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Thread: My feet are swollen ans I do not know why

  1. #1

    My feet are swollen ans I do not know why

    The last four month my feet has been very swollen ecpesially the left one. I sleep with my feet up in the nights but it does not help. I have been to the doctor and he does not understand why.

    My toes are red too. And looking like small sausages from edema. And I have more spasmes than normal in my left foot. I believe my whole body is swollen because all my pants are tight and I have gain some extra kg. And of course, my normal shoes are out of the question. My doctor do not know anything about SCI and he has denied me to see a spesialist because I was in the hospital in the summer. But then everybody had holiday and nobody knew anything. Anyway, the waiting list are long, maybe eight month.

    Nothing is wrong with my kidneys except I have had an UTI since June but I do not get antibiotics because I do not have enough fever. I have chills and I am peeing in my pants, it does not help. I have been to the E.R too but there they did not understand a thing so they sent me home again. I have tried those thight socks but they hurt my feet, my skin is easely painful and the socks was a nightmare.

    Anybody here has a good advice? The people I know with SCI here, tells me to go to the doctor but since that is useless, I ask here instead and hope you can help. My feets are not painful, I do not have a DVT, but it would have been nice to be able to put shoes on since the fall are here and it is cold outside.

    TH 12 incomplete 12-12-69.

  2. #2
    Nothing is wrong with my kidneys except I have had an UTI since June but I do not get antibiotics because I do not have enough fever. I have chills and I am peeing in my pants, it does not help. I have been to the E.R too but there they did not understand a thing so they sent me home again.
    how do you know nothing is wrong w/ your kidneys if you have had a uti since june
    ( ) and are not taking antibiotics, and have not gone back to your dr to demand tests and/or have not gone to the emergency room?
    you sound pretty sick to me.
    your sci friends are right....go to the dr!
    able-bodied ppl get uti's and kidney problems and edema too, it is not sci specific, an ER should have no problems treating/testing you.
    what in heavens name do you think a message board in cyberspace can do for you, realistically, when you've been un-well for so long?

  3. #3
    I took all the kidney tests in the July, keratinintest, cystometri and ultrasound, everything was ok. I have had UTIs for the last 20 years and I only get antibiotics if I have fever.

    The E.R is only sending my home again, I have been there twice and they do not understand anything even if I have the epicrisis from my SCI doctor. They tell me to go to my usual doctor because it is not an emergency. So I have seen five different doctors since June because of it.

    And I worry, and I do not feel ok. But nobody want to listen, they think I am hysterical.

    TH 12 incomplete 12-12-69.

  4. #4
    You really need to see a SCI specialist. There must be someone nearby that you can see who knows something about SCI. Where do others with SCI in your area get their care? Is there a SCI support group or independent living center where you could get information about others' physicians that are helpful? Is there a SCI rehab center with an outpatient clinic anywhere near you where you could get care?

    Is your sodium intake high? Do you drink sodas? These can cause fluid retention. Did you actually have a test (Doppler or blood test) for DVT, or were you just given a physical exam to determine if you have a DVT or not? Were the results of all your tests this summer normal? Edema can indicate kidney disease, but your creatinine would be usually be elevated if that were the case. Were your blood protein levels tested? Low blood proteins can sometimes cause peripheral edema (and indicate poor nutrition).

    There are custom made stockings that are less painful to apply than off-the-shelf compression hose. In the USA Jobst makes these. I am not certain of brands for this in Europe, but I would be very surprised if they do not have them. Do you elevate your legs in bed at night? Is the swelling gone in the morning, or is it still present?

    Chills and incontinence are considered a symptomatic UTI. A postive culture is not. You should be treated if you have chills and incontinence, but of course this treatment must be based on a culture and sensitivity test. You should insist on this being done at your clinic or in an emergency room.

    Until you can find a cause for this, can you get larger, soft slippers for your feet? As the weather gets colder you do not want to risk frost bite.

    (KLD)

    PS. Nancie, please be a little more tolerant of others on this forum.

  5. #5
    PS. Nancie, please be a little more tolerant of others on this forum.
    i wasn't aware i wasn't being tolerant.
    tone of voice can't be heard when typed.
    i'm sorry you mistook my post for intolerance.

  6. #6
    Senior Member lynnifer's Avatar
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    If your feet are as swollen as you report, any kind of tight anything wouldn't be good to put on them. The crease made from Jobst stockings might cause a pressure sore or cut across the top of your foot where it meets your leg.

    If possible, take a week in bed to try and get the swelling down. (Sometimes I take the two days off I get inbetween shifts and sleep at least 12hrs - waste of a day but helps tremendously with swelling). I also cut out caffeine (barely drink pop but drink a lot of tea) and anything with sugar to help. I try to limit my salt intake but I'm a self-admitted salt freak.

    My left foot is always more swollen as well and always the first to become swelled after waking. I believe there is an artery through the leg that hits a curve once in the trunk of the body. You have reported not being able to walk around as much - is it possible you're sitting more and compromising the circulation?

    Barring all those possible explanations or solutions - could it be possible that it's a condition of 'the change?' i.e. menopause?

    I find a direct link to that time of the month and how swollen my feet get.

    P.S. I hope it gets better for you soon!

    [This message was edited by lynnifer on 09-14-04 at 06:44 AM.]

  7. #7
    Thanks to all of you.

    I have tried to call the SCI hospital and I try again tomorrow.

    I drink one cup of coffee a day, a lot of water and some green tee. I do not walk to much anymore but the doctor who took the ultrasound for DVT said my circulation was good.

    I sleep with my feet up every night and have done it for at least the last two month. And I am in the change and are taking hormones for it. I have an appointment with the gynekologist in the end of november.

    TH 12 incomplete 12-12-69.

  8. #8
    Senior Member darty's Avatar
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    O.K. here is my story...

    I had swollen feet and ankles for three years and kept going to my rehab doc who kept telling me to limit my sodium, elevate my feet, kick the caffine, wear tight jobst sox then he would increase my water pill.

    Finally I found a vascular surgen who diagnosed me with limphadema, it is a failure of your limph system to bring the fluid back up from your legs. I had a dopp;er study to rule out clots. With no clots and no chf he sent me for 12 treatments to the lymphadema clinic, I went 2 times a week for 6 weeks and I am totaly cured. It's been over a year now with no medication, tight sox and no swelling.

    Might be something to check out

  9. #9
    Thank you

    I can take that up with my doctor

    TH 12 incomplete 12-12-69.

  10. #10
    That is lymphedema.

    (KLD)

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