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Thread: Christopher and Dana Reeve Paralysis Act

  1. #11
    Senior Member Leo's Avatar
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    hi litespeed,

    have you heard Dodd's opinion on this

    my guess is Harkin may just need to be reminded or is in the process

    thinking consentraiting on the comm. members

    we need a generic letter thanking these committee co-sponsors and maybe ask them who else would be possible and also urging them to get this out and vote

    we cannot wait until last minute again

    imo
    http://justadollarplease.org/

    2010 SCINet Clinical Trial Support Squad Member

    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

  2. #12
    Senior Member Leo's Avatar
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    here are the co-sponsors from last year that are not yet on this years.

    some are no longer in office,



    Sen Corzine, Jon S. [NJ] - 7/20/2005
    Sen Dodd, Christopher J. [CT] - 10/31/2005
    Sen Feinstein, Dianne [CA] - 5/3/2006
    Sen Jeffords, James M. [VT] - 2/7/2006
    Sen Kerry, John F. [MA] - 4/18/2005
    Sen Landrieu, Mary L. [LA] - 7/20/2005
    Sen Lincoln, Blanche L. [AR] - 12/7/2006
    Sen McCain, John [AZ] - 5/25/2005
    Sen Santorum, Rick [PA] - 9/20/2006
    Sen Sarbanes, Paul S. [MD] - 9/20/2005
    Sen Specter, Arlen [PA] - 4/18/2005
    Sen Stabenow, Debbie [MI] - 7/11/2005

    --------------------------------------------

    Rep Allen, Thomas H. [ME-1] - 11/16/2005
    Rep Andrews, Robert E. [NJ-1] - 4/14/2005
    Rep Bass, Charles F. [NH-2] - 6/19/2006
    Rep Berman, Howard L. [CA-28] - 9/25/2006
    Rep Boehlert, Sherwood [NY-24] - 9/6/2006
    Rep Bradley, Jeb [NH-1] - 4/19/2005
    Rep Brown, Sherrod [OH-13] - 4/12/2005
    Rep Brown-Waite, Ginny [FL-5] - 7/12/2005
    Rep Case, Ed [HI-2] - 4/12/2005
    Rep Costello, Jerry F. [IL-12] - 4/26/2005
    Rep Dingell, John D. [MI-15] - 7/28/2006
    Rep Doggett, Lloyd [TX-25] - 5/26/2005
    Rep Engel, Eliot L. [NY-17] - 4/6/2006
    Rep Fossella, Vito [NY-13] - 4/12/2005
    Rep Goode, Virgil H., Jr. [VA-5] - 5/11/2006
    Rep Hall, Ralph M. [TX-4] - 2/8/2006
    Rep Harman, Jane [CA-36] - 9/29/2006
    Rep Herseth, Stephanie [SD] - 6/13/2005
    Rep Hinchey, Maurice D. [NY-22] - 4/12/2005
    Rep Holt, Rush D. [NJ-12] - 4/26/2005
    Rep Honda, Michael M. [CA-15] - 3/29/2006
    Rep Inslee, Jay [WA-1] - 9/6/2005
    Rep Jenkins, William L. [TN-1] - 9/6/2006
    Rep Jindal, Bobby [LA-1] - 7/20/2006
    Rep Kaptur, Marcy [OH-9] - 4/26/2005
    Rep Kelly, Sue W. [NY-19] - 5/16/2005
    Rep Kildee, Dale E. [MI-5] - 4/26/2005
    Rep Kline, John [MN-2] - 9/21/2005
    Rep Lantos, Tom [CA-12] - 9/25/2006
    Rep Lee, Barbara [CA-9] - 4/12/2005
    Rep Lewis, John [GA-5] - 9/12/2006
    Rep Lofgren, Zoe [CA-16] - 4/28/2005
    Rep Lowey, Nita M. [NY-18] - 9/29/2006
    Rep Lucas, Frank D. [OK-3] - 9/6/2005
    Rep Lynch, Stephen F. [MA-9] - 10/25/2005
    Rep Maloney, Carolyn B. [NY-14] - 5/2/2006
    Rep Manzullo, Donald A. [IL-16] - 9/6/2005
    Rep Marshall, Jim [GA-3] - 9/12/2006
    Rep McDermott, Jim [WA-7] - 4/14/2005
    Rep Michaud, Michael H. [ME-2] - 7/13/2005
    Rep Miller, Brad [NC-13] - 9/7/2005
    Rep Miller, Candice S. [MI-10] - 5/3/2005
    Rep Moore, Dennis [KS-3] - 7/12/2005
    Rep Napolitano, Grace F. [CA-38] - 6/26/2006
    Rep Neal, Richard E. [MA-2] - 4/25/2006
    Rep Olver, John W. [MA-1] - 5/18/2005
    Rep Owens, Major R. [NY-11] - 9/6/2006
    Rep Pallone, Frank, Jr. [NJ-6] - 9/19/2006
    Rep Price, David E. [NC-4] - 4/20/2005
    Rep Reyes, Silvestre [TX-16] - 10/6/2005
    Rep Sanchez, Linda T. [CA-39] - 7/27/2005
    Rep Saxton, Jim [NJ-3] - 6/9/2005
    Rep Sessions, Pete [TX-32] - 5/23/2005
    Rep Shaw, E. Clay, Jr. [FL-22] - 11/18/2005
    Rep Simmons, Rob [CT-2] - 9/28/2005
    Rep Smith, Adam [WA-9] - 4/12/2005
    Rep Strickland, Ted [OH-6] - 11/16/2005
    Rep Towns, Edolphus [NY-10] - 4/12/2005
    Rep Van Hollen, Chris [MD-8] - 5/3/2006
    Rep Visclosky, Peter J. [IN-1] - 4/26/2006
    Rep Walden, Greg [OR-2] - 4/13/2005
    Rep Wolf, Frank R. [VA-10] - 5/11/2006
    Rep Wynn, Albert Russell [MD-4] - 9/14/2006
    Rep Young, C.W. Bill [FL-10] - 4/19/2005
    Last edited by Leo; 05-24-2007 at 07:03 PM.
    http://justadollarplease.org/

