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Thread: EDEMA

  1. #1

    EDEMA

    I HAVE HAD EXTREMELY SWOLLEN LEGGS AND FEET FOR ABOUT 1 1/2 MONTHS. I WENT TO MY INTERNEST WHO CHECKED FOR BLOOD CLOT - NEGATIVE. LEGS BEGAN LEAKING SERUM SO I WENT TO WOUND CARE WHO WAPPED WITH PROFORE FOR 2 WEEKS. MY ALBUMIN LEVEL IS A LITTLE LOW AT 3.6. I INCREASED PROTEIN INTAKE. WRAPS CAME OFF WEDNESDAY AND SERUM BEGAN LEAKING ON FRIDAY AFTER BEING UP 30 MINUTES EVEN THOUGH THE SWELLING HAD GONE DOWN. BY FRIDAY NIGHT LEGS AND FEET WERE HUGE. I'M C5 6 YEARS POST AND HAVE BEEN HEALTHY SINCE INJURY. I TAKE 80MG LASIK WHICH INCREASED URINE OUTPUT BUT MY CATHETER HAS CLOGGED WITH SEDIMENT 3 WEEKS IN A ROW. JUST NEED SOME MEDICAL ADVICE FROM SOMEONE WHO IS FAMILIAR WITH PARALYZED PEOPLE.

  2. #2
    This severe of leg edema is unusual. Have you always had some degree of edema? Have you been wearing elastic compression hose since your injury? It sounds like you have developed lyphedema for some reason, which is unusal in someone so young without other problems other than SCI. It would be important to rule out any problems that could cause lymphatic drainage obstruction in your pelvis or legs. I would recommend that you see a specialist in lyphedema management. There are compression products that you can use on a regular basis that may help.

    You should also be elevating your legs as much as possible, and working on your nutrition to get your blood protein levels up. Do you also have a pressure ulcer? This will make you loose protein.

    Edema this severe needs to be controlled as it can lead to venous ulcers and skin breakdown, and sometimes leads to amputations if not well managed.

    (Please don't use all caps, as it is considered shouting on the internet, and it is difficult to read.)

    Welcome to our forums....please ask any questions and we will try to help.

    (KLD)

  3. #3
    Sorry for the all caps. it's just easier.
    i've always had some edema but this is severe. i've read some on lymphodema and heard the wound care dr i saw use the term at my 2nd visit.

    you said "It would be important to rule out any problems that could cause lymphatic drainage obstruction in your pelvis or legs. I would recommend that you see a specialist in lyphedema management."

    what would cause lymphatic drainage obstruction? also i do have an area on my right inner thigh that is open but not bad.

    what type of dr specializes in lemphedema management?

  4. #4
    Anything internal that compresses your groin or leg can cause lymphedema, as can surgery in that area or open wounds that obstruct or damage the lymph vessels. Sometimes vascular studies, MRIs, CTs or Xrays are needed to screen for any causes.

    Most lymphedema physicians are internists who specialize in this area. Some are vascular surgeons. Your physician should be able to refer you to a specialty program for consultation.

    (KLD)

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