primary Progressive MS. Through my extensive research, I also know what the disease is and what it does to the body. Not like a "broken neck", but rather a catastrophic and non-curable disease affecting the brain and spinal cord. This disease fits right in with The Regeneration Society.
|04-24-2005, 02:27 PM||#2|
Join Date: May 2003
Location: Jacksonville, FL
Regenerative Medicine Awareness (RMA) is a non-profit organization dedicated to educating the public about the advances that have been made in hESC (human embryonic stem cells) and nuclear transfer stem cells (NTSC), as well as the importance of lifting restrictions on stem cell research in the United States and around the world. In addition, we support the creation of governmental consortiums for the unfettered pursuit of possible therapies and cures for numerous diseases and health conditions.
RMA believes that the most qualified people to inform the public about stem cell research are the research scientists themselves. Together with ethicists, they are able to speak clearly about the obstacles that face them both in the laboratory and in acquiring adequate government funding and support. They're also well aware that, with proper funding and the lifting of restrictions on available stem cell lines, the cures for many diseases and conditions is within our extended reach. In other words, RMA hopes to provide a speakers' platform from which we can widely and directly broadcast their thought and vision.
RMA does need your financial support to continue to increase awareness and ensure clarity on these issues. Please contact us as to how you might help today.
"So the federal government getting involved and making this a public resource, stem cell biology is a public resource, with a lot of capital behind it could really speed up research for a wide range of diseases & You know, if you get intelligent, creative physician-scientists for example or basic scientists who are familiar with the needs and you let them do the science, the therapies will just declare themselves."
--Evan Snyder, M.D., Ph.D., The Burnham Institute
Regenerative Medicine Awareness, LLC is a wholly owned and controlled nonprofit subsidiary of the Institute for Regional Education, a New Mexico nonprofit corporation determined to be a tax-exempt public charity pursuant to Internal Revenue Code Sections 501(c)(3) and 509(a)(1).
Sydny, check out the Stem Cell Action Network www.stemcellaction.org also. I sit on the Advisory board.
~ It is so much easier to mentally label and put paralysed people aside than to delve into why medicine hasn't yet found a way to repair the damaged spinal cord - ICCP ~ www.CureParalysisNow.org
|04-24-2005, 06:10 PM||#3|
Join Date: Dec 2002
i dont think the subgroups work under or for the cancer society . i believe they are independent organizations that raise their own funds and spend them on research and education that they support
lance armstrong started his own organization, and they have their own agenda.
i think that the grassroots groups that work well together will form into their own.
legislative input and follow up is important, i see betheny is trying to get people to folow up on legisaltive actions and bills that need to be co-signed and passed very soon, that is constructive and moving forward , not getting stuck on symantics and ego's
real solid action is important, meeting with and following up with legislators ,