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Thread: Stephen Davies Update

  1. #921
    Senior Member mikek's Avatar
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    IP - Please refer to your post of Feb 24,2010. I know they do peer reviews prior to publishing but how long are you willing to wait. Then from publishing to clinical trial application another year or two. Then phase 1,2 and 3 = another couple of years.
    Not fast enough in my book or timetable..............

  2. #922
    Senior Member Schmeky's Avatar
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    Mikek,

    You make a valid point in your post #921. So here's a question I have asked before. Davies published a paper, that from all accounts IS A CURE for acute injuries, entitled: "Astrocytes derived from glial-restricted precursors promote spinal repair".

    This was published in April of 2006. I questioned him 3.5 years ago in his lab about bringing this to clinical trials. He indicated he was working on this. The paper is now nearly 5 years old and I have heard nothing about a trial to date.

    So how long should it take to get a publication to trials? If Davies has a paper pending peer review for chronics, how long will it be before it gets to trial?

    I'm not being critical since these are facts, so if/when his chronic publication surfaces, what should we expect based on these circumstances?

  3. #923
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    I agree with you Mike, actually. I'm very frustrated from waiting. To the point where I come to carecure rarely now. And often think about trying to do research myself, like Lorenzo's Oil.

    But I just have a feeling that Dr. Davies is working hard and hiding his progress. Maybe he got burned by someone, or some other researchers copied his stuff, so he went silent. There's something going on - and I don't know what.

  4. #924
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    ip,

    i hope your right,but he has not given us anything to hang our hats on.

  5. #925
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    I am not 100% sure this is correct but this is the way I understand the process:

    From what I understand if researchers discuss their work with the public before submitting their papers to the scientific journals they won't be published.

    Having other research groups duplicate their work is a good thing, it proves that their work and results can be reproduced.

    I don't think publishing a paper and clinical trials have that much to do with each other. To start a trial an IND needs to be filed with the FDA and a clinical trial network needs to be established to conduct the trial and measure the outcomes.

    ip, I understand your frustration and agree, we need to take things into our own hands kind of like the "Lorenzo's Oil" story although when I contacted the Myelin Project a few years ago after watching that story and they were kind of clueless about the state of research regarding myelin. When you look around you can see other disease communities take a much more pro active role in the direction of where their donated dollars are spent ie. SMA Foundation and Cancer foundations. We have had a few individuals try to take the lead like Rick Hansen, Marc Buoniconti and a few others but somewhere along the way they lost sight of the goal. Our best shot was with Christopher Reeve, he had a vision, could get the doors open and could get people working together but when we lost him we lost that also. I don't know what the answer is but we do need a central voice and focus.

  6. #926
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    hey rjames. By do it yourself, I mean really DIY, like sci lab in the garage. Bio hacker stuff:

    http://diybio.org/

  7. #927
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    Quote Originally Posted by ip View Post
    hey rjames. By do it yourself, I mean really DIY, like sci lab in the garage. Bio hacker stuff:

    http://diybio.org/
    DIY Biology, that's funny stuff right there.

    ip, Come on over I have a brew stirred up and need to give it a test run....LOL

  8. #928
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    I'm not trying to be funny, but I can see how people would think that...I can write software, why not do something for my own health? If nobody is stepping up, then what is one to do? I have sent money to people for years with no results. It gets frustrating, as you well know.

    I've brewed beer too And honey wine Maybe I'll take you up on that someday.

  9. #929
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    Quote Originally Posted by ip View Post
    I'm not trying to be funny, but I can see how people would think that...I can write software, why not do something for my own health? If nobody is stepping up, then what is one to do? I have sent money to people for years with no results. It gets frustrating, as you well know.

    I've brewed beer too And honey wine Maybe I'll take you up on that someday.
    I apologize I was not trying to make fun of what you want to do, go for it and I wish you nothing but success!!!!

  10. #930
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    Hey rjames - thanks for your kind words. I think humans are capable of much more than we think. The approval process for new drugs is broken, there must be a better way.

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