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Thread: Help Me Find Best Place for Son's SCI Rehab

  1. #1

    Help Me Find Best Place for Son's SCI Rehab

    Can anybody give me an indication of their experience of a good rehab facility. My son is still in ICU with C6/C7 SCI. Is presently at PA, Queensland, Australia. I would like to find out whether this is the best place for him to be for rehab or should I look at moving him to somewhere better - private or state?

  2. #2

    Moving to New Injury

    Hi~ I am moving this to the new injury forum in the hopes that others will see it and respond.

    I know that Dogger did his rehab at PA in Brisbane. He is currently on a plane headed for the states. Give him a day or so and I am sure he will pipe in.

    Ananbanana and any other Ozzies can you please post.
    Every day I wake up is a good one

  3. #3
    My husband went to the Shepherd Center in Atlanta, GA. Fanrastic facility with, in our opinion, the best physical and occupational therapists. It's a facility strictly for neurological problems, but it seems to be mainly SCI patients. I would highly recommend it for him.

  4. #4

    Rehab aimed at return of motor neuron function

    Thanks for responding Guys- it is nice to know someone else is out there. Ben (22) is due to go down to acute on Monday. I have spoken to doctors who say that the rehab that they offer includes maintaining range of movement incase of a return of function but nothing aimed at encouraging motor neuron function. Is this the norm. Your website talks about using FES within first six weeks of injury. They only use the FES for certain patients and that is later down the track. Are there any rehab centres that focus on the return of motor neuron function as well as the use of remaining functions?

    It would be good to know what Dogger went over to the States for and where he went to.

  5. #5
    Quote Originally Posted by Jill Aldridge
    It would be good to know what Dogger went over to the States for and where he went to.
    Dogger is about 16 years post injury. He is attending the Symposium and Rally in DC as well as getting care at Kennedy Krieger in Baltimore for a week.

    Look up his name in Search and send him a private message. It will go to his email account. Try this link: http://sci.rutgers.edu/forum/private...o=newpm&u=1401
    Every day I wake up is a good one

  6. #6
    I did my 11 months rehab at the PA starting June 05. No complaints. You don't really have much choice of places in Australia... PA is the only SIU for QLD, NT, and northern NSW. It's really good though- their TRP program is brilliant, especially if you're not from Brisbane [i was from Rocky]. Anything you want to know, email me dazonic@gmail.com

  7. #7
    Junior Member
    Join Date
    Apr 2006
    Location
    Southern Indiana
    Posts
    23
    My son did his first intensive rehab at Kennedy Krieger in Baltimore. It is a fantastic place and he received 6 hours of therapy a day.He was inpatient. The building is older and not much to look at, but the therapy is outstanding. The doctor that runs the facility is Dr. John McDonald, who is the same doctor that treated Christopher Reeves and he also was the inventor of the Restorative Therapy FES bike.

  8. #8
    Jiill.

    It is good that you are open and searching for the best treatment possible. Dr.s, nurses and people who have lived with SCI offer support here. I moved my daughter, 16, SCI C/6 incomplete, post 2 years, from Shenton Park in Perth, Australia. I regret waiting seven months to do so. I have heard that there is a progressive place in New Zealand, but don't know if they use E-Stim. Shepards spealizes in young people and I know that Kennedy Kreiger does as well. My daughter did therapy at Kennedy Kreiger and thought highly of their program.

  9. #9

    Rehab Choices

    I am in the process of writing a book on my experience with spinal cord injury. I have just completed writing the chapter on rehabilitation hospitals in the US. Here is the information. I hope this helps. If you want to talk to me further, my email is cboyles@swbell.net. I can't tell you anything about rehabilitation from a personal perspective. I never had any rehabilitation. It took 6 weeks from the time of the accident until the doctors finally figured out I had a spinal cord injury.

