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Thread: Spontaneous Spinal Epidural Haematoma

  1. #1

    Spontaneous Spinal Epidural Haematoma

    Hi, I Am New To This, I Need Your Help, Has Anyone Got Any Information On This Disease, My 12 Year Old Grandson Was Struck Down With It Last December, And Is Now Tetraplegic C6 complete
    Carol
    Last edited by carolanne; 04-27-2007 at 06:35 AM.

  2. #2
    Senior Member keps's Avatar
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    Hello and welcome Carolanne.
    I'm sorry to hear what happened to your grandson.

    I had a spontaneous spinal epidural haematoma in 2004, and was left paraplegic.

    Here is a thread about it here -

    http://sci.rutgers.edu/forum/showthread.php?t=9231

    Dr Wise Young posted some interesting information there. Hopefully it'll be of interest to you.

  3. #3

    Spontaneous Spinal Epidural Haematoma

    HI KAREN THANK YOU FOR YOUR REPLY, WE HAVE BEEN TOLD THAT SSEH IS VERY RARE IN CHILDREN, INFORMATION THAT WE HAVE FOUND STATES THAT THERE HAS ONLY BEEN 27 OTHER CASES REPORTED IN CHILDREN IN THE WHOLE WORLD, JOSHUA BEING THE 28th. HE IS NOW AT HOME, AFTER SPENDING 4 MONTHS IN HOSPITAL, THE LAST ONE STOKE MANDEVILLE, NOW WE HAVE THE ADDED PROBLEM OF BATTLING WITH THE AUTHORITIES TO GET THE HOUSE ADAPTED TO MEET HIS, AND HIS FAMILIES NEEDS, PLUS THE FRUSTRATION OF OBTAINING EQUIPMENT FOR HIM, IT SEEMS TO ME THAT THE AGENCIES INVOLVE WITH HIM, JUST DO NOT COMMUNICATE WITH EACH OTHER.

  4. #4
    Senior Member keps's Avatar
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    Oh, so you are in the UK?

    I didn't realize SSEH was quite so rare in children.

    I'm so sorry you are having such troubles with the authorities. I can't understand why they are being so difficult.

    Are Stoke helping you with stuff? Because I think they could.

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