I had a suprapubic catheter put in on 4/19/2007, after using an external catheter for almost 29 years. The last couple years I had problems sometimes not being able to urinate after sitting up and it was determined that I occasionally had a kinked urethra.
Before the suprapubic, I would always get mild AD when my bladder was full and trying to empty itself by urinating. It's a little bit of a chill and tingling feeling that would would start 20 to 30 seconds before I started urinating and last as long as I was urinating (2-5 minutes) and then go away.
Well now, even though I've got the suprapubic, I'm still getting a lot of mild AD and have been urinating through my penis as well. The other problem is my lower back and abdomen (bladder) get tight and spasm which causes severe lower back pain, this happened before, but not this intense. I have had chronic lower back pain for about 26 years, but this makes it much worse. Also, when I get the mild AD and spasms, it could last for an hour or more go way for a while and then come back again. As I'm writing this, I've had the AD, abdomen and back spasms off and on (more on then off) for about three hours. My back and abdomen have pretty much been spasming the whole time.
I just saw my urologist on Monday, and he suggested trying Flomax, I started taking it Monday night and I think it's made it worse instead of better. Before Monday, I had urinated in bed three or four different times, absolutely soaking the "Chuck" (nickname for disposable under pad) that I lay on at night. Monday night my pants were mildly wet and Tuesday and Wednesday night, they were soaked as they are right now.
Being a quad for 29 years, I definitely have the quad gut and my urologist placed the catheter so low it's actually under my gut when I'm sitting up. I was wondering if my gut is putting too much pressure on my bladder or the area of the suprapubic causing it not drain completely? I asked my urologist about this and he said "No that wouldn't happen". Of course he's been wrong before though as he told me my urethra or couldn't be kinking when I'm setting up.
The suprapubic worked great when I first got it, all this just started happening a week or two ago, with the exception of urinating in bed once or twice. I definitely don't want to have to start wearing an external catheter, along with the suprapubic, that's one of the reasons I decided to go ahead with the surgery.
Has anybody here encountered the same problem? Any ideas on how I can keep dry and get my bladder to stop spasming? I assume with the suprapubic would work properly in empty my bladder completely these problems would be taken care of.