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Thread: update on jim's eyes

  1. #11
    Senior Member
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    Jun 2005
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    Denver, Colorado
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    Hi Stormie:

    I am a doc in ophthalmology in Denver. If your hubby is not taking vitamin A Palmitate for RP, he needs to consider doing this... of course... clearing any therapy with your docs is a good idea. The usual dose is 25,000 IU but it has to be vitamin A palmitate and not beta carotene. Studies done mainly at Harvard by Eliott Berson show this supplement slows down the progression of the disease in some patients.

    Best,

    Sieg

  2. #12
    Senior Member
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    Oct 2001
    Location
    oklahoma
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    Smile

    Good luck Stormie & Jim

  3. #13
    Stormie, there are many researchers working on this disease (much more than spinal cord injury) and they are hopeful that stem cells may be able to replace the pigmented cells and the receptors. Wise.

  4. #14
    Senior Member stormie427's Avatar
    Join Date
    Aug 2003
    Location
    southwest, florida
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    442
    THANKS for all the replies !!

    as for the vitamin A...jim has been taking that for 3 yrs. the doctor at the eye institute said if it were him he would be taking more, but he said if he were in jim's condition he would not. reason being possible liver damage down the road. i'm up for any feedback and advice so please tell me what u guys think.

    so sorry i haven't been a part of cc like i would have wanted over the past couple yrs. i've just had a lot on my plate. hope all is well with all of u !! i think about u guys often take care and thanks again.

    stormie

  5. #15
    Senior Member
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    Jun 2005
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    Stormie... you can PM me with any questions or concerns...

    Prayers are with you and Jim

    Sieg

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