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Thread: pressure sore

  1. #11
    In bed, on a couch, on a prone gurney, but NO SITTING, and best to avoid laying on your back. This also means no sitting up in the bed or on the couch. Laying down only.

    Better to be down now than the 2-3 months of total bedrest needed if you had to have a flap....

    (KLD)

  2. #12
    Senior Member CapnGimp's Avatar
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    You can get SOY protein powder to mix with water/milk or whatever you want to mix it with. I don't eat meat at all. A well balanced diet, which includes whole grains NOT white/'enriched' products, avoid processed sugars which shut down your immune response; eating balanced, healthy meals, you can get the nutrition you need. BUT, many folks do not understand that phrase. So eat as best you can, take a multi-vitamin, supplement your protein and keep it clean and bandaged.
    What kind of cushion do you use?
    Also, alcohol and smoking do not help a body to heal

  3. #13
    Senior Member Sh0rty's Avatar
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    its a matrix cushion. I take a multi vit. Where do you get these suppliments from? I am trying to stay off it the best I can. I appreciate the advice

  4. #14
    I remember my first pressure sore. Visiting nurses were putting some kind of goop on it and covering it with a gauze pad. After finding out it was tracking, having a failed flap surgery, and problems for years after, I can recommend only one thing.

    Stay completely off of it! Every sore is different. If you can, get a nurse that specifically deals with wound care to look at it.

  5. #15
    Senior Member lynnifer's Avatar
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    Freaking Parkwood. Place has gone downhill from twenty years ago. Dr Young spoke there a few years back (I was surprised someone of his caliber actually attended - lol!)

    They are running a clinical trial out of Parkwood right now through the University of Western Ontario - best pressure sore care I ever received - but unfortunately my nutrition levels (thyroid & iron) got me kicked out of the study. They'll apply some electrical stim to your wound (if you qualify) but I guarantee you the best care.

    Dr Pamela Houghton was the one in charge, along with a Dr Keast. I stopped seeing them because *he* gave up on me wanting to cut my legs off. But for other wounds, especially for non-chronic ones, I'm sure they're the people (and the only people) to see in London.

    Otherwise, I've heard good things about a Gary Sibbald from Toronto but I know nothing personally of him. I was told I should see him but never followed up considering it's four hours away.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  6. #16
    I was never a patient of Parkwood, (Chedoke refugee) but found my way to Parkwood a couple years ago via a consult with Dr. Keast. Don't have much use for him, but after him I was refered to a woman SCI dr, (can't remember her name) and she was great. Was the 1'st doctor I had to finally come out and say "you need to have surgery on these wounds, they won't heal by themselves".

    Every other DR. wanted to be the guy who healed them naturally, they were perfectly content with me spending another few years in bed. keast was just dismissive, didnt seem to really care. He did offer that 'electrical stim" therapy, though I dont live in the "test area".

    It was through this SCI doctor that I was refered to my plastic surgen across the road at the University, and finally healed me up.

    Anywho, regarding DR. Sibbald, I had a consult with him 4 years ago. Or so I thought, I went to his clinic in Mississaga and he was no where to be seen, I had a resident, who was very arrogant, and at one point I had to say "can you please just stop talking & listen to what I'm saying".

    I was a patient in the hospital at the time I went there, went with a nurse. As we left, I said to the nurse, "I'll have an infection within a week". & I did. The clinic was dirty.

    If you are considering Sibbald, try and make sure you get to see HIM. He is very well known in wound care, and supposed to be very good, but he has several clinics, and I don't think it's too easy to get in to see him personally as he is out doing lectures and etc...and not sure if he does any hands on work..I may be wrong on that though.

  7. #17
    Senior Member lynnifer's Avatar
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    Dr Keast is supposedly the president, or past president now, of the Canadian Wound Care Association. I had big hopes ... ha! I think Sibbald is now - not sure? Since seeing him (Keast), I've healed up a heel wound that had been open for 17yrs. Tells me a lot about him.

    Dr Delaney is the only other Physical Rehab specialist that is female that I know of at Parkwood - she replaced my favourite and original doctor, Dr Allatt who is now in Pennsylvania. She wanted to cut my legs off too and give me a 'pretty prosthetic'. I left in tears and never returned. Damn shame that place. The nurses though - some are still there from twenty years ago and knew me as a kid - they have more knowledge than the docs I swear!

