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Thread: Recipes for avoiding UTI's

  1. #161
    four months? that's insane and very dangerous!

    as hipcrip said, suprapubic catheters should be changed every 6 weeks TOPS ( usually is 4 weeks; i have one ) and around 3 to four weeks for a foley ( through the urethra )

    i assume that by permanent you mean indwelling catheter.
    "All that is necessary for the triumph of evil is that good men do nothing" ~ edmund burker

    c4-5 quad

  2. #162

    Had my annual bladder ultrasound

    The ultrasound tech said I retained 71 cc of urine after reflex voiding.
    I could probably get a little lower if I were lying down.

    I really need a spinal cord-savvy urologist in Connecticut or Westchester County, N.Y.

    Current urologist won't let me self cath because of finger dexterity issues.

    I say "let me" because if I try self-cathing and get infected, I need him for the antibiotics.

    Now that I'm retired, I've got a lot of time to try and solve the age-old UTI dilemma.

  3. #163
    Peter, many of my male clients at your level of injury do clean self catheterization. There is no reason it needs to be sterile as long as it is clean. You may want to look at a urologist who is a little more SCI knowledgeable, even if you have to go to NY or MA to do so. Could someone else cath you 1-2X daily to get your residuals completely removed at least a couple of times daily? We sometimes do this with our reflex voiders who can't self cath.

    Did he do or is he planning to do urodynamics too as part of your annual check up? Check for stones and other problems with urinary tract CT or ultrasound? If not, you really need to see someone with more SCI experience and knowledge.

    For those asking about frequency of indwelling catheter changes above, the CDC has no recommendations on frequency of changes since there is no scientific basis (no studies) to make any specific recommendation. Most change every 4-8 weeks. It is a good idea if you tend to clog to plan to change prior to that time interval, but other than that it is very individual. Routine irrigation though is definitely NOT recommended as it significantly increases your risks for infection. Irrigation should be reserved only for catheters that are clogged with clots, mucous or sludge/sand. or encrustations.

    (KLD)

  4. #164
    In an older post Jeff Weeks and others mentioned using "Uroqid Acid No.2" in preventing UTI's... A few days ago I asked my urologist to put me on this med and he agreed.

    What dosage do you guys find works best? 1 (500mg) pill in the morning and 1 at night? Or double that?

    Thank you all in advance. Esp. Jeff!

  5. #165
    Senior Member BigK's Avatar
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    Just got back from the hospital after having my 4th or 5th septic Psuedamonas UTI this year alone! It also caused a testicular infection and I ballooned to the size of a softball! They told me if the problem persists they may need to remove my testicle and i'm already a double leg amputee! Apparently a UTI can backtrack down into the testes and cause infection there as well. They also did a resistance test and found out the bacteria is resistant to 8 out of 10 of the antibiotics they tested since I've used a big variety of them. I'm dfeinately scared now and he said when you become too resistant then they have to use the more toxic antibiotics out there and that just sounds like it would reek havoc on the liver! Anyone else have a problem becoming too resistant. Is it possible to eventually have nothing left that will work and you are screwed? I already take cranberry extract, drink plenty of fluids, straight cath, take tons of Vit C, Macrobid daily, and Hiprex and am starting to try the cream of tartar thing (which tastes nasty by the way). I'm at home with a PICC line now and I will use IV Topramyocin for 10 days but after that I really need be carefull. Can someone tell me something good so that I can calm my nerves a bit? Thanks
    Ken

    Guns don't kill people. Daddys with cute daughters do!

  6. #166
    Have you had tests for stones? These are often associated with pseudomonas. It would also be important to rule out prostatitis. It is likely that you may at this point be down to only IV antibiotics to treat any more acute infections for this same strain of pseudomonas. Liver issues are one problem, but many of the "mycins" also are pretty toxic to your kidneys and can cause hearing loss as well, so it is important to get on top of this.

    Have you seen an infectious disease specialist in all of this??

    (KLD)

  7. #167
    Senior Member WPDaggy's Avatar
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    Hi Ken,

    I'm sorry to hear of your situation. I've been in almost the exact situation myself this year. A pseudomonas UTI has hospitalized me four times this year, as well. My symptoms are tachycardia and low blood pressure. I've been out for over two months this time, so we'll see. I have been doing the cream of tartar thing (1 tsp. in the a.m.), taking 2 grams of Vitamin C, two 500mg of olive leaf extract (morning and night), and 3 drops of oil of oregano 3 times a day. I'm c-5 and IC throughout the day and leave one in over night. I've read that oregano could help against pseudomonas and the olive leaf is supposed to be good against bacteria, also. I'm using the others to try and make my urine as acidic as possible. I'm also using a variation of the Bob Clark peroxide method before inserting the cath. I hope this helps some. I understand your anxiety.

    Wayne

  8. #168
    Ken, that really bites. My last pseudomonas infection, a year ago, was resistant to all of the oral meds, so I ended up doing 14 days of IM injections. (Can't recall the name of the antibiotic, though.) I'm terrified of it coming back.

    I don't blame you a bit for being nervous. It's stressful as hell when the cures can be almost as toxic as the bacteria. If they don't do it automaticaly, bug your docs about running kidney and liver function tests after you finish with your treatment. I was on several IV antibiotics for almost two months in a row when I had meningitis and came through that with no lasting damage beyond a little tinnitus, if that helps at all to calm your fears about damage from your current treatment.

    If you haven't already, I'd jump on KLD's suggestion to be tested for both stones and prostatitis. Everything that might help you keep from being re-infected is worth exploring.

    With all the antibiotics you've been on this year from these infections, have you had any problem with c. diff.?

    I'll keep you in my thoughts.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


  9. #169
    Senior Member BigK's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    Have you had tests for stones? These are often associated with pseudomonas. It would also be important to rule out prostatitis. It is likely that you may at this point be down to only IV antibiotics to treat any more acute infections for this same strain of pseudomonas. Liver issues are one problem, but many of the "mycins" also are pretty toxic to your kidneys and can cause hearing loss as well, so it is important to get on top of this.

    Have you seen an infectious disease specialist in all of this??

    (KLD)
    Thanks nurse. I've had CT scans done and they told me my right kidney was slighty enlarged. Is it safe to assume they would have seen any stones in there when they looked at it? As for prostatitis I am only 26 and thought that was only for older males. Of course, nothing for me is ever normal!

    Hip, I actually never had C. diff this year but I thinks it's because my pain meds constapating me. Hell, I even take stool softener!

    WPDaggy, I have never heard of using oregano or olive leaf. I will definatelylook into it.

    Thanks guys
    Ken

    Guns don't kill people. Daddys with cute daughters do!

  10. #170
    Quote Originally Posted by rustyreeves View Post
    In an older post Jeff Weeks and others mentioned using "Uroqid Acid No.2" in preventing UTI's... A few days ago I asked my urologist to put me on this med and he agreed.

    What dosage do you guys find works best? 1 (500mg) pill in the morning and 1 at night? Or double that?

    Thank you all in advance. Esp. Jeff!
    Hey Rusty, my dosage was two in the morning and two at night along with two max cranberry pills. When I started feeling even the smallest bit icky, I upped it to 2 pills x4 until I started feeling better.

    Except for the recent bladder stones, have been UTI free!
    And the truth shall set you free.

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