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    Senior Member lynnifer's Avatar
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    Aug 2002
    Windsor ON Canada

    Machado-Joseph disease

    An interesting article of a condition I've personally never heard of, nor is there a cure for it. He is raising funds to go to China for stem cell treatment at (Bieke Biotech) Hangzhou for cells from umbilical cords. The article states they will be injected directly into his CSF at a cost of $23,000. Acupuncture and intensive physiotherapy are also part of the regimen. They will be holding fundraisers in the coming months. He is married with two boys; 8 & 10 as well as a daughter who is 19.

    Hope for man's rare illness lies across the globe

    Friends rally to raise cash

    Gloria Bacci, The Windsor Star

    Published: Monday, July 09, 2007

    Trevor Dyett loves spending time with his two sons on the basketball court and the baseball diamond.

    But over the past year, it's become increasingly difficult for Trevor to keep up with his boys, Tyler, 8, and Treyvohn, 10.

    "I was seeing drastic differences in myself," said Trevor, who also has a 19-year-old daughter, Tempest.

    Trevor started to experience leg cramps, lack of balance and weakness in his limbs.

    After undergoing genetic tests last September, he was diagnosed with Machado-Joseph disease, a rare hereditary illness involving progressive deterioration of the central nervous system, for which there is no known cure.

    The degenerative disease is characterized by walking and balance problems, slurred speech and numbness, said Dr. Mary Jenkins, a movement disorders specialist at the London Health Sciences Centre.
    Last edited by lynnifer; 07-10-2007 at 09:40 AM.
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