    I believe in that e-stim though .. there's something to it because for the first month of my trial, I never saw such healing occur before - it was almost miraculous. Then it went downhill fast ... lol.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  8. #18
    Quote Originally Posted by lynnifer
    Dr Keast is supposedly the president, or past president now, of the Canadian Wound Care Association. I had big hopes ... ha! I think Sibbald is now - not sure? Since seeing them, I've healed up a heel wound that had been open for 17yrs. Tells me how much they know.

    Dr Delaney is the only other Physical Rehab specialist that is female that I know of at Parkwood - she replaced my favourite and original doctor, Dr Allatt who is now in Pennsylvania. She wanted to cut my legs off too and give me a 'pretty prosthetic'. I left in tears and never returned. Damn shame that place. The nurses though - some are still there from twenty years ago and knew me as a kid - they have more knowledge than the docs I swear!

    I believe in that e-stim though .. there's something to it because for the first month of my trial, I never saw such healing occur before - it was almost miraculous. Then it went downhill fast ... lol.
    I too had high hopes when I saw both Sibbald and Keast, but have come not to trust wound dr's anymore. I think refering a patient to surgery is admitting defeat and would rather have us just lay in bed for a decade lol.

    Delaney, yeah, that the name that was eluding me. In my case she was brutally honest in telling me I needed surgery, which was the 1'st dr to say so. Which I appreciated. I can see where you are coming from though in what she said to you. Thats overkill in my opinion. I too have been battling a sore on my ankle for 15 plus years, comes, goes, etc..I wont cut my leg off over that.

    I've never actually seen the SCI ward at parkwood, only been to the outpatient clinic. I wanted to go up and check the place out, compare it to Chedoke, but never did make my way up there.

    I've found the nurses across the road at the University, (burns & plastics unit) where I had my flap surgery done were all amazing.

  9. #19
    Senior Member CapnGimp's Avatar
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    Quote Originally Posted by Sh0rty
    its a matrix cushion. I take a multi vit. Where do you get these suppliments from? I am trying to stay off it the best I can. I appreciate the advice
    http://www.global-nutrition-inc.com/nf-175.html
    I just ordered this one and one other item from them and the shipping total was about 5 bucks, so it's the cheapest place I have ordered from.
    I do some pretty high mileage riding on a handcycle(when I DO ride, lol)
    and if I eat a lot, I burn worse, so I have began using soy protein at strategic points during long ones and after each ride. Started it last year.
    Looked up your cushion(matrix flo-tech) from the canadian dealers of Motion Concepts, hadn't heard of it before. Looks like a good cushion. The reason I asked, I was going to say, if you are active and eat healthy and sit on a roho, I wouldn't get excited about being up occasionaly.
    I went thru a heck of an ordeal with a bad one caused by stupidity on my part, NOT a seating issue. It didn't make any progress with me laying in bed 24x7. After about 8 months of that absurdity, I got up off my bed and began living again. As I exercised, my wound began to heal, albeit on the outside. There was undiagnosed osteomyelitis which hid a tunnel inside, deep. I was almost healed on the outside, and the doc would debride and find a tunnel, cut it open again, etc. This went on for over 3 years. FINALLY, someone diagnosed the osteo (a wound care SPECIALIST <<--NOTE ) and we did surgery, stayed in the hospital 2 weeks, did IV antibiotics 2 weeks at home and it was all healed up. No laying around for months on end either.
    A good diet, prayer and exercise. Even the doc said it only had a 50-50 chance of healing as I am totally atrophied below injury. NO plastic surgeon would touch it. He wanted to call it a chronic wopund himself.
    I said, I will put my trust in God, you do the surgery, this vegan will heal.
    They were amazed to say the least, even BEFORE I left the hospital. I was originally scheduled for a month in the hospital, and fancy bed-months in it at home with IV antibiotics until it healed.
    2 weeks and he came and said, I'm letting you go home today, there is NO reason for you to be here. I've never saw anytrhing like it. I just grinned and said, I told you so. He is not a believer. Gave him something to think about there.

  10. #20
    100 grams. go w/ optimum nutrition gold standard whey. as an sci u should do 100 grams anyway, great for your skin and muscles.

    none of us get enough protein in our diet imo
    Bike-on.com rep
    John@bike-on.com
    c4/5 inc funtioning c6. 28 yrs post.
    sponsored handcycle racer

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