    Notwheels

    There is a group of 16 facilities in the United States that are called Model System of Care facilities. These 16 facilities are the most progressive in their care of spinal cord injuries.
    I have provided below a list of spinal cord injury hospitals and rehabilitation centers by state according to www.sci-info.pages.com:
    Alabama
    University of Alabama at Birmingham (UAB) (16)
    UAB Model SCI System
    Office of Research Services
    619 19th Street South, SRC 529
    Birmingham, AL 35249-7330
    1-205-934-3293
    sciweb@uab.edu
    www.spinalcord.uab.edu

    Spain Rehabilitation Center
    part of the University of Alabama System
    I could not find contact information

    California
    CareMeridian (10 facilities throughout California)
    1-800-852-1256
    gwakefield@caremeridian.com
    www.caremeridian.com
    There is a contact form on the website

    Casa Colina Centers for Rehabilitation
    255 East Bonita Avenue
    P.O. Box 6001
    Pomona, CA 91769-6001
    1-909-596-7733
    1-800-926-5462
    Fax 1-909-593-0153
    TDD-TYY-Q 1-909-596-3646
    rehab@casacolina.org
    www.casacolina.org

    Rancho Los Amigos National Rehabilitation Center
    7601 E. Imperial Highway
    Downey, CA 90242
    1-562-401-7111
    TDD/TTY 1-562-401-8450
    www.rancho.org



    Santa Clara Valley Medical Center (16)
    Rehabilitation Research Center for TBI & SCI
    Santa Clara Valley Medical Center
    751 South Bascom Avenue
    San Jose, CA 95128
    1-408-793-6433
    Fax 1-408-793-6434
    www.tbi.sci-org

    Stanford Hospital & Clinics
    300 Pasteur Drive
    Stanford, CA 94305
    1-650-723-4000
    Stanford Referral Center 1-800-756-9000
    www.stanfordhospital.com
    contact form on website

    Colorado
    Craig Hospital (16)
    3425 S. Clarkson Street
    Englewood, CO 80113
    1-303-789-8000
    Spinal Cord Injury Admissions Karen Mathias 1-303-789-8437
    www.craighospital.org
    admissions@craighospital.org

    Spalding Rehabilitation Hospital
    900 Potomac Street
    Aurora, CO 80011
    1-303-367-1166
    www.spaldingrehab.com
    contact form on website

    University of Colorado Hospital
    Aurora/Anschutz Medical Campus
    University of Colorado Hospital
    Anschutz Inpatient Pavillion
    12605 E. 16th Avenue
    Aurora, CO 80045
    1-720-848-4011
    www.uch.edu



    University of Colorado Hospital
    9th & Colorado
    4200 E. Ninth Avenue
    Denver, CO 80220
    1-303-372-0000
    www.uch.edu

    Delaware
    Regional Spinal Cord Injury Center of Delaware Valley (16)
    Thomas Jefferson University Hospital
    Spinal Cord Injury Center
    Main Building, Suite 375
    132 South 10th Street
    Philadelphia, PA 19107
    1-215-955-6579
    Fax 1-215-955-5152
    www.spinalcordcenter.org

    Magee Rehabilitation Hospital
    1513 Race Street
    6 Franklin Plaza
    Philadelphia, PA 19102
    1-215-587-3000
    1-800-96-MAGEE
    www.spinalcordcenter.org

    District of Columbia
    National Rehabilitation Hospital
    102 Irving Street, NW
    Washington, DC 20010
    1-202-877-1000
    www.nrhrehab.org

    Florida
    South Florida Regional Spinal Cord Injury Model System (16)
    Mailing Address
    Leonard M. Miller School of Medicine University of Miami
    South Florida Spinal Cord Injury Model Systems
    P.O. Box 016960
    Mailing Locator D-48
    Miami, FL 33101



    Building Location
    Leonard M. Miller School of Medicine University of Miami
    Department of Rehabilitative Medicine
    1611 N.W. 12th Street
    Rehab Center-Basement Floor
    Miami, FL 33136
    1-305-585-1339
    Fax 1-305-585-1340
    Appointments 1-305-243-6605
    Consult Line 1-305-585-7112
    www.sci.med.miami.edu

    Georgia
    Shepherd Center (16)
    2020 Peachtree Road, NW
    Atlanta, GA 30309
    Referral (Admissions) 1-404-350-7345
    Main Line 1-404-352-2020
    www.shepherd.org

    Illinois
    Midwest Regional Spinal Cord Injury Care System (16)
    Northwestern University Feinberg School of Medicine
    Department of Physical Medicine and Rehabilitation
    Rehabilitation Institute of Chicago
    345 East Superior Street
    Chicago, IL 60611
    1-312-238-2870
    Fax 1-312-238-1219
    r-bailey@northwestern.edu
    www.medschool.northwestern.edu

