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Thread: Experimental Treatments for Spinal Cord Injuries

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  1. #1

    Experimental Treatments for Spinal Cord Injuries

    If your considering participating in a SCI clinical trial, you need to check this info out at The Miami Project.

    From the website:


    Increasingly, advances in spinal cord injury (SCI) research are finding their way into clinical practice. Many of these experimental therapies are currently undergoing clinical trials or are preparing to enter the clinical trial phase of their development. However, a number of experimental therapies, such as cellular transplants, are being introduced into clinical practice without a valid clinical trial program being completed, leaving their safety and efficacy untested. This is a great concern to researchers, clinicians, and most importantly people with SCI.

    For people with SCI, their families, friends and caregivers, the decision to receive an experimental treatment or enter a clinical trial is a challenging one. To establish a set of guidelines for the design and conduct of valid clinical trials for SCI, an expert panel of researchers and doctors with extensive scientific and clinical experience in SCI was formed in 2004. The panel, supported through the ICCP (International Campaign for Cures for spinal cord injury Paralysis), developed a set of 4 papers outlining the guidelines for the conduct of SCI clinical trials, which were published in the Nature journal, Spinal Cord (see below). In addition to these peer-reviewed publications, the panel summarized these guidelines in an easy-to-read booklet.

    For people with spinal cord injury, their families, friends and caregivers:

    Documents now available for download:
    Experimental Treatments for Spinal Cord Injuries: What you should know if you are considering participation in a clinical trial

    Last edited by Mike C; 11-04-2009 at 12:37 PM.
    "So I have stayed as I am, without regret, seperated from the normal human condition." Guy Sajer

  2. #2
    How can I get fampridine SR ?


  3. #3
    Senior Member evansmom's Avatar
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    Quote Originally Posted by fusun View Post
    How can I get fampridine SR ?

    Just ask your doctor for a script.

  4. #4

    Fool me once.

    I was in the initial trial for for Fam SR. It change only the intensity of my pain. The drugs work by a false mylin on exposed neuron. When the FDA denied the use, the study it did not meet the endpoints. I had our pharmacy make up a batch type and I was unable to handle the pain. Same song second verse.

    I would like to know how this study is different.
    Feelin good is good enough!

  5. #5
    as far as i know about exercise it is manual activity that develops or maintains physical fitness and overall health. It is often practiced to strengthen muscles. When most adults think about exercise, they imagine working out in the gym on a treadmill or lifting weights. But for children, exercise means playing. i think all of you will agree with me.

  6. #6
    non of the links work.
    "Always look at the bright side of life...."

  7. #7
    Links updated. Thanks ChinaDoll.
    "So I have stayed as I am, without regret, seperated from the normal human condition." Guy Sajer

  8. #8
    Yup!links are working..

  9. #9
    well exercise is not all about the body, it is great for our mind too... When people are having medical or any other problems it is great to do some exercise and get burdain off our chest.

    As it for spinal cord injury...i bellive we should try all axperimental methods

  10. #10
    Thanks Deanbenson123 (I say this to others daily: exercise is not all about the body, it is great for our mind too...

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