    2010 SCINet Clinical Trial Support Squad Member

    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

  3. #13
    Thx, Leo--Sen. Mark Dayton is no longer in office. I am working on his predecessor, Sen. Amy Klobuchar.

  4. #14
    Senior Member Leo's Avatar
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    bump, mods can we maybe have this as a sticky
    http://justadollarplease.org/

    2010 SCINet Clinical Trial Support Squad Member

    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

  5. #15

    Co-sponsors-Latest Update

    Excellent progress, here is the latest co-sponsor lists:

    House Co-Sponsors of the Christopher and Dana Reeve Paralysis Act (H.R.1727)
    40 Co-Sponsors


    Representative Tammy Baldwin (D-WI) Representative Gus Bilirakis (R-FL)
    Representative Mary Bono (R-CA) Representative G.K. Butterfield (D-NC)
    Representative Michael Capuano (D-MA) Representative Diana DeGette (D-CO)
    Representative William Delahunt (D-MA) Representative Charles Dent (R-PA)
    Representative Jo Ann Emerson (R-MO) Representative Anna Eshoo (D-CA)
    Representative Barney Frank (D-MA) Representative Wayne Gilchrest (R-MD)
    Representative Gene Green (D-TX) Representative Raul Grijalva (D-MD)
    Representative Tim Holden (D-PA) Representative Michael Honda (D-CA)
    Representative Patrick Kennedy (D-RI) Representative Nick Lampson (D-TX)
    Representative Jim Langevin (D-RI) Representative Edward Markey (D-MA)
    Representative James McGovern (D-MA) Representative John McHugh (R-NY)
    Representative Michael McNulty (D-NY) Representative Martin Meehan (D-MA)
    Representative James Moran (D-VA) Representative Donald Payne (D-NJ)
    Representative Jim Ramstad (R-MN) Representative Charles Rangel (D-NY)
    Representative Janice Schakowsky (D-IL) Representative Pete Fortney Stark (D-CA)
    Representative Betty Sutton (D-OH) Representative Lee Terry (R-NE)
    Representative John Tierney (D-MA) Representative Greg Walden (R-OR)
    Representative Timothy Walz (D-MN) Representative Henry Waxman (D-CA)
    Representative Peter Welch (D-VT) Representative Robert Wexler (D-FL)
    Representative Albert Russell Wynn (D-MD) Representative John Yarmuth (D-KY)

    Senate Co-Sponsors of the Christopher & Dana Reeve Paralysis Act, S. 1183
    24 Co-Sponsors

