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Thread: Christopher and Dana Reeve Paralysis Act

  1. #61
    Yeah! About damn time!
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

  2. #62
    On To The Senate
    Every day I wake up is a good one

  3. #63

    From the Christopher and Dana Reeve Foundation

    The House of Representatives has just passed H.R. 1727, the Christopher and Dana Reeve Paralysis Act.” The landmark legislation encourages coordination of research to prevent redundancies and hasten discovery of better treatments and cures, as well as to improve the daily lives for those living with paralysis.
    Every day I wake up is a good one

  4. #64
    Long time coming, halfway there! (Assuming W won't waste a veto on us.)

  5. #65
    Quote Originally Posted by betheny
    Long time coming, halfway there! (Assuming W won't waste a veto on us.)
    Oh no way could he do that after the fallout from the SCHIP veto, if it passes the Senate. Let's hope anyway.
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

  6. #66
    Great news.Hope it goes throught smoothly.
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  7. #67
    They've got me so jaded by now I'm afraid to get excited. That is so sad.

  8. #68

    Statement from Christopher and Dana Reeve Foundation

    Maggie Goldberg
    CDRF
    (973) 379-2690
    media@ChristopherReeve.org


    CHRISTOPHER AND DANA REEVE FOUNDATION LAUDS U.S. HOUSE OF REPRESENTATIVES PASSAGE OF THE CHRISTOPHER AND DANA REEVE PARALYSIS ACT

    Congress Moves a Step Closer to Having Collaborative Research, Rehabilitation and Quality of Life Legislation Signed into Law

    SHORT HILLS, N.J. – October 15, 2007 – The Christopher and Dana Reeve Foundation (CDRF), the national, non-profit organization dedicated to finding cures and treatments for spinal cord injuries and improving the lives of people living with paralysis, applauds the U.S. House of Representatives for passing H.R. 1727, the Christopher and Dana Reeve Paralysis Act (CDRPA). The bill, which enjoys strong bi-partisan support, was named for the late actor Christopher Reeve and his wife Dana, whose courage and grace in the face of adversity were an example to millions around the world.

    The landmark legislation encourages coordination of research to prevent redundancies and hasten discovery of better treatments and cures, as well as to improve the daily lives for those living with paralysis. It also permits funding for federal programs which seek to improve the daily lives for those living with paralysis. The Act has three components that support and enhance paralysis research, rehabilitation, and quality of life programs:

    • Paralysis Research - Expands research on paralysis at the National Institutes of Health (NIH). This will encourage collaborative research by connecting scientists conducting similar work to further enhance understanding and speed discovery of better treatments and cures.

    • Paralysis Rehabilitation and Care - Builds on research to enhance daily function for people with paralysis including a Clinical Trials Network to measure effectiveness of certain rehabilitation tactics and encouraging shared findings on paralysis to improve rehabilitation.

    • Improving Quality of Life for Persons with Paralysis and Other Physical Disabilities - Works with the Centers for Disease Control and Prevention (CDC) to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities.

    “Passage of this legislation today is extremely gratifying,” said Congresswoman Tammy Baldwin (D-WI). “We honor the activism of Christopher and Dana Reeve with this bipartisan effort to better treat and, we hope, cure paralysis and other serious motor impairments. Chris and Dana used their visibility to work on behalf of families in all parts of the country who face the challenges of paralysis and impaired mobility. This legislation, passing just days after the third anniversary of Christopher Reeve’s death, is part of their legacy,” Baldwin said.

    Peter Wilderotter, president of the Christopher and Dana Reeve Foundation praised the House and its leadership for quickly passing this historic Act. He also thanked Representatives Tammy Baldwin, Mary Bono (R-CA), James Langevin (D-RI) and Gus Bilirakis (R-FL) for sponsoring and spearheading this legislation in Christopher and Dana Reeve’s names. “Improvements are made every day in spinal cord injury research, but the Christopher and Dana Reeve Paralysis Act will help to quickly and efficiently stimulate even more progress,” added Wilderotter.

    The Christopher and Dana Reeve Paralysis Act will improve the quality of life for people living with paralysis and mobility impairments from any cause – stroke, ALS, spinal cord injuries, and others. A similar bill, S. 1183, was approved by the Senate Committee on Health, Education, Labor and Pensions Committee and is awaiting action by the full Senate.


    About CDRF
    The Christopher and Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy. For more information, please visit our website at www.ChristopherReeve.org or call 800-225-0292.

    ###
    Every day I wake up is a good one

  9. #69
    Senior Member Leo's Avatar
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    so cool
    http://justadollarplease.org/

    2010 SCINet Clinical Trial Support Squad Member

    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

  10. #70

    Questions

    Hi!
    I stumbled upon this site and decided to join. Please excuse my ignorance, but I saw Tammy Baldwins name on this list, and I am wondering what exactly it is for. My son is a 12 year old T12 SCI patient due to a MVA last year. It is a whole new world, and very lonely for both of us at times, so I am searching for help, fellowship, and support. Would soemone call or email me? karmitage37@yahoo.com

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