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Thread: I'm really nervous about getting a bladder augmentation

  1. #11
    Senior Member
    Join Date
    Dec 2003
    Location
    Covington, Georgia
    Posts
    399
    I had a bladder augmentation in March 2006. My doctor had wanted to do it a year before that, but I kept holding off hoping I would get return there. Now I wish I had done it before!!! I was having to cath about every 30 min to an hour before and now I can go up to 6 hours without cathing!!!

    I'm not going to lie - the surgery was rough. I was in the hospital for 3 weeks. I kept vomiting every time they let me eat solids, so I would have to go back to just fluids. The surgery did really sap my strength, too. By the end of the second week I was still using my wheelchair instead of walking with a cane like I normally do. The third week in the hospital was PT. I'm still not as strong now as I was before the surgery, but I didn't do any outpatient PT after the surgery. I would definitely recommend doing PT afterwards!!!!

    I had someone stay with me for the first 2 weeks after I got home. I was very sore and still had 2 drains in. The drains were a pain in the butt andI ended up stepping on one and puulin it out, but luckily it was the night before my appt to have them taken out. I was off work for a total of 3 months.

    I had to irriagate my bladder every day for the first few months to get the mucuous out, but now it just comes out through the catheter. I never irriagate it and I don't notice that my urine is normally cloudy. About once every 2 weeks or so I get a lot of mucous through the catheter. It does kind of stop up the bladder, so I know if my bladder feels full and I only get a little urine out I need to keep the catheter in for a minute until the mucous comes out. Then the urine will start coming out again. It's really not an inconvenience - especially not compared to wearing diapers or rushing to the bathroom every half hour or so!!

    The surgery is definitely worth it and the only things I would change would be doing it SOONER than I did and having physical therapy after the surgery. It has GREATLY improved my quality of life and my self esteem.

    Good luck with your surgery. I hope everything works out as well for you as it has for me!
    Tina
    C5-C7 Walking Quad - Very Incomplete
    Aug '03

  2. #12
    GOODLUCK MIMIN!!!!!!! I wish you a sppedy recovery and hope you get the results you are after.

  3. #13
    I am so glad I had mine. Much better to be able to hold up to 500-600 if I needed to, rather than maybe every 200.

  4. #14
    Senior Member
    Join Date
    Jul 2007
    Location
    Virginia
    Posts
    3,878
    Mimi, I'm worried about mine whenever I actually do go ahead w/ it. Itis an awful long time to be in the hospital and I so worry about bowel accidents/troubles afterwards.I think it's such a big leap towards independence though that we have to give it a try. I wish you so much luck girlie. Keep us posted!

  5. #15
    hey,
    sorry it's taken so long for me to respond; things are a little hectic.
    the operation is scheduled for January 20, and I feel a whole lot more calm after reading your input.
    Thank you especially to Cara for your detailed message.
    I'll keep you updated as things progress.
    Mimi

  6. #16
    Allow yourself for a set back. For some time, it will almost feel like....why the hell did I do that. If you have a good urologist/surgeon, the rewards will come once everything heals.

  7. #17
    I never have regretted mine
    Mary
    I want to Rock you Gypsy soul and together we will flow into the Mystic.
    Van Morrison

  8. #18
    Mimi underwent a 14-hour operation on Sunday. As her doctor says, So far so good. However, she wishes some of you would have told her more about the pain following the operation.

  9. #19
    Senior Member
    Join Date
    Jul 2007
    Location
    Virginia
    Posts
    3,878
    give her our love Mom!

  10. #20
    Sounds grueling, ProudMom, give her our best. I hope the pain subsides soon!

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