    Indiana
    Hook Rehabilitation Center

    Mailing Address
    Community Health Network
    1500 North Ritter Avenue
    Indianapolis, IN 46219
    1-317-355-1411
    1-800-777-7775
    www.ecommunity.com
    website offers live chat with an operator from 8 am to 8 pm M-F EST



    Rehabilitation Hospital of Indiana—RHI
    4141 Shore Drive
    Indianapolis, IN 46254
    1-317-329-2000
    www.rhin.com

    Maryland
    Kernan Hospital
    2200 Kernan Drive
    Baltimore, MD 21207
    1-410-448-2500
    TTY 1-410-448-1967
    Appointments 1-800-492-5538
    University Rehabilitation Referral Service 1-410-328-8680
    www.umm.edu/kernan
    www.kernanhospital.com

    Massachusetts
    New England Regional Spinal Cord Injury Center (16)
    Boston Medical Center
    One Boston Medical Center Place
    Boston, MA 02118
    1-617-638-8000
    www.bmc.org

    Spaulding Rehabilitation Hospital
    125 Nashua Street
    Boston, MA 02118
    1-617-573-7000
    TTD/TTY 1-800-439-2370
    www.spauldingrehab.org

    Michigan
    Center for Spinal Cord Injury Recovery
    Rehabilitation Institute of Michigan
    261 Mack
    Detroit, MI 48201
    1-866-SCI-CENTER
    Brian F. Sheridan, OTR
    CSCIR, Program Supervisor
    bsherida@dmc.org





    Mary Free Bed
    235 Wealthy SE
    Grand Rapids, MI 49503
    1-616- 242-0300 or
    1-800-528-8989
    Spanish or Vietnamese interpreters available
    info@maryfreebed.com

    University of Michigan (16)
    University of Michigan Health System
    1500 E. Medical Center Drive
    Ann Arbor, MI 48109
    1-734-936-4000
    www.med.umich.edu
    contact form on website

    Minnesota
    Gillette Children’s Specialty Healthcare
    2000 East University Avenue
    St. Paul, MN 55101
    1-651-291-2848
    1-800-719-4040
    TDD/TTY 1-651-229-3928
    www.gillettechildrens.org

    Mayo Clinic-Rochester
    200 First Street, S.W.
    Rochester, MN 55905
    1-507-284-2511
    Fax 1-507-284-0161
    TTD/TTY 1-507-284-9786
    www.mayoclinic.org

    Miller-Dwan Medical Center
    502 East Second Street
    Duluth, MN 55805
    1-218-727-8762
    TTD/TTY 1-218-720-1950
    webfeedback@smdc.org
    www.miller-dwan.com



    Missouri
    Rusk Rehabilitation Center
    315 Business Loop 70 W.
    Columbia, MO 65203
    Department 1-573-882-3101
    Clinic 1-573-884-0033
    www.muhealth.org

    Nebraska
    Immanuel Rehabilitation Center
    Immanuel Medical Center
    6901 North 72nd Street
    Omaha, NE 68122
    1-402-572-2121
    www.alegent.com
    contact form on website

    Madonna Rehabilitation Center
    5401 South Street
    Lincoln, NE 68506
    1-402-489-7102
    1-800-676-5448
    www.madonna.org

    Nevada
    CareMeridian
    1-800-852-1256
    gwakefield@caremeridian.com
    www.caremeridian.com
    There is a contact form on the website
    I could not find any specific information for the Nevada location

    New Hampshire
    Northeast Rehabilitation Hospital
    70 Butler Street
    Salem, NH 03079
    1-603-893-2900
    webmaster@northeastrehab.com
    www.northeastrehab.com



    New Jersey
    Kessler Rehabilitation Corporation & NNJSCIS (16)
    300 Market Street
    Saddle Brook, NJ 07663
    1-201-368-6000
    1-888-KESSLER
    Fax 1-201-368-6262
    e-mail inquiry form on website
    www.kessler-rehab.com

    Kessler Rehabilitation Corporation & NNJSCIS (16)
    1199 Pleasant Valley Way
    West Orange, NJ 07052
    1-973-731-3600
    1-888-KESSLER
    1-973-243-6819
    e-mail inquiry form on website
    www.kessler-rehab.com