    Senator Jeff Bingaman (D-NM) Senator Barbara Boxer (D-CA)
    Senator Sherrod Brown (D-OH) Senator Richard Burr (R-NC)
    Senator Hillary Clinton (D-NY) Senator Thad Cochran (R-MS)
    Senator Norm Coleman (R-MN) Senator Richard Durbin (D-IL)
    Senator Lindsey Graham (R-SC) Senator Tom Harkin (D-IA)
    Senator Daniel Inouye (D-HI) Senator Tim Johnson (D-SD)
    Senator Edward Kennedy (D-MA) Senator John F. Kerry (D-MA)
    Senator Frank Lautenberg (D-NJ) Senator Patrick Leahy (D-VT)
    Senator Carl Levin (D-MI) Senator Robert Menendez (D-NJ)
    Senator Barbara Mikulski (D-MD) Senator Patty Murray (D-WA)
    Senator Jack Reed (D-RI) Senator Charles Schumer (D-NY)
    Senator Gordon Smith (R-OR) Senator Sheldon Whitehouse (D-RI)

  6. #16

    Determined to Heal

    We need Ben Cardin to sign on to the CDRPA. Maybe you and Sue can make that happen.
    Every day I wake up is a good one

  7. #17
    Senior Member Foolish Old's Avatar
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    Anybody want to provide a summary update on the major provisions and talking points for advocates of this bill in its current form?
    Foolish

    "We have met the enemy and he is us."-POGO.

    "I have great faith in fools; self-confidence my friends call it."~Edgar Allan Poe

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  8. #18

    Summary of CDRPA

    Christopher & Dana Reeve Paralysis Act (H.R. 1727, S.1183)-Courtesy of the Christopher & Dana Reeve Foundation

    The Christopher & Dana Reeve Paralysis Act (CDRPA) was introduced in the House of Representatives (H.R.1727) in March 2007 and the Senate (S.1183) in April 2007. The CDRPA is non-controversial and has strong bi partisan support, led by Representatives Tammy Baldwin (D-WI), Mary Bono (R-CA), Jim Langevin (D-RI), and Gus Bilirakis (R-FL), and Senator Tom Harkin (D-IA). In honor of Dana Reeve, her generosity of spirit and her tireless work as a wife, mother, caregiver and advocate, Congress has added her name to the title of this important piece of legislation. The Christopher and Dana Reeve Paralysis Act solidifies the vision Christopher and Dana worked so hard to achieve for the paralysis community, including collaborative scientific research, enhanced rehabilitation research, and improved access to better quality of life programs for people living with paralysis throughout the country.

    The Christopher & Dana Reeve Paralysis Act has three components that support and enhance paralysis research, rehabilitation and quality of life programs:

    Title I: Paralysis Research. The bill expands research on paralysis at the National Institutes of Health (NIH) by establishing the Christopher Reeve Paralysis Consortia. This style of research promotes collaboration – connecting scientists doing similar work in multiple fields to enrich understanding and speed discovery of better treatments and cures.

    Title II: Paralysis Rehabilitation and Care. The bill calls for research to advance daily function for people with paralysis including intensive activity-based research to measure the effectiveness of certain rehabilitation tactics that aim to improve mobility, prevent secondary complications, and develop improved assistive technology.

    Title III: Improving Quality of Life. The bill will develop unique programs at the Centers for Disease Control & Prevention (CDC) to better the quality of life and long-term health status of persons with paralysis and other physical disabilities. Programs include providing grants to non-profit health and disability organizations to educate the public about paralysis, improve access to services, and integrate life with paralysis into society, as well as coordinate services within each state to assist persons living with paralysis.

    The Christopher & Dana Reeve Paralysis Act has been labeled a model bill that enhances current programs with an eye to the future. The main tenants of this legislation are in-line with the initiatives advanced by the current Administration: coordination, collaboration, and a reduction in research redundancies. The CDRPA creates mechanisms to more efficiently spend current dollars and would support programs proven to reduce health care costs.

  9. #19
    Oregon's sole Republican Representative, Greg Walden, who represents my district; has signed on as a co-sponsor of the CDRPA. When we visited him during W2W, he was unaware the CDRPA had been re-introduced. Two follow up emails, one to thank him for his taking time to visit with us personally and another to layout our reasoning as to the bill's importance and he signed on. It pays to visit!

    Here is a link to the latest numbers as posted in Thomas.

    John
    Last edited by john smith; 06-05-2007 at 07:55 AM.
    "Hope is like a road in the country; there was never a road, but when many people walk on it, the road comes into existence." Lin Yutang

  10. #20

    Massachusettes--9 out of 10 Reps are Co-sponsors

    Massachusettes advocates are closing in on 10 for 10. 9 of the 49 cosponsors are from MA. Way to go, Massachusettes!

    John--congratulations!!

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