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Thread: Question for the doctor

  1. #1
    Junior Member
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    Nov 2005
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    Warren Michigan
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    Question for the doctor

    I have brown sequard and I need an operation on my weak leg on my maliscular ? cartilage. Its an outpatient operation, and Im very worried about healing. I wake up every morning with mild spasms and tight leg and muscles weak. I have to workout by stretching and lifting weights for 3 hours in the mornings before I feel ok enough to go out and face the world. My accident happened 2 1/2 years ago and I have been struggling to walk since that time. I finally was starting to walk half way decent when the cartilage tore. Now every time I put weight down on my leg it hurts. Has anyone had an operation on their bad leg with a similiar procedure. I would like to know if you are able to recover from the operation and how much time it took. I started physical therapy today 5/8/07 and I am scheduled to go for 4 weeks. I dont belive physical therapy is going to do the trick, therefore I am considering the operation. I would like to hear any comments.

    Larry

  2. #2
    sorry for what you are going thru there larry.are you actually using something like valium or even baclofen for your spasticity?i too developed brown sequard and had major structural problems in my suposed 'good' leg,but this one also has RSD.did you actually have an acute rehab program after your injury?i felt very very lucky to get my leg back at all.i layed in my bed flat on my back for four days post op to remove a cavernoma from my cord thinking just because i could feel that weak spastic leg and wiggle my toes and actually move it ,that that ment i could also actually walk too.not happening then at all.i went to actually stand up for the first time on day five,once they got my BPs from dropping down into the systolic 80s,and placed my full weight on my right leg and thought everything was fine til i placed weight onto the left one,my ankle just folded and my leg crumbled.that was the very first clue i actually had that i couldn't freakin walk.that was creepy to say the least.it wasn't til i got to the rehab hospital that i found out i couldn't even feel hot cold or surface pain from the chest on down on my right side.i ended up,besides having that right knee affected with the BS to also end up developing RSD,a bakers cyst and a torn meniscus there too,along with bone marrow edema in the heads of the femur and the tibia.
    i desperately needed surgery but kept putting it off,i could feel horrid burning but was more afraid to actually have the surgery which could have caused the RSD to do a bilateral spread because of the sympathetic involvemnt that share the same part of the chain back there.i had to do something when the meniscus tore so we did it.things i guess healed pretty well,considering.

    one big thing i noticed tho during these past few years is because of the problems with my R knee,my gait has been different and causing problems within my 'good' knee now too.i would think tho that if you were able to gain back your ability to actually walk again that once you get this problem fixed,going back to rehab would help even more to get you where you need to be.you just need to get that knee back into working order again and just doing the same types of leg strengthening excercises would get you to a much better place than you currently are,you know what i mean?

    I would think that actually doing PT now,with an actual injury inside that knee would actually do more harm than good for you.once cartiledge is tore,it needs repair or the knee as a whole wont work properly and could conceivably cause you a more severe type injury.who actually reccomended PT while injured?what type of doc?I really would think twice about actually doing PT until that very real injury is repaired then really give it a go.i just realistically cannot see how doing PT with a torn anything could possibly be a good idea?if this was me,honestly i would get a surgical consult with a very good ortho who specializes in knees.that is what i did and he was really fantastic and actually knew what RSD was all about and also brown sequard.this is what you really need to do too.i just cannot see how PT would actually help you in this particular situation,not til AFTER that injury is fixed anyways.

    I do agree with you larry,i would most definitely go the surgical route then PT.i would think getting back that ability to really walk well would be much better odds once you get the injury repaired then do the strengthening.espescially since you said you were making progress before that injury.makes sense to me.i wish you lots of luck with this.just get a couple of opinions on the actual surgery unless you are lucky to find the one who really understands your 'whole' situation right away.my physiatrist is the one who referred me to my knee doc.he was right on with that referral.best ortho i ever met.please keep me posted on how things are going larry.Marcia

  3. #3
    Junior Member
    Join Date
    Nov 2005
    Location
    Warren Michigan
    Posts
    17

    marcia

    I do take backlafan for spasms and valium to help me sleep plus the spasms. Im wondering where to find orthopedic surgeons who do know about BSS. Im just very worried that I wont be able to heal and bend my knee right away cause I do have to stretch so many hours a day to be able to get myself moving, and then im worried if ill be able to walk at all again. Im going to the orthopedist tomarrow to see what he can give me so ill be able to walk a bit and at least put some pressure on it.

    Larry

  4. #4
    hey larry,you can just call some orthos within your ins network and ask some questions as to what they know about a particular condition and how much experience they have in treating patients with it.in the bigger ortho groups,you should be able to find at least one or even two that have a good understanding of it.speaking with the docs trusty sidekicks(they always have either an NP or a PA who does work with them who will actually do the initial patinet assessments at every appt,who then relay the info to the specialist before they see you?these are the folks you need to talk to as they would know)just ask for them to do a quick call back or even the person who you would make an appt with or a triage nurse at their facility would most likely know.i personally have been having to do this with neurosurgeons.unfortunetly the NS that actually did my spinal cord surgery who was head teaching prof at the U or M and had knowledge of everything neuro and was absolutely priceless to me during this ongoing nightmare inside my body has since retired.i have not been able yet to actually find one who has even a tiny bit of my prior NSs overall knowledge.i was damn lucky to have the one i had when my cav needed removal.this just sucks really.

    when you see this new ortho just ask him or her how much experience they have working with BS syndrome and knee surgery.actually,having some level of spasticity is really kind of a good thing post op from the stability standpoint,do you know what i mean?the tension within that leg does help keeping the muscles there a bit more stable as far as standing?vs not having that level of tension which would make you a bit less stable?sounds bizarre but it did help me.of course too much really sucks tho.just ask ALOT of questions regarding the possible complications of doing that knee surgery along with having BS.you should be able to tell just thru a simple conversaton just where a particular ortho stands in experience.

    just a thought here but getting a referral for this from a physiatrist might not hurt if possible.they most definitely understand BS and would probably know someone who would be your best bet.just a suggestion if you are seeing one or a physical medicine type doc.i do wish you luck with this Larry.please keep me posted.Marcia

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