    New York
    Burke Rehabilitation Hospital
    The Burke Rehabilitation Hospital
    785 Mamaronek Avenue
    White Plains, NY 10605
    1-914-597-2500
    web@burke.org
    www.burke.org

    Helen Hayes Hospital Center for Rehabilitation Technology
    Route 9W
    West Haverstraw, NY 10993
    1-888-70-REHAB (73422)
    Fax 1-845-947-3097
    TTD/TTY 1-845-947-3187
    info@helenhayes.org
    www.helenhayeshospital.org

    Mount Sinai Sinal Cord Injury Model System (16)
    Mailing Address
    One Gustave L. Levy Place
    New York, NY 10029
    Department of Rehabilitation Medicine Faculty Practice
    1-212-241-6335
    1-212-241-6321
    1-212-241-3981
    www.mssm.edu

    Sunnyview Rehabilitation Hospital
    1270 Belmont Avenue
    Schenectady, NY 12308
    1-518-382-4500
    1-877-REHAB-SV (1-877-734-2278)
    www.sunnyview.org

    Ohio
    Ohio State University Medical Center
    410 W. 10th Avenue
    Columbus, OH 43210
    1-800-293-5123
    www.medicalcenter.osu.edu
    contact form on website

    Pennsylvania
    Magee Rehabilitation Hospital
    1513 Race Street
    Philadelphia, PA 19102
    Admissions 1-215-587-3117
    Fax 1-215-568-3736
    e-mail hskoczen@mageerehab.org
    www.mageerehab.org

    MossRehab Hospital
    60 East Township Line Road
    Elkins Park, PA 19027
    1-215-663-6000
    1-800-EINSTEIN
    www.einstein.edu

    MossRehab Hospital
    1200 West Tabor Road
    Philadelphia, PA 19141
    1-215-456-9000
    1-800-EINSTEIN
    www.einstein.edu

    Shriners Hospital for Children, Philadelphia
    3551 North Broad Street
    Philadelphia, PA 19140
    1-215-430-4000
    Fax 1-215-430-4079
    www.shriners.com

    UPMC Health System
    200 Lothrop Street
    Pittsburgh, PA 15213
    1-412-647-UPMC (8762)
    1-800-533-UPMC (8762)
    www.upmc.com

    University of Pennsyvlania Health System
    Hospital of the University of Pennsylvania
    3400 Spruce Street
    Philadelphia, PA 19104
    1-215-662-4000
    www.pennhealth.com
    contact form on website

    Rhode Island
    Shake-A-Leg
    P.O. Box 1264
    Newport, RI 02840
    1-401-849-8898
    1-888-SHAKEALEG
    Fax 1-401-848-9072

    Texas
    The Institute for Rehabilitation and Research
    Inpatient Rehabilitation Services
    1333 Moursund
    Houston, TX 77030
    1-800-44REHAB
    tirr.referals@memorialhermann.org
    www.tirr.org

    Virginia
    VCU Rehabilitation and Research Center
    P.O. Box 980661
    Richmond, VA 23298-0661
    1-804-828-0861
    Fax 1-804-828-5074
    beagle@hsc.vcu.edu
    www.rrc.pmr.vcu.edu



    Washington
    NextStepsNW
    4162 148th Avenue NE
    Redmond, WA 98052
    1-425-869-9506
    Fax 1-425-869-9482
    www.nextstepnw.org

    NW Regional Spinal Cord Injury System (16)
    Mailing Address
    Northwest Regional Spinal Cord Injury System
    University of Washington
    Rehabilitation Medicine, Box 356490
    Seattle, WA 98195
    Fax 1-206-685-3244
    www.u.washington.edu

    Wisconsin
    Better Days, Inc.
    Hillsboro, WI 54634
    Stanley Nofsinger 1-608-489-2628
    1-608-489-2141
    1-608-489-3569
    www.betterdayinc.com

  10. #10
    Senior Member
    Join Date
    Sep 2006
    Location
    Baltimore MD
    Posts
    167
    You haven't said (or I haven't seen) whether you are
    willing/able to leave "Down Under", and travel to another
    country (the USA, or other) for treatment.
    Bob B
    SCI - Parent

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